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Reportage 2024 Réunion scientifique annuelle de la Société Canadienne de l'étude de la douleur Natasha fait l'objet d'un article dans le Temerty Faculty of Medicine News de l'Université de Toronto. Elle y aborde le sujet de la douleur chronique en prévision de la réunion scientifique annuelle de la Société canadienne de l'étude de la douleur. En savoir plus ARThrite: Café Scientifique Le Centre ARThrite lance une nouvelle initiative, le Café Scientifique! Le Café Scientifique est un espace de dialogue entre les patients atteints de maladies rhumatismales auto-immunes et la communauté scientifique. Cette session bilingue s'est déroulée à l'Université Laval le 26 septembre 2025. Maggie et Yaneisy, membres du TAPC, y ont participé et ont fait une présentation lors de leur tout premier événement! The ARThritis Research Centre is launching a new initiative, Café Scientifique! Café Scientifique is a space for dialogue between patients living with autoimmune rheumatic diseases and the research community. This bilingual session took place at Laval University on September 26th, 2025. TAPC's Maggie and Yaneisy participated and presented at their very first event! Pour en savoir plus, cliquez ici! Découvrez ici ce qui s'est passé lors de l'événement Réunion scientifique annuelle de la Société Canadienne de l'étude de la douleur Canadian Pain Society to host experts, patients and policymakers at U of T in May Research, Education Natasha fait l'objet d'un article dans le Temerty Faculty of Medicine News de l'Université de Toronto. Elle y aborde le sujet de la douleur chronique en prévision de la réunion scientifique annuelle de la Société canadienne de l'étude de la douleur. En savoir plus "Growing Pains, Making Gains: The Realities of Juvenile Arthritis" Spondylitis Plus est le seul magazine d'actualité américain consacré à la spondylarthrite. Dans son édition de l'été 2025, le magazine a publié un article rédigé par Natasha Trehan et Maggie Douglas en l'honneur du Mois de la sensibilisation à l'arthrite juvénile en juillet. Le magazine, organisé par la Spondylitis Association of America (SAA), est accessible en ligne à tous. Cet article se trouve aux pages 14 et 15 du numéro de l'été 2025. Vous pouvez consulter les autres numéros sur leur site web. Consultez le PDF de l'été 2025 ici Site web de la SAA et autres numéros ici Spécial TAPC sur les maladies chroniques avec Natasha Natasha parle de son parcours avec la ACJ et les maladies chroniques dans ce podcast avec Crohn's & Autism Awareness Advocate Natasha parle aussi de son intérêt secret ! Chanter ! Cliquez sur le bouton pour écouter le podcast sur Spotify Écouter le podcast 2024 Spécial TAPC sur les maladies chroniques avec Natasha Natasha parle de son parcours depuis le diagnostic jusqu'à la découverte de sa propre voix. Tout au long de l'épisode du podcast, avec Adam Kegley de la Global Healthy Living Foundation, elle discute de la prise de décision partagée en matière de soins de santé et de traitement, des défis liés à l'équilibre entre les objectifs de médication et les objectifs de vie personnelle, de l'importance de la défense de ses intérêts et de la façon dont Take a Pain Check autonomise les jeunes atteints de maladies rhumatismales. Cliquez sur le bouton pour écouter le podcast sur Spotify Écouter le podcast 2023 Spécial TAPC sur les maladies chroniques avec Natasha Natasha parle de son parcours avec la ACJ et les maladies chroniques dans ce podcast avec Crohn's & Autism Awareness Advocate Natasha parle aussi de son intérêt secret ! Chanter ! Cliquez sur le bouton pour écouter le podcast sur Spotify Écouter le podcast Projet de l'engagement du public dans la politique de santé Le TAPC est impliqué dans l'engagement du public et la politique de santé, car l'organisation vise à soutenir les communautés atteintes de maladies rhumatismales et les projets d'innovation créative. Apprendre plus Recherche sur l'arthrite au Canada Natasha raconte son histoire, celle de son diagnostic d’arthrite chronique juvénile (ACJ) à l’âge de 13 ans, qui a changé sa vie et l’a mise sur une voie qu’elle n’aurait jamais imaginée. Elle pensait que l’arthrite ne concernait que les personnes âgées, mais les enfants en souffrent aussi. En savoir plus Santé des articulations – L’arthrite à la maison Natasha est présentée dans un épisode d'Arthritis At Home, elle partage son parcours avec la maladie d'arthrite chronique juvénile (ACJ) et ce qu'elle fait pour défendre et aider les personnes vivant avec l'ACJ. Écoutez-la sur : https://arthritisathome.jointhealth.org/?p=5005 D'autres épisodes peuvent être trouvés sur https://jointhealth.org/ArthritisAtHome.cfm Portail Power Over Pain Take a Pain Check est maintenant disponible sur le portail Power over Pain ! Le portail Power Over Pain vous donne accès à une gamme de ressources, de cours et de soutien par les pairs, toutes gratuites. Vous n'êtes pas seul dans votre combat contre la douleur ; il y a de l'espoir. Visitez-les sur https://www.popyouth.ca/ Take a Pain Check est une ressource officielle sur l'application UCAN CAN-DU ! Prise de décision partagée Publié par l'Alliance Canadienne des Arthritiques, la Fondation Take a Pain Check et The Choice Research Lab 2022 Take a Pain Check présenté dans le bulletin d'information de l'hôpital SickKids Lire ici Publié par : sickkids.ca Regardez notre épisode en conversation avec le podcast Sickboy ! Rassembler les morceaux ensemble - Épisode de Sickboy Regardez notre documentaire produit par la CBC ici ! Voir Ce que c'est que de recevoir un diagnostic d'arthrite à 13 ans Apprendre plus Publié par : cbc .ca/ottawa TAPC sur CBC Ottawa Morning Écoutez ici Publié par : CBC Ottawa Morning Ce que c'est que de recevoir un diagnostic d'arthrite à 13 ans Écoutez ici Publié par : UCan Can-Du Les podcasts TikTok viraux d'une adolescente de Markham décrivent la vie avec l'arthrite Lire ici Publié par : YorkRegion.com 2021 Take a Pain Check – Créer une communauté pour les jeunes atteints d’arthrite Publié par : Recherche sur l'Arthrite Canada Écoutez ici L’intimidation et l’arthrite : il faut en parler Publié par : Recherche sur l'Arthrite Canada Lire l'article « Notre arthrite est peut-être chronique, mais nous sommes définitivement iconique » Lire le résumé ici Publié par : Le Collège Américain de Rheumatologie Écrire l'histoire avec la conférence UPLiFT : nous avons pris un excellent départ ! Lire maintenant Prix de Jeune Leader 2021 En savoir plus Vidéo de la Fashion Week de New York Tumbler et Tipsy de Michael Kuluva Collection Printemps/Été 2022 avec Natasha T Achetez ici

Programme d’ambassadeurs des professionnels de la santé (HCPA) Postulez maintenant Le programme d’ambassadeurs professionnels de la santé de Take a Pain Check (TAPC) est composé de médecins de diverses spécialités (résidents, boursiers et médecins traitants) et de professionnels de la santé alliés. Avantages Ambassadeur Gagnez en visibilité sur le site Web Take a Pain Check et sur les plateformes de médias sociaux, en touchant un large public Développez votre réseau professionnel à l'échelle internationale, en vous connectant avec des professionnels de la santé, des chercheurs et des défenseurs des droits de la personne dans le monde entier Contribuer à l'autonomisation mondiale des jeunes atteints de maladies rhumatismales, en ayant un impact positif à l'échelle mondiale Bénéficiez d'une reconnaissance lors de conférences grâce à des diaporamas et à une inclusion dans les documents d'intégration, mettant en valeur votre implication Rejoignez un réseau d'individus partageant les mêmes idées, y compris d'autres ambassadeurs et membres de l'équipe, favorisant les connexions et les opportunités de collaboration Obtenez des informations précieuses du point de vue direct des patients, en écoutant des personnes ayant des expériences vécues diverses Partagez vos recherches personnelles via des plateformes de publication de blog et des épisodes de podcast, amplifiant ainsi votre travail auprès d'un public mondial. Faites la promotion de vos recherches et recrutez des participants grâce à la newsletter et aux plateformes de Take a Pain Check, élargissant ainsi votre portée Recevez une lettre de soutien pour des projets de recherche, des subventions ou des opportunités de formation par Take a Pain Check Recevez une invitation pour rejoindre la page LinkedIn Business de Take a Pain Check, élargissant ainsi votre réseau professionnel Sensibiliser aux maladies rhumatismales dans le monde entier, contribuant ainsi à réduire la stigmatisation et à améliorer la compréhension Partagez votre expertise et vos connaissances avec un public mondial, en éduquant les autres et en promouvant des pratiques fondées sur des données probantes Vivez l'épanouissement personnel et ayez un impact significatif sur la vie des patients du monde entier Responsabilités Impliquez-vous dans la communauté des maladies rhumatismales et engagez-vous dans des sujets du point de vue du patient Créez au moins 1 article de blog par an sur vos recherches ou sur les maladies rhumatismales Mentionnez les opportunités potentielles de parrainage, de conférences et d'autres opportunités de présenter le TAPC, y compris les subventions pour le service communautaire par les hôpitaux et les organisations Travaillez en collaboration avec le coordonnateur de l'HCPA pour postuler aux opportunités de subvention offertes par votre clinique ou hôpital, ou d'autres que vous pourriez rencontrer Promouvez des groupes de soutien mensuels dans votre hôpital et votre clinique, et recommandez aux patients d'y participer, en leur offrant un espace sûr et communautaire. Participez aux rassemblements virtuels et physiques organisés par Take a Pain Check lorsque cela est possible et faites activement la promotion de la sensibilisation pour encourager une plus grande présence et participation Réfléchissez et exécutez des plans qui contribuent à la croissance de Take a Pain Check ainsi qu'à ce programme Établir une présence du TAPC au sein de votre communauté Mentionnez TAPC aux patients, parents et alliés Promouvoir le TAPC auprès d'autres rhumatologues et personnes intéressées Fournir au TAPC des connexions qui peuvent être utilisées pour le financement, telles que des sociétés pharmaceutiques, des subventions hospitalières, ainsi que pour accroître le réseau et la communauté du TAPC Suivez et faites la promotion des plateformes de médias sociaux de Take a Pain Check en : Aimer et commenter notre contenu sur les réseaux sociaux Suivez nos plateformes de médias sociaux Republier nos supports marketing sur vos comptes personnels de réseaux sociaux Affichez des affiches et des dépliants sur vos lieux de travail ou recevez des fiches de ressources de notre équipe à fournir aux patients (y compris en soins de santé bucco-dentaire et en rhumatologie) Participer aux médias sociaux (facultatif) Ex. Une journée dans la vie, Autres vidéos (Instagram Reels, Tiktok, Youtube) L'engagement de temps estimé pour ce rôle est jusqu'à 2 heures par mois Réunions et communication Participer à la réunion d'intégration Assister aux réunions trimestrielles avec les autres ambassadeurs du HCPA et le coordinateur du HCPA Communiquez dans le chat HCPA tout en restant au courant des annonces Communiquez avec d'autres professionnels de la santé à l'intérieur et à l'extérieur de votre communauté pour promouvoir Take a Pain Check Vérifiez le dossier partagé HCPA Google Drive chaque semaine et effectuez toutes les tâches assignées Consultez Slack quotidiennement pour les mises à jour Quelques-uns de nos ambassadeurs de la santé nous rencontrent à l'ACR 2024 Ambassadeurs des Professionnels de la Santé Dr. Melissa Mannion Pediatric Rheumatologist Alabama, USA Dr. Nadia Luca Pediatric Rheumatologist Canada Dr. Natalia Trehan Oral Medicine Chief Resident Pennsylvania, USA Dr. Elaine Soucy Rheumatologist Ontario, Canada Dr. Anna Costello Pediatric Rheumatology Fellow Pennsylvania, USA Dr. Nandini Moorthy Pediatric Rheumatologist New Jersey, USA Pamela Jarvis Social Service Worker Ontario, Canada Dr. Dan Horton Pediatric Rheumatologist New Jersey, USA Dr. Tala El Tal Pediatric Rheumatologist Ontario, Canada

Le podcast Take a Pain Check (TAPC) est fondé et animé par Natasha Trehan. Ce podcast engage des conversations sur les relations, l'école, le plaidoyer et plusieurs autres sujets liés à la vie avec une maladie chronique. Le podcast est diffusé tous les deux dimanches à 12 heures HNE sur Youtube, Spotify, Apple, Google Podcasts et iHeartRadio. TAPC vise à faire une différence dans la vie des jeunes et à les inspirer pour qu'ils tirent le meilleur parti de cette maladie. Nous célébrons nos 100 épisodes ! Dans cet épisode spécial , Natasha est rejointe par son frère et sa sœur, Natalia et Nikhil , pour plonger dans les moments réels et bruts de la vie avec l'arthrite juvénile idiopathique (AJI) comme famille. Ensemble, ils partagent des histoires sincères sur les premiers jours, les défis inattendus et le soutien indéfectible familial qui les a aidés à surmonter les épreuves. C'est un regard touchant sur la résilience, la force des liens familiaux et les leçons qui changent la vie lorsqu'on se soutient mutuellement contre vents et marées. Ne manquez pas ce voyage dans les coulisses, empreint de sagesse, de chaleur et d'un aperçu de la force de la famille . Regardez notre bande-annonce ici, disponible uniquement sur notre site pour une durée limitée. Regardez l'Épisode Complet Ici ! Qu'est-ce que le podcast Take a Pain Check ? Le podcast Take a Pain Check présente des personnes de la communauté, notamment des personnes atteintes de maladies rhumatismales, des professionnels de la santé et plus ! Diffusez Tous les Deux Dimanches à 12h00 HNE Spotify Podcasts Apple YouTube iHeartRadio Trouvez le podcast qui vous convient ! Expérience Vécue Recherche et Médecine Famille et Amis Rencontrez l'Animatrice ! En Savoir Plus sur Natasha Natasha Trehan a reçu un diagnostic d'arthrite juvénile idiopathique à l'âge de 13 ans. À l'adolescence, elle se sentait seule et était incapable de trouver les ressources instantanées pour entrer en contact avec d'autres personnes ayant des expériences vécues similaires. Après avoir rejoint un groupe de soutien deux ans après le début de son parcours et avoir eu des tonnes de discussions avec d'autres jeunes ainsi que des similitudes de sujets qui n'ont jamais été mis en lumière, le podcast Take a Pain Check a été fondé en mars 2021 pour s'assurer que les jeunes patients se sentent soutenus à chaque étape du processus. Tout au long de son parcours, elle a développé beaucoup de résilience et a également appris à défendre non seulement ses intérêts mais aussi ceux des autres. Elle a appris que la recherche, l'innovation, le soutien et la connexion sont essentiels. Elle aspire à poursuivre une carrière dans le domaine de la santé. Elle a créé cette organisation pour s'assurer que personne d'autre atteint d'une maladie auto-immune n'ait à traverser ce parcours difficile seul. Elle est très enthousiaste à l'idée de poursuivre ce voyage avec son équipe incroyable et son comité consultatif médical ! Tous les Épisodes All Videos Eight Years Without Answers | Ep.120 Take a Pain Check Lire la vidéo Partager Chaîne entière Cette vidéo Facebook Twitter Pinterest Tumblr Copiez le lien Lien copié Search videos Rechercher une vidéo... Lecture en cours Eight Years Without Answers | Ep.120 49:33 Lire la vidéo Lecture en cours Chronic Pain Isn’t What You Think | Ep.119 40:16 Lire la vidéo Lecture en cours Living This Diagnosis Together | Ep.118 56:11 Lire la vidéo Les points de vue et opinions exprimés par les invités dans ce podcast ne représentent ni ne reflètent la politique ou la position officielle de la Fondation Take a Pain Check et du podcast. Toutes les informations partagées sont issues d'expériences personnelles et ne constituent pas un avis médical. Nous déclinons toute responsabilité quant aux déclarations exprimées pendant le podcast. Take a Pain Check ne cautionne aucun produit ou service. Les produits ou services mentionnés dans ce podcast pourraient ne pas vous convenir ou ne pas être adaptés à votre état de santé. Veuillez consulter votre médecin pour toute question médicale relative à votre état de santé. Merci à nos Téléspectateurs de YouTube ! Nous avons eu des auditeurs de plus de 120 pays ! Souhaitez-vous Devenir un Invité ? Postulez Maintenant ! Widget Didn’t Load Check your internet and refresh this page. If that doesn’t work, contact us. Soumettez une question ou un sujet pour le podcast ! Envoyez un courriel à brianne@takeapaincheck.com pour toute demande relative au podcast.

Joint Chat Rheum Créer des liens, favoriser la communauté Qu'est-ce que Joint Chat Rheum? Joint Chat Rheum (JCR) est un nouveau programme fièrement lancé par Take a Pain Check pour autonomiser et connecter les jeunes et les jeunes adultes (16-29 ans) atteints de maladies rhumatismales. Conçu pour favoriser un sentiment d'appartenance, JCR rassemble des personnes qui comprennent véritablement les défis de la vie avec une maladie rhumatismale. Menée par des ambassadeurs passionnés et expérimentés, cette initiative offre un espace sûr et solidaire pour des conversations enrichissantes, un soutien mutuel et la création d'amitiés durables. Grâce à JCR, les participants bénéficient d'une communauté dynamique où ils peuvent partager leurs histoires, trouver de la force dans leurs expériences communes et créer des liens qui inspirent résilience et espoir. Structure et avantages du programme Notre programme est un engagement de 6 mois comprenant des séances mensuelles d'une heure via Zoom. Chaque séance est conçue pour être interactive et stimulante, alliant discussions structurées et activités ludiques. Les participants échangent non seulement lors des séances en direct, mais poursuivent également leurs échanges via notre communauté Discord exclusive. Voici les détails clés : Durée : engagement de programme de 6 mois Fréquence des séances: Séances mensuelles d'une heure via Zoom Capacité des participants: Entre 5 et 10 participants par cohorte Conditions de présence: S'engager à assister à toutes les séances d'une heure Honoraires: Les participants qui remplissent les conditions de présence recevront des honoraires à la fin du programme. Format et activités de la séance Chaque séance mensuelle est soigneusement structurée pour favoriser l'interaction et la camaraderie. Les activités comprennent : Exercices interactifs de l'esprit d'équipe Des discussions engageantes de groupe sur des sujets pertinents Opportunités de questions-réponses Soirées de jeux et activités sociales Conversations menées par des pairs ambassadeurs Avantages du programme En rejoignant JCR, vous : Connectez-vous avec des pairs qui comprennent votre parcours Construisez des amitiés durables dans un cadre informel et solidaire Partager des expériences et apprendre des autres Participer à des activités et des discussions engageantes Profitez d'une communauté qui s'étend au-delà des sessions mensuelles Recevez un honoraire d'achèvement de programme Accédez à une communauté Discord exclusive Dates des prochaines sessions – Cohorte de février à juin 2025 Notre calendrier 2025 comprenait 27 février : 19 h à 20 h HNE, animé par Jenna Kedy (atteint de AJI) 27 mars : 18 h à 19 h HNE, animé par Sahara Mehdi (atteint de PR) 24 avril : 18 h à 19 h HNE, animé par Yaneisy-Nynoska Tremblay (atteint de LED) Mai (date à déterminer) : Animé par Anna Samson (atteint de axSpA) 30 juin : 18 h à 19 h HNE, animé par Morgane Hanley (atteint de fibromyalgie et d’AJI) Revenez bientôt pour découvrir les sessions que nous organisons en 2025/2026 ! Admissibilité et processus de candidature Pour participer au programme JCR, vous devez : Être diagnostiqué avec une maladie rhumatismale Être âgé de 16 à 29 ans S'engager à assister à au moins 5 séances sur 6 Être prêt à participer activement aux discussions et aux activités Être prêt à répondre à des sondages avant et après chaque séance Avoir accès à Zoom pour des séances virtuelles Si vous ne correspondez pas à la tranche d’âge mais que vous souhaitez tout de même participer, veuillez nous envoyer un e-mail. Nous examinons les candidatures au cas par cas. Aidez-nous à faire passer le message ! L’un des principaux objectifs de la Take a Pain Check Foundation est de mettre en relation les personnes atteintes de maladies rhumatismales avec des ressources et des réseaux de soutien. La présence d’affiches promotionnelles, de dépliants et de cartes de visite dans les établissements de santé peut aider à orienter les jeunes atteints de maladies rhumatismales vers notre communauté. Nous demandons à ceux qui peuvent faire passer le message et faire connaître notre programme JCR de partager nos affiches en accédant à notre Google Drive partagé ou en s’inscrivant à notre initiative de matériel promotionnel hospitalier. Nous espérons pouvoir compter sur votre soutien ! Accédez à nos affiches ici Vous souhaitez en savoir plus? N'hésitez pas à nous contacter ! Vous pouvez nous envoyer un e-mail à l'adresse ambassadors@takeapaincheck.com pour obtenir plus d'informations sur ce programme. Intéressé par les sujets de nos événements passés ? Découvrez-le ici Précédemment en partenariat avec l'Université de Pennsylvanie

Programme de sacs à dos pour adolescents Qu'est-ce que le programme de sacs à dos ? Nous avons collaboré avec la Société d'arthrite du Canada pour créer notre sac à dos pour adolescents à partir de zéro. La conception de ce sac à dos a fait l'objet de beaucoup de soins et d'attention. Matt & Nat, l'entreprise canadienne à l'origine du sac à dos, a créé plusieurs prototypes avant d'en arriver à la conception finale, qui comporte de larges bretelles, un rembourrage dorsal, un soutien à la taille et une sangle thoracique amovible afin de réduire au minimum la tension exercée sur les articulations, tout en adoptant une conception esthétique et élégante. Les sacs à dos sont végétaliens, sans cruauté et respectueux de l'environnement, entièrement fabriqués à partir de matériaux recyclés. Le contenu des sacs à dos a été sélectionné sur la base des recommandations de rhumatologues, d'adolescents, de physiothérapeutes et d'ergothérapeutes ayant reçu une formation avancée en matière de traitement de l'arthrite. Éligibilité Vous devez répondre aux critères suivants pour pouvoir bénéficier d'un sac à dos, la priorité étant donnée aux personnes nouvellement diagnostiquées. Veuillez noter qu'il est possible que nous fassions un suivi avec le rhumatologue référent pour confirmer le diagnostic. Le bénéficiaire est âgé de 13 à 17 ans et réside au Canada. Le bénéficiaire a reçu un diagnostic d'arthrite ou d'une autre maladie rhumatismale Le bénéficiaire est suivi par un rhumatologue Le bénéficiaire n'a jamais reçu de sac à dos dans le cadre du programme Chaque sac à dos comprend : Une liste de ressources pour vous aider à trouver des programmes, des ressources et des recherches Une poche de chaud/froid recouverte d'une peluche contient un gel qui retient la chaleur ou le froid. Vous pouvez le réchauffer au micro-ondes ou le refroidir au congélateur en fonction de vos besoins spécifiques Une pince à bocal en silicone, qui offre une prise supplémentaire pour aider à ouvrir les bocaux ou les récipients Une brosse à dents électrique pour réduire l'effort et la tension nécessaires pour se brosser les dents efficacement Une pince à crayon pour rendre les différents outils d'écriture plus confortables à utiliser Des tirettes de fermeture à glissière qui peuvent être ajoutées aux fermetures à glissière pour les rendre plus faciles à ouvrir et à fermer Un pilulier pour vous aider à organiser et à ranger vos médicaments en toute sécurité L'ours Rheumy pour vous réconforter et vous soigner Formulaire de commande Veuillez remplir le formulaire de demande d'expédition pour demander votre sac à dos. Il faut compter entre 4 et 6 semaines pour que les familles reçoivent leur sac à dos après avoir envoyé le formulaire de demande. Si vous avez des questions sur le programme, veuillez envoyer un courriel à info@takeapaincheck.com .

Programme d'ambassadeurs de la jeunesse et les jeunes adultes (YYAAP) Postulez maintenant ⁉️ À propos du programme Bienvenue au programme d'ambassadeurs Take a Pain Check (TAPC) — où passion et engagement se rencontrent, où plaidoyer et action se réunissent. Cette année, nous ne vous invitons pas seulement à rejoindre une équipe, mais à rejoindre un mouvement. Veuillez noter que seuls 10 jeunes seront admis à ce programme. Il débutera en septembre. 💥 Date limite de candidature: 31 août 2025 📅 Les entretiens auront lieu en septembre 🧡 Ce poste est bénévole 🌟 Pourquoi nous rejoindre ? En tant qu'ambassadeur TAPC, vous: Donnerez du pouvoir aux patients et partagerez des histoires souvent méconnues. Développerez votre image de jeune leader dans le domaine des maladies chroniques. Créerez du contenu viral, instructif et inspirant. Organiserez des programmes puissants comme Joint Chat Rheum. Participerez à un véritable changement dans le système de santé, des réseaux sociaux aux conférences. Et cette année, nous passons au niveau supérieure : produits dérivés, concours, communauté, récompenses. 🌈 Rôles et responsabilités Rédiger des articles de blog engageants (selon un calendrier précis) Collaborer chaque semaine avec l'équipe TikTok pour créer du contenu amusant, informatif et tendance Rester actif dans notre communauté Discord afin de soutenir d'autres patients atteints de maladies rhumatismales Participer à la réflexion et à l'organisation de campagnes de sensibilisation à la TAPC Animer des sessions de chat conjointes sur la rhumatologie et des live Instagram/Tiktok Participer aux événements TAPC et les diffuser en ligne Utiliser des plateformes comme Instagram, TikTok et Twitter pour accroître la visibilité de la TAPC Assurer une présence pour la TAPC dans votre école, votre clinique et/ou votre communauté Produire des vidéos « Fun Fact Friday » pour sensibiliser aux maladies rhumatismales Collaborer avec notre coordinateur à la création d'une initiative de collecte de fonds Utiliser et distribuer les supports marketing de la TAPC de notre Google Drive Participer aux événements « Take a Pain Check » Créer un vlog par an pour notre chaîne YouTube ✅ Exigences Postulez maintenant si vous : Êtes âgées de 16 à 29 ans (exceptions possibles avec l’accord des parents) Vivez avec une maladie rhumatismale Venez de n’importe où dans le monde Êtes passionnées par la défense des droits, la sensibilisation et le développement communautaire Rester actives et informées des dernières tendances sur les réseaux sociaux Maintenez un compte Instagram actif Pouvez consacrer 1 heure par semaine Êtes fiables, créatives et collaboratives 🚪 Réunions et communication Participez aux réunions mensuelles Rester actif dans le groupe de discussion des ambassadeurs Utilisez Google Drive pour rester informé 🏆 Mises à niveau d'engagement: quoi de neuf cette année? 🎁 Produits dérivés et étapes importantes À 6 mois : carte-cadeau de 25$ + tasse TAPC + épingle d'ambassadeur exclusif À 1 an : carte-cadeau de 50$ + produits dérivés TAPC + certificat personnalisé + article spécial + peluche TAPC 🎉 Défis mensuels et reconnaissance Participez à des défis vidéo/blog axés sur la créativité et l’impact « Ambassadeur du mois » est mis en avant sur nos réseaux sociaux + LinkedIn + carte-cadeau de 25$ Reconnaissance de l’impact viral: reconnaissance spéciale pour le contenu qui franchit des étapes importantes (plus de 100 000 vues, engagement élevé) 🏆 Prix d’excellence annuels « Champion viral » : l’ambassadeur dont la vidéo est la plus vue reçoit une carte-cadeau de 100 $ + des produits dérivés TAPC exclusifs + une mise en avant sur toutes les plateformes TAPC La personne qui collecte le plus de fonds pour la collecte de fonds recevra une récompense. 🏛️ Opportunités de représentation Participez à des conférences, virtuelles et en personne Contribuez à diriger ou à co-concevoir des recherches centrées sur le patient Projets Animer ou modérer des panels et des ateliers 📄 Reconnaissance et avantages Heures de bénévolat (éligibles le cas échéant) Certificat officiel TAPC en fin de trimestre Réseautage via LinkedIn et la page professionnelle TAPC Accès exclusif au serveur Discord des ambassadeurs Développement de compétences : marketing, leadership, plaidoyer, prise de parole en public et plus encore Participez à un projet qui à un impact Recevez de la reconnaissance et des récompenses pour vos efforts 🚀 Postulez maintenant Êtes-vous prêt à avoir un impact, à développer vos compétences et à rejoindre une puissante communauté de jeunes défenseurs ? Postulez dès maintenant pour devenir ambassadeur Take a Pain Check et commencez votre parcours de créativité, d'autonomisation et de plaidoyer. Des questions ? Contactez-nous par message privé ou par courriel à ambassadors@takeapaincheck.com

Take a Pain Check Young Scholars Program Programme de jeunes savants Take a Pain Check Apply now Postulez maintenant About the Scholarship The Young Scholars Program by Take a Pain Check Foundation is an annual scholarship program that aims to relieve financial hardship and other academic barriers faced by students living with rheumatic diseases through financial assistance. The 2025-2026 scholarship program consists of 2 scholarship pathways: The "Learn without Limits" scholarship for one student pursuing higher education in any field, and the "STEM Without Limits" scholarship for one student studying science, technology, engineering, or mathematics. The 2 scholarships, totaling $5,000 CAD, will recognize outstanding academic achievement and a strong dedication to community involvement. Eligibility for Scholarships: Legal and permanent resident of Canada Currently enrolled as a part-time or full-time student in a Canadian post-secondary institution (undergraduate/diploma) STEM Without Limits: Any STEM program (Science, Technology, Engineering, Math). Learn Without Limits: A program in any discipline excluding STEM. Officially diagnosed with a rheumatic disease by a certified healthcare professional Display Academic Excellence Making a Difference in the Community Willing and able to comply with conditions outlined under Applicant Consent To align with our organization's mission, applicants must be 16-29 (Exceptions may apply on a case by case basis. If you have any questions or concerns, please email us) Applicants have not been a volunteer/podcast guest/blog writer with TAPC in the past 12 months Learn Without Limits The Learn Without Limits Take a Pain Check Scholarship, valued at $2,500 CAD, is open to students currently pursuing higher education in any non-STEM program. This scholarship aims to promote equity and improve access to opportunities by easing financial burdens for students living with rheumatic diseases. We believe it will foster inclusive environments, empowering individuals to overcome the unique challenges they face. One recipient will be selected based on demonstrated academic excellence and community involvement. STEM Without Limits The STEM Without Limits Take a Pain Check Scholarship, valued at $2,500 CAD, is open to students living with a rheumatic condition who are currently pursuing higher education in any science, technology, mathematics, or engineering related field. This scholarship seeks to provide equal access to opportunities for individuals with rheumatic diseases, empowering them to advance rheumatology through research, innovation, and advocacy. We believe in a future where individuals in STEM with rheumatic conditions are recognized for their hard work and contributions. This scholarship is open to one STEM student and selection will be based on academic excellence and community involvement. Apply now À propos de la bourse Le programme de Jeunes Savants est un programme de bourses annuel qui vise à soulager les difficultés financières et autres obstacles académiques rencontrés par les étudiants vivant avec des maladies rhumatismales grâce à une aide financière. Le programme de bourses 2025-2026 comprend 2 parcours de bourses : la bourse "Apprendre Sans Limites" pour les étudiants poursuivant des études supérieures dans n'importe quel domaine, et la bourse “STIM Sans Limites” pour les étudiants en sciences, technologies, ingénierie ou mathématiques. Les 2 bourses, totalisant $5,000 CA, reconnaîtront des réalisations académiques exceptionnelles et un fort dévouement à l'implication communautaire. Admissibilité aux bourses: Résident légal et permanent du Canada Actuellement inscrit comme étudiant à temps partiel ou à temps plein dans un établissement post-secondaire canadien STIM Sans Limites: Tout programme STIM (Sciences, technologie, ingénierie et mathématiques) Apprendre Sans Limites: Tout programme hors STIM Diagnostiquer officiellement d'une maladie rhumatismale par un professionnel de la santé agréé Faire preuve d'excellence académique Agir pour la communauté Être capable et prêt à se conformer aux conditions décrites dans la section Consentement du Appliquant Si l'étudiant a moins de seize ans, un parent/tuteur devra approuver les conditions de bourse. Pour correspondre à la mission de notre organisation, les candidats doivent être âgés de 16 à 29 ans (Des exceptions peuvent s'appliquer au cas par cas. Si vous avez des questions ou des préoccupations, veuillez nous envoyer un e-mail). Les candidats n'ont pas été bénévoles, invités de podcasts ou auteurs de blogs avec TAPC au cours des 12 derniers mois. Apprendre Sans Limites La bourse Apprendre Sans Limites Take a Pain Check, d'une valeur de 2 500 dollars canadiens, est ouverte aux étudiants qui poursuivent actuellement des études supérieures dans n'importe quel programme de premier cycle excluant les programmes STIM. Cette bourse vise à promouvoir l'équité et à améliorer l'accès aux opportunités en allégeant le fardeau financier des étudiants vivant avec des maladies rhumatismales. Nous pensons qu'elle favorisera des environnements inclusifs, permettant aux individus de surmonter les défis uniques auxquels ils sont confrontés. Un lauréat sera sélectionné sur la base de son excellence académique et de son implication dans la communauté. STIM Sans Limites La bourse STIM Sans Limites Take a Pain Check, d'une valeur de 2 500 dollars canadiens, est ouverte aux étudiants atteints d'une maladie rhumatismale qui poursuivent actuellement des études supérieures dans un domaine lié aux sciences, à la technologie, aux mathématiques ou à l'ingénierie. Cette bourse vise à offrir un accès égal aux opportunités pour les personnes atteintes de maladies rhumatismales, en leur donnant les moyens de faire progresser la rhumatologie par la recherche, l'innovation et la défense des droits. Nous croyons en un avenir où les personnes atteintes de maladies rhumatismales et travaillant dans les STIM seront reconnues pour leur travail acharné et leurs contributions. Cette bourse est ouverte à un étudiant de premier cycle en STIM et la sélection se fera sur la base de l'excellence académique et de l'engagement communautaire. Postulez maintenant Want to Help Spread the Word? We would greatly appreciate any support from our community in sharing our scholarship to reach more students! Click the button below to find a variety of posters and social media posts that can be used to share with your network. Vous souhaitez contribuer à faire passer le message ? Nous apprécierions grandement tout soutien de notre communauté pour partager notre bourse et toucher davantage d'étudiants ! Cliquez sur le bouton ci-dessous pour découvrir une variété d'affiches et de publications sur les réseaux sociaux à partager avec votre réseau. Start now/Commencez Maintenant Vous cherchez un modèle ? Nous avons créé des modèles pratiques pour vos certificats médicaux et lettres de recommandation. Cliquez ci-dessous pour trouver le modèle à remplir par votre médecin/référent! We have created some convenient templates that can be used for your physician certification and reference letters. Click below to find the template for your doctor/referee to fill out! Click here/Cliquez ici ! Widget Didn’t Load Check your internet and refresh this page. If that doesn’t work, contact us. View past recipients here Voir les anciens récipiendaires ici Click here // Allez ici Vous souhaitez nous soutenir? Contactez-nous : info@takeapaincheck.com Avez-vous des questions? Contactez-nous : scholarships@takeapaincheck.com Soyez informé de nos prochaines opportunités de bourses d'études! Suivez-nous sur Instagram, TikTok, X et Facebook ! Nos prochaines bourses seront annoncées en novembre 2025.

Événements Passés du Joint Chat Rheum Nous avons organisé de nombreux événements Joint Chat Rheum depuis la création de notre organisation. Nous organisons désormais ces sessions tous les mois, avec un groupe de jeunes qui participent à chaque réunion, mois après mois. Ce programme exige désormais que les participants s'inscrivent chaque été, car il commence chaque automne. Voici quelques-uns des sujets qui ont été abordés lors des sessions Joint Chat Rheum des années précédentes. Pour en savoir plus, cliquez ici.

Soutenez-nous Vous souhaitez contribuer au TAPC ? Faites un don à notre gofundme Patreon du TAPC Devenez membre Patreon ! Parrainage Pour vous renseigner sur les différents niveaux de parrainage et recevoir un paquet de parrainage, contactez-nous à partnerships@takeapaincheck.com ! Soutenez notre travail Votre générosité est le moteur de notre mission. En faisant un don à notre campagne GoFundMe, vous soutenez directement les personnes atteintes de maladies rhumatismales et nous aidez à développer des programmes essentiels comme le Joint Chat Rheum. Chaque contribution, quel que soit son montant, contribue à bâtir une communauté plus forte et mieux connectée. Faites un don Contactez-nous info@takeapaincheck.com

CLAUSE DE NON-RESPONSABILITÉ Les points de vue et opinions exprimés par les invités sur ce podcast ne représentent ni ne reflètent la politique ou la position officielle de la Take a Pain Check Foundation et du podcast. Toutes les informations partagées sont issues d'expériences personnelles et ne constituent pas un avis médical. Nous n'assumons aucune responsabilité pour les déclarations exprimées pendant le podcast. Take a Pain Check ne cautionne aucun produit ou service. Les produits ou services mentionnés dans ce podcast peuvent ne pas convenir à vous ou à votre état. Veuillez consulter votre médecin si vous avez des questions médicales concernant votre état. Juvenile Idiopathic Arthritis Lire la vidéo Lire la vidéo 32:50 Everything JIA Took, Mya Took Back | Ep. 112 In this powerful episode of Take a Pain Check, we sit down with Mya Barnett, a driven and inspiring young woman living with Juvenile Idiopathic Arthritis (JIA). Diagnosed at just 11 years old, Mya shares the reality of growing up with a chronic illness, how it shaped her confidence, impacted her daily life, and led to major decisions like undergoing jaw surgery. From navigating school accommodations and finding community at IWK summer camp, to becoming a camp counsellor and launching a homemade soap line for psoriasis. She also opens up about her experience travelling to Europe with Global Brigades Canada and managing her condition on the go. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #psoriasis #rheumaticdisease #chronicdisease #chronicillness #prelaw Lire la vidéo Lire la vidéo 49:50 The System Isn't Ready For Us | Ep. 109 In this episode of Take a Pain Check, we are joined by the Jenna Kedy, a passionate advocate living with Juvenile Arthritis and Fibromyalgia. We dive deep into Jenna’s diagnosis journey, navigating school and childhood with a chronic illness, and the challenges of finding proper pediatric care. Jenna opens up about learning to advocate for herself, balancing a busy life of advocacy, volunteering, and pageantry, and the realities of managing pain and flare-ups. We also explore the differences in healthcare systems across Canada, her work with IMPaCT Trials mentoring researchers, and her inspiring role as a Youth Board Member and Youth Ambassador at Take a Pain Check. Register for our in person event here by April 27th: https://forms.gle/tWdabTbta8ZYeieb8 Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Jenna's socials: Instagram: _missjennak_ LinkedIn: Jenna Kedy Our socials: ⁠https://www.takeapaincheck.com https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #JuvenileArthritis #FibromyalgiaAwareness #DisabilityAdvocacy #InclusiveEducation #TakeAPainCheck Lire la vidéo Lire la vidéo 39:09 Finding Confidence Through Chronic Illness | Ep. 108 In this episode of Take a Pain Check, Aubrey Mills opens up about her journey with Polyarticular Juvenile Idiopathic Arthritis. From her early diagnosis at age 8 to becoming a JA camp counsellor and launching Aubrey’s Animals through the Arthritis Foundation, Aubrey shares powerful insights on advocacy, mindset, and finding community. We talk about the realities of growing up with arthritis, the importance of support systems, and how she's turning her experiences into impact. Don't miss this inspiring conversation! Register for our in person event here by April 27th: https://forms.gle/tWdabTbta8ZYeieb8 Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Aubrey's socials: Instagram: @aubreymills__ @team_aubreys_animals Arthritis Foundation: https://www.arthritis.org/ Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ #arthritis #chronicillness #rheumaticdisease #autoimmunedisease #arthritispain Lire la vidéo Lire la vidéo 50:56 Reshaping My Life After Diagnosis | Ep. 105 In this episode of Take a Pain Check, Natasha sits down with Brandon Volesky to explore his journey with Juvenile Idiopathic Arthritis (JIA)—from being diagnosed at just two years old to navigating the challenges of childhood, overcoming stigma, and adapting his mindset to thrive as a husband, father, and professional. Brandon shares how his fear of medication affected his condition, how he ultimately embraced treatment, and how he transitioned from aspiring chef to becoming a Software and Data Engineer at H&R Block’s Machine Learning Lab. We dive into his work in AI and healthcare, his involvement with CARRA, and his passion for improving childhood rheumatology research. Through his lived experience, Brandon is leveraging machine learning and data science to transform healthcare and support better treatment options for future generations. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincheck Apply to our scholarship today: https://www.takeapaincheck.com/schola... Apply for our NEW paid youth and young adult support program: https://forms.gle/W3ciBhG89eAH8QvS8 Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Brandon's socials: www.linkedin.com/in/bvolesky CARRA: https://carragroup.org/ Growing Pains, Copyright, 2018, Alessia Cara #arthritis #chef #ai #research #dataanalytics Lire la vidéo Lire la vidéo 36:22 Trading Sneakers for Heels: Stella’s Journey | Ep. 104 In this episode of Take a Pain Check, host Natasha welcomes Stella Miller to share her journey with Juvenile Arthritis. Stella opens up about her early symptoms, the challenges of receiving a diagnosis, and the impact of medications like methotrexate and Orencia. She reflects on navigating friendships, advocating for her needs, and the support system that has helped her along the way. Stella also discusses the emotional toll of stepping away from basketball, a sport she loved, and how she found new purpose beyond the court. From her advocacy work with MUSC to modeling with a chronic illness, she shares how she’s reshaped her identity and continues to inspire others. Apply to our scholarship today: https://www.takeapaincheck.com/scholarship Apply for our NEW paid youth and young adult support program: https://forms.gle/W3ciBhG89eAH8QvS8 Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Stella's socials: Instagram & TikTok @Stellamiller71 Growing Pains, Copyright, 2018, Alessia Cara #model #basketball #arthritis #southcarolina #onlineschool Lire la vidéo Lire la vidéo 01:02:11 Episode 98: Feeling like one of the fastest kids on crutches In this episode of Take a Pain Check, Natasha sits down with Kent Messner, who shares his inspiring journey of living with rheumatoid arthritis (RA) from childhood to adulthood. Kent discusses his early diagnosis, the challenges he faced using crutches during middle and high school, and the impact of bullying on his self-esteem. He reflects on his time in a rehabilitation center, his pursuit of education, including an undergraduate degree and an MBA, and how his experiences shaped his career at Penn Medicine. Kent also shares practical tools and strategies he uses to manage his condition daily, from surgeries to physical therapy and chiropractic care. Throughout the conversation, Kent emphasizes the importance of advocacy and support, offering valuable advice to young people with disabilities. His story is a powerful reminder of the strength found in embracing differences and the importance of community in navigating life with a chronic illness. Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Kent's socials: Facebook: facebook.com/kent.messner Growing Pains, Copyright, 2018, Alessia Cara #lupus #physicianassistant #arthritis #scleroderma Lire la vidéo Lire la vidéo 58:50 Episode 96 - Joel Vs Arthritis Joel Nelson, a passionate advocate in the rheumatic disease community, shares his journey with Juvenile Idiopathic Arthritis (JIA) on the podcast. He discusses the challenges of obtaining a diagnosis and the importance of self-advocacy, especially from a young age. He reflects on the emotional rollercoaster of medication trials and their effects on mental health, emphasizing the stigma surrounding both physical and mental aspects of chronic illness for men. Joel also explores the impact of COVID-19 on healthcare access and his personal life, including parenting with arthritis. He discusses having no transition, experiences in the clinic which impacted his mental health, and the change in health care system over time in the UK. His initiatives, like the Joel Nelson Podcast and the Pain Company, show his commitment to patient-centered care and community support, making him an inspiring voice in chronic illness advocacy. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck?mx=2 Likedin: https://www.linkedin.com/company/take-a-pain-check Joel's socials: Facebook/IG/Twitter/YouTube/Twitch: @JoelvsArthritis Growing Pains, Copyright, 2018, Alessia Cara #chronicpain #chronicillness #arthritis #minecraft #mentalhealth #advocacy Lire la vidéo Lire la vidéo 45:52 Episode 95 - Stars on my Knees Join us for this week’s episode of Take a Pain Check as we welcome Michelle Murchison, who shares her inspiring journey with Juvenile Rheumatoid Arthritis (JRA). Michelle opens up about her diagnosis story, the challenges she faced with doctors, and the array of medications and surgeries she underwent. She reflects on her childhood experiences, navigating life with a chronic illness, and the impact of nutrition, lifestyle, and hormones on her condition. Michelle also discusses the mental health aspects of living with JRA, the financial burdens, insurance coverage and how her condition has shaped her family life. Finally, we delve into her children’s book, “Stars on my Knees,” exploring the inspiration and process behind it. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck?mx=2 Likedin: https://www.linkedin.com/company/take-a-pain-check Michelle's socials: @iamrobogirl (Insta), https://www.facebook.com/michellemurchisonwrites (FB) Book: https://www.starsonmyknees.com Growing Pains, Copyright, 2018, Alessia Cara #chronicpain #chronicillness #arthritis #insurance #author #childrensbooks Rheumatoid Arthritis Lire la vidéo Lire la vidéo 49:47 When the World Stopped, My Diagnosis Started | Ep. 106 In this episode of Take a Pain Check, Natasha is joined by the inspiring Sahara as she shares her journey of being diagnosed with rheumatoid arthritis (RA) during the COVID-19 pandemic. They dive into the challenges of getting a diagnosis amid uncertainty, navigating university while managing a chronic illness, and finding the right resources for understanding RA. Sahara opens up about how her south Asian background influenced her family’s understanding of her condition and how she worked to create a supportive space for herself and others who are immunocompromised. She also talk about the importance of setting boundaries, adapting to unexpected challenges while traveling, and lifestyle changes that help her manage flares. Beyond her health journey, Sahara shares her passion for writing and gives us insight into her two books—Love Letters to Myself, a heartfelt collection of poetry on love, heartbreak, and self-discovery, and Reflections, which explores themes of heritage, culture, and love. She leaves us with valuable advice for students managing a rheumatic disease and reflects on what she would tell her younger self when she was first diagnosed. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Sahara’s socials: Instagram: https://www.instagram.com/missbrainyblog?igsh=MXJsb3g5ZTV6ZTdkMA== Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #lawschool #poetry #writer #journalism Lire la vidéo Lire la vidéo 37:46 Episode 93 - One Size Does Not Fit All This week’s podcast episode features Carissa Peck, who discusses her journey with mixed connective tissue disorder, encompassing lupus and rheumatoid arthritis (RA). The conversation begins with Carissa’s introduction and background, followed by her diagnosis story, including initial symptoms and their progression. Carissa shares her experiences with various treatments, from medications to other treatments. She describes managing flare-ups and the impact of her condition on relationships, emphasizing communication and support. The discussion also touches on the challenges posed by the US healthcare system, particularly financial burdens and insurance issues. Carissa highlights lifestyle changes, such as diet and exercise, that have improved her well-being. Finally, she talks about her advocacy work on TikTok, sharing her condition with a broader community and offering advice to young people with similar experiences. Want to meet others with arthritis? Sign up for this month's call here: https://us02web.zoom.us/meeting/register/tZIofuihqTsiH9A_2WDfwZEu6BRh_CSJgMx9#/registration Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.linkedin.com/company/take-a-pain-check/ X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Carissa's socials Instagram: @_cawitha TikTok: @cawithaaa Growing Pains, Copyright, 2018, Alessia Cara #contentcreator #jointpain #spoonie #rheumatoidarthritis #chronicillness Lire la vidéo Lire la vidéo 48:50 Episode 75 - Rx for Success: Why Patient Partners Matter Join us on this week's episode on Take a Pain Check as Dawn Richards, diagnosed with rheumatoid arthritis, shares her incredible journey from diagnosis to clinical remission. She opens up about changing rheumatologists, managing methotrexate side effects, and the transformative impact of exercise. She discusses her life both as a researcher and being patient partner in research. Finally, she discusses her involvement with the Canadian Arthritis Network, CIHR IMHA and the Canadian Arthritis Patient Alliance. Be sure to like, subscribe and share this episode! https://arthritispatient.ca/tips-and-tricks-when-taking-methotrexate/ https://cihr-irsc.gc.ca/e/27297.html Dawn's socials: Twitter - @TO_dpr Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #patientcare #chronicpain #healthjourney #research Lire la vidéo Lire la vidéo 40:33 Episode 69 - The Good Days and the Bad Days On this week's episode of Take a Pain Check with your host Natasha, we delve into the world of Nikki Bhatti. Nikki bravely shares her personal journey living with rheumatoid arthritis - from the first instances of joint pain in her fingers and toes, to the evolution of her medication journey with her current medication called Actemra. Listen in as she discusses the social implications of managing arthritis, and dives deep into what it is like being a South Asian woman managing cultural expectations while grappling with her own health. Natasha and Nikki dive into the discussion on lifestyle changes. Nikki discusses her experience with gym visits and swimming, along with the adaptations she's had to make to her work schedule due to morning stiffness and flare-ups. Hear about her experiences with arthritic nodule surgery and how she navigates disability within the workplace. Lastly, Nikki highlights her significant contributions to arthritis research as a part of the APAB board at Arthritis Research Canada, including the creation of an educational video. Natasha and Nikki end off the episode by discussing how they met each other! Resources mentioned in the episode: https://youtu.be/ll0avFOq210 Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Nikki's socials: Instagram: strengthwithra Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #chronicillness #workout #southasian #vancouver Lire la vidéo Lire la vidéo 39:17 Episode 67 - The RA-lity of Lupus In honour of Canadian Mental Health Week and Lupus Awareness Month, tune in to this week’s episode as Krissy Stephenson, a successful business owner and chronic illness warrior, shares her journey of living with Rheumatoid Arthritis (RA) and Lupus. Krissy discusses the challenges of finding a good rheumatologist who understands the complexities of her conditions, her medication journey, and her experience with pregnancy and RA. Krissy also introduces us to the Spoon Theory, a powerful metaphor used by those with chronic illness to explain their limited energy each day. She talks about how she allocates responsibilities as a mother and entrepreneur and discusses her mental health journey with a therapist who also has Lupus. Join us as we explore Krissy’s inspiring story of perseverance, hope, and resilience, including her experience as a kindergarten teacher and her successful Direct Superior Hip Replacement surgery that changed her life. Don’t miss this week’s episode of Take a Pain Check. Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Krissy's socials: Instagram: @chronicallyillkrissy Growing Pains, Copyright, 2018, Alessia Cara #lupus #RA #chronicillness #EDS #therapy #spoontheory Lire la vidéo Lire la vidéo 37:53 Episode 56 - If You Don’t Use It, You’ll Lose It On this week’s episode, Christina Hepner talks about her symptoms that started when she was 19 in her sophomore year. Christina relates that she tried to hide her pain in university just to live a normal college life and used humour to cope with it for 1 whole year. However, after she returned from her summer break, she no longer could hide her disease from her friends who spoke about how much fun they had in the summer. Christina started bawling her eyes out and told her friends that she spent her time in so much pain and disclosed her arthritis diagnosis. She was lucky to have a great support system which helped her mental health. Christina discusses how her arthritis made her feel like she wasn’t herself most of the time. She gained weight, had knee surgery and dealt with depression. She mentions how she worked through those hurdles with physiotherapy, changing her mindset and implementing lifestyle changes such as weightlifting and eliminating certain inflammatory foods that she researched. Finally, the episode ends with Christina talking about her job in a non-profit organization for the visually impaired as a digital marketer and her current disease status being in remission. Check out Christina's socials: https://www.facebook.com/ChristinaHepnerMedia https://www.instagram.com/christina_hepner/ https://twitter.com/ChristinaHepner Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #advocate #nonprofit #marketing #weightlifting Lire la vidéo Lire la vidéo 48:39 Episode 55 - Break A Leg As a baby, she started off crawling then walking. After, she reverted back into crawling. On this week's episode, we invite Alexa Sutherland, an actress and writer from Los Angeles. She talks about her 4 chronic condition, including Ankylosing Spondylitis, Rheumatoid Arthritis, Fibromyalgia and Graves Disease. She starts off the episode by explaining the joints impacted for each condition and how she differentiates the pain for each of them. Alexa describes the struggles she endured at each point in her life with every added diagnosis, specifically the social and emotional aspects. In particular, she talks about the switch to home schooling due to the inability of her school faculty to accommodate. Ultimately, she decided to become her own boss and thrive in an environment that was meant for her. As the conversation continues, Alexa shares her experience with online college and discusses how online school helped her further explore her passions. She dives into her experiences with injection days and how the auto injector was her ultimate life saver to becoming more confident in giving herself her injections. Additionally, Natasha asks Alexa about dating while living with a chronic illness which led to them talking about insecurities relating to being “too difficult” to be with. Lastly, they discuss Alexa’s acting gigs, specifically Deadly Cheer Moms and navigating accommodations. Next Joint Chat Rheum Session on Sunday, October 23 at 2pm EDT/11 am PDT: https://us02web.zoom.us/meeting/regis... Check out Alexa's socials: https://twitter.com/glowlexa https://www.instagram.com/glowlexa Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #actress #advocate #losangeles #acting #gravesdisease #fibromyalgia #ankylosingspondylitis Lire la vidéo Lire la vidéo 43:28 Episode 54 - My New Mentality On this week's episode on Take a Pain Check, Charlotte Ryder-Burbidge discuss her diagnosis of Rheumatoid Arthritis and Celiac Disease. She was diagnosed away from home during her studies. Luckily, she discusses how she had great housemates during that time that supported her. Natasha and Charlotte both discuss the differences in being with their parents when receiving a diagnosis vs not being with them. They both relate on the struggles of studying science while dealing with hand pain and inflammation. For Charlotte, that lead to her feeling the need to skip classes and not care about school for the longest time. On the other hand, she also developed other lifestyle changes such as going to the gym. As the conversation continues, they both discuss their experiences on triple therapy and the side effects they've experienced. Finally, the episode ends off with talking about Arthritis Research Canada's patient advisory board where Natasha and Charlotte first met. Next Joint Chat Rheum Session on Sunday, October 23 at 2pm EST/11 am PST: https://us02web.zoom.us/meeting/register/tZArcOmtpzsqHNSY5FVgIF1TetCQ_MZYbJhK Check out Charlotte's socials: Instagram: @charryder Arthritis Research Canada: https://www.arthritisresearch.ca/ Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #celiacfriendly #biology #advocate #research Lupus Lire la vidéo Lire la vidéo 44:47 Facing The Storm | Ep. 111 What happens when you’re diagnosed with the same illness you once watched a friend silently suffer through? In this powerful episode of the Take a Pain Check Podcast, Natasha sits down with Macenzie Rebelo, who shares how Lupus reshaped her life, relationships, and sense of self. From juggling university and dating to confronting stigma and learning to speak up, Macenzie reveals the unfiltered truth behind living with a chronic illness and how writing became her rebellion. Don’t miss this raw, honest, and unexpectedly empowering conversation. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Our socials: ⁠https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #lupus #writerscommunity #Rheumaticdisease #Advocacy #Chronicillness Lire la vidéo Lire la vidéo 44:38 Episode 97 - Golfcarting to school In this episode of Take a Pain Check; Sharan Singh shares her journey of living with multiple chronic illnesses, including Lupus, Rheumatoid Arthritis, Scleroderma, and others. Sharan delves into her diagnosis story, detailing the symptoms that led her to seek help, her experiences with Western and regenerative medicine, and the impact these treatments have had on her quality of life. She also opens up about the challenges of maintaining relationships, navigating academics, and undergoing a hip replacement, while emphasizing the importance of mental health and lifestyle changes in managing chronic illness. Additionally, Sharan discusses her path to becoming a physician assistant and her advocacy work on TikTok, where she shares her story to educate and support others in the chronic illness community. Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: / takeapaincheck_ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck?mx=2 Likedin: / take-a-pain-check Sharan's socials: Tik Tok - @sharan.s, Instagram - @ssharann_ Growing Pains, Copyright, 2018, Alessia Cara #lupus #physicianassistant #arthritis #scleroderma Lire la vidéo Lire la vidéo 37:46 Episode 93 - One Size Does Not Fit All This week’s podcast episode features Carissa Peck, who discusses her journey with mixed connective tissue disorder, encompassing lupus and rheumatoid arthritis (RA). The conversation begins with Carissa’s introduction and background, followed by her diagnosis story, including initial symptoms and their progression. Carissa shares her experiences with various treatments, from medications to other treatments. She describes managing flare-ups and the impact of her condition on relationships, emphasizing communication and support. The discussion also touches on the challenges posed by the US healthcare system, particularly financial burdens and insurance issues. Carissa highlights lifestyle changes, such as diet and exercise, that have improved her well-being. Finally, she talks about her advocacy work on TikTok, sharing her condition with a broader community and offering advice to young people with similar experiences. Want to meet others with arthritis? Sign up for this month's call here: https://us02web.zoom.us/meeting/register/tZIofuihqTsiH9A_2WDfwZEu6BRh_CSJgMx9#/registration Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.linkedin.com/company/take-a-pain-check/ X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Carissa's socials Instagram: @_cawitha TikTok: @cawithaaa Growing Pains, Copyright, 2018, Alessia Cara #contentcreator #jointpain #spoonie #rheumatoidarthritis #chronicillness Lire la vidéo Lire la vidéo 47:53 Episode 92 - Why me? In this episode of Take a Pain Check, Amanda Chay discusses her journey with lupus and Sjogren's, sharing the challenges of getting diagnosed, advocating for herself, and the emotional impact of learning about and accepting her chronic illnesses. She highlights the importance of a strong support system, effective doctor-patient relationships, and the role of medications. Amanda also talks about maintaining an active lifestyle, the significant impact of diet on her symptoms, and managing her mental health. She reflects on the unique experience of being both a lupus patient and a mother to a daughter with lupus, offering advice to others in similar situations. Additionally, she discusses her book, "The Girlfriend’s Guide to Lupus," and offers advice to those newly diagnosed with a chronic condition and to parents who, like her, have a child with the same illness. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check Amanda's socials Instagram: @amandaechay Growing Pains, Copyright, 2018, Alessia Cara #parent #jointpain #genetics #lupus #lupusawarenessmonth #lupuswarrior Lire la vidéo Lire la vidéo 44:22 Episode 91 - Riding the Chronic Illness Rollercoaster in the Dark In this episode of Take a Pain Check, host Natasha introduces Emily Wahl, who bravely shares her journey living with Juvenile Rheumatoid Arthritis (JRA), Sjogren’s syndrome, Lupus, Pulmonary Arterial Hypertension, and FSGS. Emily candidly discusses her diagnosis story, recounting childhood experiences with arthritis and the challenges of managing various medications. She reflects on how her health conditions influenced her career choices and relationships, especially during pregnancy. Emily advocates for patients like herself, emphasizing the importance of a supportive care team and sharing coping strategies for the emotional weight of new diagnoses. Additionally, she offers insights into navigating pregnancy with chronic illnesses and provides valuable advice for managing multiple conditions effectively. Join our peer support group here for this month's session in May: https://us02web.zoom.us/meeting/register/tZ0tdemsrj8oHtwosUn8w7ZcwHxdGYZPDEDv#/registration Emily's socials: @healmewholeheartedly www.healmewholeheartedly.com Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: ⁠https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check/?originalSubdomain=ca Growing Pains, Copyright, 2018, Alessia Cara #lupus #sjogrenssyndrome #chronicillness #chronicpain #arthritis Lire la vidéo Lire la vidéo 45:25 Episode 88 - The Story of Us (Lupus’ Version): How Taylor Swift Paid my Tuition In this week's episode of Take a Pain Check, we welcome Ayesha as our special guest, sharing her incredible journey of diagnosis, advocacy, and touching moments of kindness. Ayesha recounts her initial symptoms that led her to seek medical help, navigating a complex medication regimen, and the ups and downs of her health journey. She reflects on her determination during her undergraduate years, the challenges of planning a wedding while managing her health, and a difficult experience in the emergency room. Ayesha also shares her memorable experience attending Taylor Swift's Eras tour, even in a wheelchair. During the episode, Ayesha updates us on her current health status, medication routine, and mental well-being, offering hope and valuable insights to listeners. She shares Taylor Swift's response to her Tumblr post, and how she met her in person. The conversation shifts to Ayesha's TikTok journey, where she discusses how she creates 'Get Ready with Me' videos, and she discusses her experience living with lupus, highlighting moments of inspiration and the positive impact on her community. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠https://www.instagram.com/takeapaincheck_/ X: ⁠ https://twitter.com/takeapaincheck Tiktok: ⁠https://www.tiktok.com/@takeapainchec...⁠ Ayesha's socials: Tiktok: @ayeshaakhurram Instagram: @ayeshakhurram Growing Pains, Copyright, 2018, Alessia Cara #taylorswift #makeup #lupus #southasianwedding #getreadywithme Lire la vidéo Lire la vidéo 46:01 Episode 82 - Putting the Pain Puzzle Together to Find my Diagnosis In this episode of Take a Pain Check, Isabel Dukes opens up about her personal journey dealing with JIA, Lupus, Antiphospholipid Antibody Syndrome, ADHD, and Dyslexia. She shares candid reflections on navigating the challenges of high school, dating in university, and the significant transition to adult life, including moving in with her partner. The episode delves into her medication journey and the evolving accommodations she has navigated since her youth. Isabel discusses the critical role of her support system during high school and the unique hurdles encountered in transitioning from pediatric to adult care. As an industrial designer, she discusses her commitment to accessibility. Not only that, she talks about her experience at arthritis camp, the @ArthritisSociety Walk, volunteering with Take a Pain Check and her active participation in the Make Rheum for Youth project by TAPC and @CAPA-arthritispatient . The episode concludes with practical advice on advocacy, emphasizing the importance of self-advocacy and community engagement for those navigating health challenges. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Isabel's socials: Instagram: @isabel_dukes Linkedin: https://www.linkedin.com/in/isabel-dukes-bb5609200/ Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #lupus #arthritis #chronicillness #designer #relationship Lire la vidéo Lire la vidéo 39:17 Episode 67 - The RA-lity of Lupus In honour of Canadian Mental Health Week and Lupus Awareness Month, tune in to this week’s episode as Krissy Stephenson, a successful business owner and chronic illness warrior, shares her journey of living with Rheumatoid Arthritis (RA) and Lupus. Krissy discusses the challenges of finding a good rheumatologist who understands the complexities of her conditions, her medication journey, and her experience with pregnancy and RA. Krissy also introduces us to the Spoon Theory, a powerful metaphor used by those with chronic illness to explain their limited energy each day. She talks about how she allocates responsibilities as a mother and entrepreneur and discusses her mental health journey with a therapist who also has Lupus. Join us as we explore Krissy’s inspiring story of perseverance, hope, and resilience, including her experience as a kindergarten teacher and her successful Direct Superior Hip Replacement surgery that changed her life. Don’t miss this week’s episode of Take a Pain Check. Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Krissy's socials: Instagram: @chronicallyillkrissy Growing Pains, Copyright, 2018, Alessia Cara #lupus #RA #chronicillness #EDS #therapy #spoontheory Sjogrens Lire la vidéo Lire la vidéo 47:53 Episode 92 - Why me? In this episode of Take a Pain Check, Amanda Chay discusses her journey with lupus and Sjogren's, sharing the challenges of getting diagnosed, advocating for herself, and the emotional impact of learning about and accepting her chronic illnesses. She highlights the importance of a strong support system, effective doctor-patient relationships, and the role of medications. Amanda also talks about maintaining an active lifestyle, the significant impact of diet on her symptoms, and managing her mental health. She reflects on the unique experience of being both a lupus patient and a mother to a daughter with lupus, offering advice to others in similar situations. Additionally, she discusses her book, "The Girlfriend’s Guide to Lupus," and offers advice to those newly diagnosed with a chronic condition and to parents who, like her, have a child with the same illness. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check Amanda's socials Instagram: @amandaechay Growing Pains, Copyright, 2018, Alessia Cara #parent #jointpain #genetics #lupus #lupusawarenessmonth #lupuswarrior Lire la vidéo Lire la vidéo 44:22 Episode 91 - Riding the Chronic Illness Rollercoaster in the Dark In this episode of Take a Pain Check, host Natasha introduces Emily Wahl, who bravely shares her journey living with Juvenile Rheumatoid Arthritis (JRA), Sjogren’s syndrome, Lupus, Pulmonary Arterial Hypertension, and FSGS. Emily candidly discusses her diagnosis story, recounting childhood experiences with arthritis and the challenges of managing various medications. She reflects on how her health conditions influenced her career choices and relationships, especially during pregnancy. Emily advocates for patients like herself, emphasizing the importance of a supportive care team and sharing coping strategies for the emotional weight of new diagnoses. Additionally, she offers insights into navigating pregnancy with chronic illnesses and provides valuable advice for managing multiple conditions effectively. Join our peer support group here for this month's session in May: https://us02web.zoom.us/meeting/register/tZ0tdemsrj8oHtwosUn8w7ZcwHxdGYZPDEDv#/registration Emily's socials: @healmewholeheartedly www.healmewholeheartedly.com Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: ⁠https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check/?originalSubdomain=ca Growing Pains, Copyright, 2018, Alessia Cara #lupus #sjogrenssyndrome #chronicillness #chronicpain #arthritis Lire la vidéo Lire la vidéo 41:37 Episode 66 - Resilience Strikes a Chord: A 13 Year Old’s Story Join host Natasha on this week's heartwarming episode of Take a Pain Check, as she sits down with Isabella, a remarkable 13-year-old girl who shares her inspiring journey with Lupus, Juvenile Idiopathic Arthritis, and Sjogren’s. Isabella's story began during the pandemic, when she experienced excruciating pain in her elbows at the tender age of 9. Initially hesitant to see a doctor, she attributed the pain to her extracurricular activities. However, after her hands turned purple due to Raynaud's, she finally sought medical help. In this episode, Natasha and Isabella discuss the challenges faced by vulnerable patients and their families during the diagnosis process. Isabella shares how she was dismissed in the clinical setting, but her resilience and determination led her to make the necessary lifestyle changes. She talks about how she embarked on a medication journey which had its ups and down. She also discusses her journey with using mobility aids from a young age. Despite the obstacles, Isabella's unwavering spirit shines through, as she adapted to homeschooling with her sister and found support from her family and close friends. Isabella also shares how she used music and humor to cope with her pain, despite the challenges with her hands when she played piano. Her advocacy journey and involvement with the Arthritis Society, including attending their yearly camp and kids' programs, are also discussed. Isabella's story of hope and perseverance will inspire you to live life to the fullest, even in the face of adversity. So, don't miss this episode of Take a Pain Check, and join Isabella on her journey towards living her best life! Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #lupus #sjogrens #kidsgetarthritis #homeschooling #piano #surgery Lire la vidéo Lire la vidéo 41:05 Episode 19 - Chronic Genie We got the pleasure to interview Ingrid He this week on Take a Pain Check. We cover an abundance of interesting topics such as the struggle to obtain a diagnosis of Sjogren's Syndrome and this rheumatic disease once thought as a mental illness from several doctors. Throughout this episode, we learn about advocacy. Join us as we learn about the app Ingrid created to help herself and others suffering from Sjogren’s and other chronic illnesses! Check out Ingrid's Social Media: Instagram: https://www.instagram.com/sjogrenstracker/ Facebook: https://www.facebook.com/SjogrensTracker Website: https://www.takeapaincheck.ca/ Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck... Tiktok: https://www.tiktok.com/@takeapainchec... Growing Pains, Copyright, 2018, Alessia Cara #apps #technology #health #sjogren's #disease Lire la vidéo Lire la vidéo 36:02 Episode 32 - The Apple That Couldn’t Have Fallen Closer To The Tree Kristen joins Take a Pain Check this week for a conversation about the impact of therapy and behaviour. Kristen was lucky with her diagnosis, Rheumatoid Arthritis and Sjogren's, surprising right? The discussion leads into the topic of friends and family support and jumps right into answering the big question of "how do we as a patient make the right decision for our medications?". Well you might be able to figure that out, if you stay tuned until the end of the episode! Check out Kristen's social media channels: @WarriorsMoveMountains & @ConnectBehavioralCoaching Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psychology #behaviour #sjogrens #rheumatoidarthritis #awareness #support #coaching #therapy Ankylosing Spondylitis Lire la vidéo Lire la vidéo 51:57 Let's Get Loud for AS | Ep. 115 At 28, Michael Santillo was diagnosed with Ankylosing Spondylitis after years of unexplained pain that made even simple tasks like putting on socks or driving which became nearly impossible. Instead of letting it define him, he turned his journey into an inspiring mission: founding the annual “Let’s Get Loud for AS” gala. In this episode of Take a Pain Check, we talk about: - His road to diagnosis and the symptoms he faced - The mental and physical health challenges that followed - How AS impacted his relationships and love life - The creation and growth of “Let’s Get Loud for AS” Whether you’re living with AS, supporting someone who is, or just looking for inspiration, Michael’s story is a reminder that even in life’s toughest moments, there’s room to create change. Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Guest socials: Instagram: mmichael.ss and letsgetloudforas #podcast #ankylosingspondylitis #interview #autoimmunediseases #chronicillness Lire la vidéo Lire la vidéo 40:51 Too Real: Reacting To Fibro and the New Me | Ep. 113 In this episode of Take a Pain Check, Maggie Douglas opens up about her complex journey living with Juvenile Idiopathic Arthritis, Ankylosing Spondylitis, Fibromyalgia, and PCOS. She walks us through the physical and emotional challenges of early symptoms, delayed diagnosis, and navigating the transition from pediatric to adult rheumatology care. This week also features something a little different: a conversation about the short film Fibro and the New Me. Maggie shares her reactions to the portrayal of fibromyalgia on screen, reflects on the importance of accurate representation, and unpacks how media can both validate and educate. From support systems to self-discovery, this episode is a candid exploration of resilience, identity, and what it really means to find yourself in the midst of chronic illness. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. Maggie's socials: IG - mdouglas0423, FB/Linkedin - Maggie Douglas Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #ankylosingspondylitis #Fibromyalgia #Fibromyalgiaawareness #Rheumaticdisease #Rheumaticdiseaseawareness #Advocacy #Chronicillness #Chronicillnessawareness #healthpodcast Lire la vidéo Lire la vidéo 45:00 Episode 87 - Empowering Every Body: Accessible Fitness with Alex Levine Fitness LLC In this episode of Take a Pain Check podcast, we delve into the life of Alexander Levine, unpacking his journey with Ankylosing Spondylitis (AS) from diagnosis to shoulder surgery and beyond. Alex shares the story of his diagnosis, detailing life before AS and the challenges he faced in his career, particularly in the health and fitness industry. We explore the knowledge gap between fitness and AS, how his perspective on fitness shifted post-diagnosis, and the impact of physical therapy on his symptoms. Alex also opens up about his shoulder surgery, discussing the pain and recovery process. He sheds light on how friendships and relationships evolved, the support he received from loved ones, and the pivotal role of the chronic illness community. He also talks about managing a family and newborn with a diagnosis. As a fitness enthusiast and owner of a virtual personal training business, Alex shares insights into his unique training style tailored for those with AS, addressing the mental blocks and challenges that come with chronic illness. The episode wraps up with valuable advice from Alex on getting started in the fitness industry with a chronic condition and changing mindsets for youth already interested in fitness. Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month:https://us02web.zoom.us/meeting/register/tZMrduGuqj0uHdDgcBicDuG0TBjtvcnGwGkI#/registration Join our campaign at a landmark near you for World Young Rheumatic Disease Day: https://www.takeapaincheck.com/light-it-blue Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapaincheck_/ X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Alex's socials: Youtube: @AlexLevineFitness Instagram: @alexlevinefitness Tiktok: @alexlevinefitness Growing Pains, Copyright, 2018, Alessia Cara #ankylosingspondylitis #fitness #personaltrainer #health Lire la vidéo Lire la vidéo 57:32 Episode 71 - Sculpting a New Path from the Youth System: Rural Roots to Artistic Discovery In this week's episode of Take a Pain Check, prepare to be inspired as host Natasha welcomes the Sharona Franklin, an artist from Rural British Columbia. Sharona's story, despite grappling with multiple diagnoses, such as SJIA, AS, IBD, Pericarditis, and Vasculitis, transforms into a remarkable journey of unwavering resilience and strength. Natasha and Sharona dive deep into the profound impact of childhood struggles, the intricate complexities of the youth care system, the unique experiences of rural living, the challenges of dropping out of school, mental health battles, and navigating a unique family dynamic as one of eight siblings. Sharona fearlessly shares her early years, marked by the agonizing pain of being unable to eat. The conversation takes an intimate turn as Sharona vulnerably unveils the challenges she faced growing up within the youth care system, grappling with the involvement of social workers and lawyers in her life, and the far-reaching impact on both herself and her siblings. Despite these obstacles, Sharona discovered a wellspring of solace and empowerment through her passion for art. Natasha and Sharona embark on an exploration of the power of artistic expression, as Sharona recounts her early forays into creativity as a means to escape the confines of her circumstances. They delve into the judgments she faced due to perceptions surrounding having an assistant when doing art, and how she harnessed her lived experiences to create art that illuminates the unseen challenges of living with chronic illness. Lastly, Sharona ends off the episode raising awareness and fostering understanding, breaking down barriers and championing the voices of those facing similar struggles. Sharona's socials: Instagram: @hot.crip, @disabled_personals, @paid.technologies Articles to learn more about Sharona's journey: https://www.artbasel.com/stories/sharona-franklin-bioethics-disability-activism-statements-art-basel-2023?lang=en https://luttecollective.com/featured-artists/sharona-franklin Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ruralhealthcare #ankylosingspondylitis #arthritis #disabled #artistic #rheumatology Lire la vidéo Lire la vidéo 34:52 Episode 62: Journaling Through Ankylosing Spondylitis On this week’s episode, Chris Pudlak talks about his journey with Ankylosing Spondylitis. Diagnosed at age 36, Chris struggled to lift up his kids or even play with them because of his arthritis pain. Since day one, he started journaling in which he intertwined his engineering skills to track his symptoms. He discusses lifestyle changes he implemented and how he tracked his symptoms. Not only that, Natasha and Chris discuss workplace accommodations such as a height adjusting desks and a different type of handshake. Chris also gives tips on how to cycle and run with ergonomic equipment. He talks about the impact of physiotherapy on his arthritis. Lastly, Chris talks abut his book ” Achieving Wellness Through Arthritis” and his involvement in Arthritis Research Canada. Check our Chris' Socials: Twitter and Facebook: @ChrisPudlak Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ankylosingspondylitis #rheumaticdisease #advocate ##rheumatology #workout Lire la vidéo Lire la vidéo 48:05 Episode 50 - Embracing My Disability “Don’t say you're disabled” they said. These were comments Anna Samson received when they were using mobility aids to help them get through their daily tasks while living with a chronic illness. This week on Take a Pain Check, Anna Samson comes on the podcast to to talk about their life with Ankylosing Spondylitis and Fibromyalgia as a 23 year old. They start off the conversation by talking about their initial symptoms and explaining the 4 year wait to get a diagnosis. After receiving a diagnosis, Anna talks about their experience finding resources to help them understand their own conditions. Moreover, Natasha and Anna discuss the benefits of physiotherapy. The conversation progresses to talking about disability in different settings, specifically the blue and red seats on the TTC subway. Throughout Anna’s journey, they learned how to advocate for themselves in a health care setting and how they become more confident. Not only did they have to talk about their symptoms, but they had to “get better at talking to people.” Finally, Anna explains their involvement in Take a Pain Check as an ambassador, as well as their work in Health Union. Next Joint Chat Rheum Session on Tuesday, August 16th at 7pm EDT: https://us02web.zoom.us/meeting/register/tZUsc-CvqDMtEtdQYezlNi8gJhkW5roy5_TK Self-Advocacy Live: https://www.instagram.com/tv/Cb5sHwVIC8P/ Makeup Live: https://www.instagram.com/tv/CaQI5eBKKTG/ Health Union: https://www.instagram.com/healthunion/ Check out Anna's socials: Instagram @chronicallyillxo TikTok @chronicallyillxo Twitter: @chronicallyillx Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #mobility #disability #ankylosingspondylitis #fibromyalgia #rheumatology #chronicillness #advocate #physiotherapy Lire la vidéo Lire la vidéo 34:16 Episode 22 - Skateboarding into a Diagnosis Today, we have Spencer Hamilton talk about his story of being diagnosed in years, being a pro skateboarder and changing his lifestyle to one that suits his needs. Spencer talks about how he managed to remain a pro skateboarder even though his ankylosing spondylitis diagnosis took quite a while to diagnose. Check out his social media: @spencerhamilton Check out our website! Website: https://www.takeapaincheck.ca/ Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #skateboarding #diagnosis #journey #spencerhamilton Lire la vidéo Lire la vidéo 41:00 Episode 8 - Twin Telepathy Have you ever met twins with the same chronic disease? This week we have Makayla and Carly Fox come on our podcast to talk about Ankylosing spondylitis, Make a Wish Foundation, moving out and living their lives with JIA. Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Makayla and Carly! Carly's Tiktok: https://vm.tiktok.com/ZMe9mpueD/ Makayla's Instagram: https://www.instagram.com/makaylakfox/ Carly's Instagram: https://www.instagram.com/itscarlyfox/ Carly's LinkedIn: https://www.linkedin.com/in/carlysteelefox You can also stream us on Spotify, Apple and Google Podcasts: https://anchor.fm/takeapaincheck Make a Wish: https://makeawish.ca/ Life spin: https://www.lifespin.org/ Carly on Make a Wish the article: https://lfpress.com/news/local-news/lifespin-blown-away-by-generosity-of-young-woman-who-forsakes-make-a-wish-cruise-to-give-to-poor Download the iCanCope app: https://apps.apple.com/us/app/icancope-with-pain/id1345697088?app=itunes&ign-mpt=uo%3D4 Read about how the app impacted Natasha here: https://arthritis.ca/about-us/what-we-do/research/research-impact-snapshots-en/can-an-app-help-teens-manage-arthritis-pain Growing Pains, Copyright, 2018, Alessia Cara Scleroderma Lire la vidéo Lire la vidéo 34:28 Episode 36 - Feeling Numb In The Freezer Section On this week’s episode, Natasha and Katie converse about what it’s like to live with Scleroderma and Raynaud's. Her diagnosis story went from rheumatologists thinking she was making up her symptoms, to Katie now being under remission. Katie is also a registered nurse who is passionate women’s health. She believes that her story has helped her become a more understanding nurse to her patients. Additionally, the conversation covers Katie’s life as a high school student on a dance team, the psychological aspect of giving yourself a needle and discusses grip strength tips. Stay tuned for our exciting podcast game on our Instagram this week! Katie's socials: Instagram: @kspilkz Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #arthritis #nurse #Cleveland #sclerodermaawareness #scleroderma Psoriatic Arthritis Lire la vidéo Lire la vidéo 56:11 Living This Diagnosis Together | Ep.118 What happens when both a mother and daughter are diagnosed with psoriatic arthritis? In today’s episode, we sit down with USPORTS basketball athlete, advocate, and STEM Without Limits scholar, McKinley Penninga, and her mom Lisa Penninga, to talk about navigating life as a family living with the same chronic illness. Diagnosed years apart, McKinley and Lisa share: - how psoriatic arthritis shaped their mother-daughter bond - the early signs Lisa saw in McKinley based on her own lived experience - what it was like recognizing symptoms she personally knew all too well - how both supported each other through flare days, school challenges, and identity changes McKinley opens up about staying in basketball, balancing varsity-level training with chronic pain, and proving that invisible illness doesn’t define your athletic ability. Lisa shares the parent perspective while managing her own health needs — something rarely talked about in chronic illness stories. Together, they discuss advocacy, youth voice in healthcare, the STEM Without Limits Scholarship, and how their shared experiences are shaping the healthcare provider McKinley hopes to become. Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. #athlete #psoriaticarthritis #rheumaticdiseases #health #family Lire la vidéo Lire la vidéo 43:21 Episode 83 - Finding Purpose Beyond the Pain On this week’s episode on Take a Pain Check, Kyle Brooks talks about his diagnosis journey and about navigating the challenges of JIA and psoriasis. From physio to a two-year wait for answers, Kyle shares his daily battles with symptoms and medications. We delve into the social aspect, addressing bullying, handling negative comments, and finding resilience. Kyle opens up about school life, securing accommodations, and fostering a positive relationship with his general practitioner. Not only that, this episode talks about contrasts in healthcare systems between England and Canada. Finally, we discuss Kyle’s involvement in awareness initiatives, from live streams to TikTok, and his passion for the arts which adds a unique perspective. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Kyle's socials: Instagram: @kyle_b.idk TikTok: @teen.with.arthritis Youtube: @ChefJisoo Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psoriasis #arthritis #chronicillness #chronicpain #england Lire la vidéo Lire la vidéo 41:27 Episode 80 - More Than DNA: Psoriatic Arthritis Changed the Dynamic Between My Siblings and Me Join us on this week’s episode of Take a Pain Check as Brookie Zarb shares her journey with Psoriatic Arthritis (PsA). From the initial symptoms to facing healthcare practitioners, Brookie discusses her diagnosis, medication experiences, and their impact on her life. She explores how PsA influenced her high school years, friendships, and extracurricular activities. She dives into the dynamics of her family, navigating the emotional rollercoaster of sibling diagnoses. Brookie discusses the Australian healthcare system, her creative coping mechanisms during flares, and her role as a Take a Pain Check ambassador. Hear her valuable advice for those dealing with rheumatic diseases in high school and those hesitant about getting involved with organizations. Like and subscribe! Resources: https://msk.org.au/ Brookie's socials: Instagram: @brookie.zarbarooni Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psoriaticarthritis #chronicillness #juvenilearthritis #australia #arthritis #rheumatology Lire la vidéo Lire la vidéo 37:20 Episode 61 - Alli The Arthritis Advocate Alli Buchanan joins host, Natasha, on this week’s episode on Take a Pain Check to discuss her diagnosis with Psoriatic Arthritis (PsA). Alli’s starts by talking about her diagnosis journey and how it took her 10 years to get diagnosed. Physicians were aware of Alli’s family history with PsA but did not take that into account when her symptoms progressed. Because of Alli’s mom’s experience with PsA, Alli discusses how her mom was her biggest advocate as she spent a lot of time reliving her own journey. The conversation dives into the importance of talking about arthritis and its lack of representation in the science curriculum. Not only that, Alli talks about the medications she went on and how this led her to develop Toxic Shock Syndrome. She discusses that a medication that may work today, but it may not work tomorrow. She talks about her accommodations ,such as having transportation and picking her university courses before other people. Additionally, Alli mentions how she balances her social life, academics and arthritis while going to college and how her friends have been able to support her. Finally, they end off the episode by talking about Alli’s arthritis Instagram page and a recent quiz she made to see how much her friends knew about her arthritis. Quiz on Alli's friends: https://www.instagram.com/reel/CljWiTljOeV/?igshid=YmMyMTA2M2Y= Check our Alli's Socials: Instagram: @alli.arthritis Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psoriaticarthritis #psoriasis #advocate #newyork #rheumatology Systemic Juvenile Idiopathic Arthritis Lire la vidéo Lire la vidéo 50:54 From Hospital Bed to Barbell | Ep. 117 He could barely move at 15 and now he’s redefining strength. When doctors told Zac Spinosa he might never train again, he refused to accept it. Diagnosed with Systemic Juvenile Idiopathic Arthritis and Macrophage Activation Syndrome, he refused to let that be the end of his story. Instead, he built Forge Fitness, a community where disability doesn’t mean limitation and pain becomes power. In this episode of Take a Pain Check, Zac opens up about hitting rock bottom and choosing to fight back, building a gym that truly includes people with chronic illness, the mindset shift that changed everything, and what strength really means when your body is working against you. If you’ve ever been told you can’t, this episode will make you believe you can. Watch now, get inspired, and rethink what strength looks like. Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... Don't forget to like, comment, and subscribe for more episodes. Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Zac's socials: @ZacTheArthritisCoach #fitness #gymmotivation #chronicillness #fitnessgoals #arthritis Lire la vidéo Lire la vidéo 57:32 Episode 71 - Sculpting a New Path from the Youth System: Rural Roots to Artistic Discovery In this week's episode of Take a Pain Check, prepare to be inspired as host Natasha welcomes the Sharona Franklin, an artist from Rural British Columbia. Sharona's story, despite grappling with multiple diagnoses, such as SJIA, AS, IBD, Pericarditis, and Vasculitis, transforms into a remarkable journey of unwavering resilience and strength. Natasha and Sharona dive deep into the profound impact of childhood struggles, the intricate complexities of the youth care system, the unique experiences of rural living, the challenges of dropping out of school, mental health battles, and navigating a unique family dynamic as one of eight siblings. Sharona fearlessly shares her early years, marked by the agonizing pain of being unable to eat. The conversation takes an intimate turn as Sharona vulnerably unveils the challenges she faced growing up within the youth care system, grappling with the involvement of social workers and lawyers in her life, and the far-reaching impact on both herself and her siblings. Despite these obstacles, Sharona discovered a wellspring of solace and empowerment through her passion for art. Natasha and Sharona embark on an exploration of the power of artistic expression, as Sharona recounts her early forays into creativity as a means to escape the confines of her circumstances. They delve into the judgments she faced due to perceptions surrounding having an assistant when doing art, and how she harnessed her lived experiences to create art that illuminates the unseen challenges of living with chronic illness. Lastly, Sharona ends off the episode raising awareness and fostering understanding, breaking down barriers and championing the voices of those facing similar struggles. Sharona's socials: Instagram: @hot.crip, @disabled_personals, @paid.technologies Articles to learn more about Sharona's journey: https://www.artbasel.com/stories/sharona-franklin-bioethics-disability-activism-statements-art-basel-2023?lang=en https://luttecollective.com/featured-artists/sharona-franklin Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ruralhealthcare #ankylosingspondylitis #arthritis #disabled #artistic #rheumatology Ehlers-Danlos Syndrome Lire la vidéo Lire la vidéo 46:57 2024 STEM Without Limits Scholar | Ep. 101 In this week’s episode of Take a Pain Check, Kate Bourne shares her powerful journey with Ehlers-Danlos Syndrome (EDS), discussing the 12-year delay in her diagnosis and the profound impact it had on her confidence, mobility, and academic life. Kate reflects on the emotional toll of not having answers for so long, navigating school and daily life with unexplained symptoms. She also highlights her passion for research, focusing on anesthetic resistance in EDS patients and the relationship between EDS and POTS, with the goal of improving healthcare practices for those affected by these conditions. As a 2024 recipient of the STEM Without Limits scholarship, Kate shares how she plans to use the funds to further her academic and research endeavors, offering advice to young adults about finding their career paths. Apply to our scholarship today: https://www.takeapaincheck.com/scholarship Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://www.instagram.com/takeapaincheck_/ Likedin: https://www.linkedin.com/company/take-a-pain-check/ Kate's socials: Instagram and X: @katebournebsc Growing Pains, Copyright, 2018, Alessia Cara #pots #arthritis #md #medicine #researcher Lire la vidéo Lire la vidéo 46:43 Episode 63 - Dateability On this week’s episode on Take a Pain Check, Jacqueline and Alexa Child come on the podcast to talk about their own personal experience of living with a chronic illness and being a sister of someone who has a chronic illness, respectively. Jacqueline starts off by discussing her diagnosis journey with Ehlers-Danlos Syndrome and other chronic illnesses. She talks about bad joint and muscle pain, having a butterfly rash, experiencing sensitivity to the sun, and dealing with GI symptoms that led her to seek help from a medical professional. On the other hand, Alexa discusses how she was 3000 miles away for law school, and she started off not really understanding what Jacqueline was dealing with. But once she truly learned more about it, it changed her as a person and gave her a unique perspective. Growing up in Telluride, a ski resort, there were no hospitals nearby and no specialist nearby so Jacqueline discusses her access to care barriers. Alexa and Jacqueline discuss their lives’ living together and how they became more mature than others around them as they had different lived experiences. Jacqueline talks about the difficulties being honest with Alexa about her symptoms as it’s hard a challenge to ask for help. Moreover, Jacqueline talks about her heart surgery after being born with a congenital heart defect at age 25. They end off the episode by talking about Dateability, a dating app for the chronically ill and disabled. Dateability was made based on the lived experiences of Jacqueline’s dating life and constant rejections. They talk about how the app works, their future goals for the app and how they hope to connect this ever growing community. Dateability: https://info.dateabilityapp.com/ Jacqueline and Alexa's socials: @dateabilityapp @jacquelineechild @alexabchild Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ehlersdanlos #rheumatology #dating #datingapps #relationship #siblings Fibromyalgia Lire la vidéo Lire la vidéo 40:51 Too Real: Reacting To Fibro and the New Me | Ep. 113 In this episode of Take a Pain Check, Maggie Douglas opens up about her complex journey living with Juvenile Idiopathic Arthritis, Ankylosing Spondylitis, Fibromyalgia, and PCOS. She walks us through the physical and emotional challenges of early symptoms, delayed diagnosis, and navigating the transition from pediatric to adult rheumatology care. This week also features something a little different: a conversation about the short film Fibro and the New Me. Maggie shares her reactions to the portrayal of fibromyalgia on screen, reflects on the importance of accurate representation, and unpacks how media can both validate and educate. From support systems to self-discovery, this episode is a candid exploration of resilience, identity, and what it really means to find yourself in the midst of chronic illness. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. Maggie's socials: IG - mdouglas0423, FB/Linkedin - Maggie Douglas Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #ankylosingspondylitis #Fibromyalgia #Fibromyalgiaawareness #Rheumaticdisease #Rheumaticdiseaseawareness #Advocacy #Chronicillness #Chronicillnessawareness #healthpodcast Lire la vidéo Lire la vidéo 46:28 Episode 65 - Beyond the White Coat: Empowerment in Patient Partnerships In this week's episode of Take a Pain Check, Natasha welcomes Cassidy Bradley, a medical student at Dalhousie University, who bravely shares her journey with Fibromyalgia and POTS. Cassidy's story starts with her symptoms emerging during her time as a national-level speed skater, eventually leading to hip surgery. She discusses her mental health struggles and the benefits of therapy in coping with chronic illness, as well as accepting her disability and navigating accommodations in medical school. Cassidy opens up about the challenges she has faced with hip surgery, physiotherapy, and managing fibromyalgia and POTS, including temperature sensitivity and allodynia. She shares the adjustments she has made, such as using a heated blanket and wearing braces. Additionally, she highlights her advocacy work as a patient partner in research, advocating for the patient voice and aligning research with patient needs and values, along with Natasha who shares her own patient partner experience. Cassidy also shares her positive experiences at Brigadoon Village, a camp for children with chronic illnesses, where she found support from counselors and fellow campers. Don't miss this insightful episode as Cassidy Bradley shares her inspiring journey on Take a Pain Check! Cassidy's socials: Twitter and Instagram: @Cassidybradley_ Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #fibromyalgia #medicalstudent #dalhousie #speedskater #rheumatology #pots Myositis Lire la vidéo Lire la vidéo 45:51 Episode 99 - Redefining Strength with Polymyositis In this episode of Take a Pain Check, we sit down with Shanesha Scott, who shares her inspiring journey with polymyositis. Shanesha opens up about her diagnosis, treatment challenges, and how she navigates the emotional and physical changes brought on by her condition. We discuss her work as an industrial and organizational psychologist and the impact of workplace dynamics on employee morale and success. Shanesha also talks about her two books, When I Got Sick – A Story of Tragedy & Triumph and Birthing the Leader Within You, offering advice on balancing health, career, and personal growth. Don’t miss this empowering conversation! Join our joint chat rheum: https://us02web.zoom.us/meeting/register/tZMof-mrqjkqEt22sWtGUDMIjLuRKXAjFWjY Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Shanesha's socials: Instagram: Shanesha__ TikTok: Beauty4RMAshes Facebook: Shanesha & Beauty 4RM Ashes Growing Pains, Copyright, 2018, Alessia Cara #autoimmuneawareness #Polymyositis #chronicillness #workplacewellness #leadership

Programme de bourses d'études « Prenez un contrôle de la douleur » Programme de bourses d'études Take a Pain Check Vous cherchez un modèle ? Nos anciens boursiers Thank you to everyone interested in our scholarship program. This page is dedicated to the past recipients who we are honoured to support throughout their academic journeys. To view information on upcoming scholarship opportunities, visit our scholarship page using the button below. Merci à tous ceux qui s'intéressent à notre programme de bourses. Cette page est dédiée aux anciens lauréats que nous avons l'honneur de soutenir tout au long de leur parcours universitaire. Pour consulter les informations sur les prochaines bourses, consultez notre page Bourses en cliquant sur le bouton ci-dessous. View Scholarship information here // Consultez les informations sur les bourses ici Lauréats 2025 Félicitations à nos lauréates, McKinley et Mya ! Nous sommes impatients de voir où votre parcours éducatif vous mènera. Félicitations à nos récipiendaires, McKinley et Mya! Nous sommes impatients de voir où votre parcours scolaire vous mènera. 2025 STEM Without Limits Recipient Lauréat du STEM Sans Limites 2025 2025 Learn Without Limits Recipient Lauréat du Apprendre Sans Limites 2025 Baccalauréat en kinésiologie L'Université de l'Alberta Arthrite Psoriasique, Syndrome d'Activation Mastocytaire (MCAS), et Dysautonomie McKinley Penninga « Être bénéficiaire de la bourse Take a Pain Check me permet d'avoir une base financière plus solide et de la possibilité de terminer avec succès mon diplôme en kinésiologie. Cette bourse me permet également de mieux alimenter mon corps, de manger de manière optimale pour mes performances et de rester en aussi bonne santé que possible tout en me concentrant sur la réalisation de mon potentiel scolaire. Je souffre de nombreuses allergies et intolérances alimentaires et je dois donc suivre un régime strictement sans gluten et sans produits laitiers, ce qui entraîne des dépenses alimentaires plus élevées. »* *Traduit par l'équipe TAPC Baccalauréat d'Arts en Psychologie et Développement International, avec une Mineure en Commerce L'Université Dalhousie Arthrite Juvénile Idiopathique (JIA) Mya Barnett « À Dalhousie, je suis co-présidente du campus pour les NGO Global Brigades, et je suis présidente et fondatrice de la section Dalhousie de la Global Brigades Legal Empowerment Brigade. Il s'agit d'un groupe d'étudiants partageant les mêmes idées qui voyagent chaque année comme brigade pour servir des communautés à l'étranger par le biais de l'éducation juridique, de l'aide juridique et de l'autonomisation des communautés. » « Je prévois d'utiliser cette bourse pour payer une partie de mes frais de scolarité pour le semestre à venir. Je prévois également d'utiliser une partie de la bourse pour payer les frais d'inscription à mon prochain test d'admission à la faculté de droit. »* *Traduit par l'équipe TAPC McKinley Penninga Mya Barnett Thank you Organon ! We would like to thank Organon for their support of our 2025 Young Scholars Program. With the help of the Organon team, we will be able to continue this excellent program for future leaders of our community. Merci Organon! Nous tenons à remercier Organon pour son soutien à notre programme de jeunes savants 2025. Avec l'aide de l'équipe Organon, nous pourrons poursuivre cet excellent programme destiné aux futurs leaders de notre communauté. Lauréats 2024 Félicitations à nos lauréates, Kate et Maddi ! Nous sommes impatients de voir où votre parcours éducatif vous mènera. Félicitations à nos récipiendaires, Kate et Maddi! Nous sommes impatients de voir où votre parcours scolaire vous mènera. Combined MD and PhD in Leaders in Medicine University of Calgary Ehlers-Danlos syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS) diagnosis Kate Bourne "Being a recipient of the inaugural STEM Without Limits Scholarship from the Take a Pain Check Foundation is a great honour. This award will provide valuable financial support as I embark on my medical school journey this summer and work towards my career goal of becoming a clinician-scientist." Bachelor of Health Sciences University of Calgary Lupus diagnosis Maddi Tory "For someone with Lupus, the STEM without limits scholarship allows me to focus my energy on my studies, my research and volunteering especially during a flare, when holding an additional part time job would not be realistic. Further this scholarship will allow me to participate in national and international conferences on chronic pain and in the field of neuroscience which would otherwise be in accessible to me." Kate Bourne Maddi Tory 2024 Semi-Finalists Doctor of Medicine University of Alberta IgA Vasculitis diagnosis Jacob Dunn PhD in Clinical Psychology University of Ottawa Rheumatoid Arthritis (RA) diagnosis Dalainey Drakes Merci Pfizer ! Nous tenons à remercier Pfizer d’avoir rendu possible l’attribution des bourses d’études 2023-2024. Grâce à l’aide de l’équipe Pfizer, nous avons pu concrétiser cette opportunité de bourse. Merci Pfizer! Nous tenons à remercier Pfizer d'avoir rendu possible les bourses 2023-2024. Avec l'aide de l'équipe Pfizer, nous avons pu concrétiser cette opportunité de bourse. Intéressé à nous soutenir ? Envoyez-nous un e-mail : info@takeapaincheck.com Vous souhaitez nous soutenir ? Contactez-nous : info@takeapaincheck.com Avez-vous des questions? Envoyez-nous un e-mail : scholarships@takeapaincheck.com Vous avez des questions ? Contactez-nous : bourses@takeapaincheck.com Soyez informés de nos prochaines opportunités de bourses ! Suivez-nous sur Instagram, TikTok, X et Facebook ! Nos prochaines bourses seront annoncées en novembre 2024. Soyez informé de nos prochaines opportunités de bourses d'études! Suivez-nous sur Instagram, TikTok, X et Facebook ! Nos prochaines bourses seront annoncées en novembre 2024. Merci Organon ! Nous tenons à remercier Organon pour son soutien à notre programme Jeunes chercheurs 2025. Avec l’aide de l’équipe d’Organon, nous pourrons poursuivre cet excellent programme pour les futurs dirigeants de notre communauté. Merci Organon! Nous tenons à remercier Organon pour son soutien à notre programme de jeunes savants 2025. Avec l'aide de l'équipe Organon, nous pourrons poursuivre cet excellent programme destiné aux futurs leaders de notre communauté.

Rejoignez notre Discord Rejoindre! Rejoignez le serveur Discord TakeAPainCheck, un espace sûr pour les membres de la communauté des maladies chroniques (et leurs alliés !) pour partager leurs parcours et se faire de nouveaux amis ! Rejoignez-nous maintenant pour participer à des concours, découvrir les opportunités offertes aux patients, jouer à des jeux ou simplement discuter dans un espace sûr. Pour accéder à tout cela, appuyez simplement sur Rejoindre ci-dessus, lisez nos règles trouvées sur le serveur et commencez à discuter !