top of page
  • Writer's pictureJohana Medina

Years of Misdiagnosis

I had my first ever flare at eighteen years old. I was a senior in highschool and had just gotten out of a weight training class. When I was writing notes for my next class, I noticed that my wrist was very swollen. Oh man! I must have injured myself in gym practice again. At the time, I believed I would be out for two weeks. After a week, my symptoms got worse and the pain spread to my knees. That's when I decided to visit my primary care doctor. My doctor didn't believe it was anything serious and had just sent me to physical therapy for a couple of months. Little did I know that I would experience a lot more widespread pain and would be fighting for a diagnosis for three and a half years. As time passed, my pain was getting much worse and had spread to a lot more other joints. Week after week, month after month I had more and more new symptoms. After months of physical therapy with no help, I decided to go back to my doctor to request an MRI of my wrist in hopes that it would give me an answer; my doctor dismissed me. He said that I was “perfectly fine and healthy”. I was referred to an orthopedist who also dismissed my symptoms. Finally in March of 2020, I was referred to see a rheumatologist. Unfortunately, I was misdiagnosed and was told that I just had “very flexible joints'.' This led me to a long path of misdiagnoses and seeking for answers for more years. After this, I was left with no hope and not knowing what to do; I visited tons of other doctors seeking answers. Orthopedists, geneticists and physical therapists all told me that they couldn’t help me or that I was “perfectly fine and healthy”. These were honestly the worst years of my life; I felt so alone and hopeless because I knew something was wrong. I became very depressed and bitter about life; I couldn't do anything that brought me joy any more. Once I was finally diagnosed in 2021, I became very passionate to share my story. Although it took many years to get to where I am today, it is an honour to spread awareness and find a community that means the world to me.

37 views0 comments

Recent Posts

See All

Idiopathic. An adjective ‘relating to or denoting any disease or condition which arises spontaneously or for which the cause is unknown’ (Oxford English Dictionary). When I was 16 years old, I was dia

Like many people who have Juvenile Arthritis, I was diagnosed before I was old enough to fully grasp what those words meant. Growing up can be scary enough as it is, but coming to terms with the fact

Dating is hard for everyone—putting yourself out there in an attempt to find a person whose values and personality align with yours is daunting, but there is an added element when dating with a chroni

bottom of page