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Rejoignez notre équipe Chez Take a Pain Check, nous sommes constamment en cherche de bénévoles. Nous proposons de nombreux postes intéressants, dont certains rémunérés. Nous recherchons des personnes passionnées, désireuses d'apprendre de nouvelles choses ou simplement en quête d'expérience. Take a Pain Check offre un environnement inclusif où chacun est le bienvenu. Consultez nos opportunités ci-dessous, et si vous ne trouvez rien qui corresponde à ce que vous recherchez, veuillez nous contacter à info@takeapaincheck.com et nous serons heureux d'explorer d'autres options avec vous. Chez Take a Pain Check, nous sommes constamment en cherche de bénévoles. Nous proposons de nombreux postes intéressants, dont certains rémunérés. Nous recherchons des personnes passionnées, désireuses d'apprendre de nouvelles choses ou simplement en quête d'expérience. Take a Pain Check offre un environnement inclusif où chacun est le bienvenu. Consultez nos opportunités ci-dessous, et si vous ne trouvez rien qui corresponde à ce que vous recherchez, veuillez nous contacter à info@takeapaincheck.com et nous serons heureux d'explorer d'autres options avec vous. Vous vivez avec une maladie rhumatismale et souhaitez mettre à profit votre expérience pour défendre la cause des personnes atteintes? Découvrez nos programmes destinés aux jeunes et aux jeunes adultes qui visent à sensibiliser le public et à collaborer à des projets uniques! Comité consultatif sur l'expérience vécue par les jeunes Programme d'ambassadeurs pour les jeunes et les jeunes adultes Vous êtes un professionnel de la santé et souhaitez apporter votre contribution? Découvrez notre programme d'ambassadeurs! En plus d'acquérir des compétences, c'est l'occasion d'obtenir des ressources, de partager des recherches et d'apprendre en tant que communauté! Programme d'ambassadeurs des professionnels de la santé Postes vacantes *Tous les postes sont à distance.* Postulez à l'un des postes via le formulaire Google ci-dessous : Postulez ici Coordinateur des Finances Bénévole | À temps partiel (~10 heures/semaine) ● Créer et tenir à jour un budget complet pour Take a Pain Check, en veillant à la bonne répartition des fonds entre les programmes et les activités. ● Anticiper les défis financiers et travailler avec l'équipe pour les relever de manière proactive. ● Rechercher des dons financiers et en nature auprès de diverses institutions afin de soutenir les initiatives de l'organisation. ● Gérer l'abonnement Patreon et explorer d'autres moyens de collecte de fonds avec l'équipe chargée de la collecte de fonds. ● Collaborer avec l'équipe chargée des subventions pour rédiger des demandes de subventions, en mettant en avant la mission et l'impact de l'organisation. ● Travailler avec les responsables et directeurs de programme pour préparer les budgets des demandes de subventions et fournir des rapports financiers sur les fonds accordés. ● Aider à accomplir les tâches administratives connexes. ● Fournir régulièrement des rapports financiers et des conseils au conseil d'administration. ● Collaborer pour anticiper et relever les défis ou risques financiers susceptibles d'avoir un impact sur la planification financière de l'organisation. ● Prévoir les recettes et les dépenses. Éditeur des Podcasts Bénévole | À temps partiel (~10 heures/semaine) ● Contacter les commissions scolaires et les services d'hébergement afin de promouvoir les ressources et les initiatives de Take a Pain Check. ● Établir des liens avec les écoles et les centres communautaires locaux afin d'impliquer les membres de la communauté dans la mission de notre organisation. ● Contacter les hôpitaux, les cabinets médicaux et les organisations afin de promouvoir les services de Take a Pain Check et d'encourager la participation à nos programmes. ● Établir des partenariats et des collaborations avec les professionnels de la santé et les organisations communautaires concernés. ● Diriger la campagne « Light it Blue » et le programme de bourses d'études. ● Contacter les médias pour promouvoir les événements, les initiatives et les réussites de TAPC, afin d'attirer l'attention et d'accroître notre visibilité. ● Avec l'équipe chargée des subventions et des parrainages, solliciter des subventions et des parrainages afin d'obtenir des ressources supplémentaires pour nos programmes et événements. ● Rechercher et explorer les possibilités de conférences afin de présenter les initiatives et les recherches de TAPC dans le domaine de la gestion de la douleur chronique. ● Planifier et organiser des événements liés aux maladies rhumatismales, en ligne et en personne. ● Coordonner, planifier et promouvoir des concours, des campagnes et des événements pour améliorer l'accessibilité de notre communauté ● Concevoir et organiser les événements du TAPC, y compris les inscriptions, la logistique, les campagnes promotionnelles et l'évaluation post-événementielle. ● Collaborer avec les équipes chargées de la collecte de fonds et du parrainage afin d'obtenir un soutien pour les événements. ● Éditer les fichiers audio et vidéo pour les épisodes du podcast de TAPC. ● Garantir l'accessibilité grâce au sous-titrage. ● Optimiser la qualité sonore, appliquer l'identité visuelle et formater le contenu pour YouTube, Spotify et d'autres plateformes. Coordinateur des Parrainages et Subventions Bénévole | À temps partiel (~10 heures/semaine) ● Rechercher activement et postuler à toutes les subventions éligibles, en assumant la responsabilité de la rédaction des demandes, des soumissions et des processus de reporting. ● Veiller au respect des exigences en matière de reporting et soumettre des rapports d'avancement conformément aux directives du bailleur de fonds. ● Créer et développer une politique de parrainage qui définit les lignes directrices et les avantages pour les sponsors potentiels. ● Mettre à jour et améliorer les offres de parrainage afin de présenter efficacement les opportunités et les avantages du parrainage. ● Rechercher et identifier les sponsors potentiels et les opportunités de subventions qui correspondent à la mission et aux objectifs de l'organisation. ● Analyser les critères d'éligibilité et le processus de candidature pour chaque sponsor ou subvention potentiel. ● Cultiver et gérer les relations avec les sponsors et les bailleurs de fonds afin d'assurer un soutien continu à l'organisation. Cela comprend la communication régulière avec les sponsors, la fourniture de rapports d'avancement et l'expression de gratitude pour leur soutien. ● Développer et maintenir un programme de parrainage complet afin d'attirer des sponsors et des partenaires pour nos événements et initiatives. ● Superviser l'utilisation des fonds de subvention conformément aux exigences du bailleur de fonds. ● Planifier et organiser des événements de parrainage afin de promouvoir l'organisation et de reconnaître le soutien des sponsors. ● Évaluer le succès des parrainages et des subventions, analyser les impacts financiers et non financiers, identifier les domaines à améliorer. Coordinateur des Ressources Humaines Bénévole | À temps partiel (~10 heures/semaine) ● Gérer les cycles de recrutement, rédiger les descriptions de poste, organiser les entretiens et accueillir les nouveaux membres. ● Tenir à jour les organigrammes, la documentation relative aux postes et réaliser les évaluations à mi-parcours et en fin de mandat. ● Faciliter les réunions d'équipe, maintenir les politiques DEI et gérer les conflits internes mineurs et les aménagements. ● Diriger les programmes d'apprentissage par le service communautaire du TAPC. ● Assurer la coordination avec les universités et les facultés de médecine, organiser les calendriers, offrir un mentorat et une orientation aux étudiants du CSL, et veiller à la documentation relative aux exigences en matière de bénévolat ou de programmes d'études. ● Tenir à jour la documentation relative au bénévolat et gérer le recrutement des bénévoles du CSL et l'achèvement du programme. ● Aligner les activités du CSL sur la mission du TAPC et ses objectifs en matière d'engagement des jeunes. ● Gérer les bénévoles généraux du TAPC. ● Mettre à jour le manuel des bénévoles. ● Diriger les activités de consolidation d'équipe. ● Soutenir les accords de conformité et de confidentialité des ambassadeurs et du comité consultatif.

Take a Pain Check a été lancé en tant que podcast en mars 2021. Peu après, Natasha Trehan a créé une communauté et Take a Pain Check est devenu la Fondation Take a Pain Check en octobre 2021. La Fondation Take a Pain Check est une organisation à but non lucratif dont la mission et la vision sont de soutenir les jeunes et les jeunes adultes atteints de maladies rhumatismales par utiliser des médias sociaux, des initiatives, du plaidoyer et de la sensibilisation. Notre mission La Fondation Take a Pain Check (TAPC) est une organisation internationale à but non lucratif dirigée par des jeunes, dont la mission est d'autonomiser, d'éduquer, de soutenir et de défendre les jeunes atteints de maladies rhumatismales. Nous nous efforçons de sensibiliser, de promouvoir la résilience et d'améliorer la qualité de vie en mettant en valeur les expériences vécues et en proposant des programmes accessibles, des opportunités de leadership et un soutien inclusif par les pairs. Par l'éducation, le plaidoyer, la création de contenu et la sensibilisation numérique, nous fournissons aux jeunes les connaissances, les outils et la communauté dont ils ont besoin pour gérer leur parcours de santé et créer du changement durable. Joint Chat Rheum Un programme de soutient où les jeunes atteint de maladies rheumatismales trouvent des liens, la communauté, et le pouvoir de l'expérience partagée. Ce programme démarre cet automne! Postulez aujourd'hui Devient un ambassadeur Donner aux jeunes atteints de maladies rhumatismales les moyens de diriger, de défendre et d'inspirer le changement, en commençant par leurs propres histoires Postulez ici Notre dernier épisode Tout voir Dernières opportunités Candidature podcast ici Candidature HCPA ici Notre Vision Chaque jeune atteint d'une maladie rhumatismale mérite d'être vu, entendu et soutenu. Notre objectif est de bâtir un avenir où les jeunes sont des partenaires actifs de leurs soins, où les systèmes de santé valorisent l'expérience vécue et où l'accès à l'éducation, aux ressources et au soutien est équitable et inclusif. La Fondation Take a Pain Check imagine une communauté mondiale connectée, dirigée par les jeunes, qui conduit le changement par le plaidoyer, l'éducation, la création de contenu et la collaboration. En collaborant avec les hôpitaux, les chercheurs et les institutions, nous élargissons la portée des voix des jeunes et créons un impact significatif et durable dans le domaine de la rhumatologie. Avez-vous rencontré nos animaux TAPC ? Regardez les animaux ici ! Hi! We’re the Take a Pain Check support animals! We’re here to bring comfort, smiles, and a little bit of fun to anyone living with or affected by rheumatic conditions. Whether you’re flaring, feeling low, or just need a soft friend by your side, we’ve got you! From Rheumy the bear to Lupie the llama to Dermie the duck, each of us represents a different condition, but together, we’re all about support, understanding, and a little bit of fluff. No matter what you’re going through, we’re here to remind you: you’re never alone. 💙 100+ ÉPISODES DE PODCAST 50+ BÉNÉVOLES ACTIFS 100+ ÉPISODES DE PODCAST Impliquez-vous dès aujourd'hui Consultez tous nos programmes et autres opportunités dans notre communauté ici. Voir toutes les opportunités ici Soutenez notre mission Chez Take a Pain Check, votre soutien alimente notre travail essentiel qui met en relation les personnes atteintes de maladies rhumatismales avec la communauté, les ressources et l'espoir. N'hésitez pas à faire un don à notre campagne GoFundMe pour nous aider à développer nos programmes, notamment Joint Chat Rheum, et à continuer d'avoir un impact significatif. Chaque contribution, quelle que soit son importance, fait la différence. Faites un don ici

CLAUSE DE NON-RESPONSABILITÉ Les points de vue et opinions exprimés par les invités sur ce podcast ne représentent ni ne reflètent la politique ou la position officielle de la Take a Pain Check Foundation et du podcast. Toutes les informations partagées sont issues d'expériences personnelles et ne constituent pas un avis médical. Nous n'assumons aucune responsabilité pour les déclarations exprimées pendant le podcast. Take a Pain Check ne cautionne aucun produit ou service. Les produits ou services mentionnés dans ce podcast peuvent ne pas convenir à vous ou à votre état. Veuillez consulter votre médecin si vous avez des questions médicales concernant votre état. Research & Medical Toutes les catégories Lire la vidéo Lire la vidéo 39:03 Take a Pain Check I Was the Doctor… Then I Became the Patient | Ep.122 She spent years treating rheumatoid arthritis. Then she became the patient. What happens when the person who’s supposed to have the answers suddenly doesn’t? In this episode of Take a Pain Check, Natasha sits down with Dr. Saimun Singla who is a triple board-certified pediatric rheumatologist whose life changed after being diagnosed with rheumatoid arthritis after becoming an attending physician. Dr. Singla opens up about what it’s really like to navigate the healthcare system from both sides and how her diagnosis forced her to rethink everything she believed about medicine, patient care, and healing. We get into: - What doctors don’t fully understand until they become patients - The gaps in care that patients feel every day - Integrative vs functional medicine - How gut health, hormones, and environment may be impacting autoimmune disease - Physician burnout and what it actually looks like - What the future of medicine needs to become This isn’t just a conversation about rheumatoid arthritis. It is about what happens when medicine becomes personal and why the system needs to change. Dr. Singla's Socials: https://www.instagram.com/rheum.to.grow.tx/ Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapaincheck #rheumatologist #doctor #patient #patienteducation #rheumatology Lire la vidéo Lire la vidéo 40:16 Take a Pain Check Chronic Pain Isn’t What You Think | Ep.119 Your pain might not mean damage and that could change everything. In this episode of Take a Pain Check, we sit down with Vanessa Blackstone, Executive Director of the Pain Psychology Center, to talk about Pain Reprocessing Therapy (PRT) — a science-backed approach helping people move beyond “just managing” chronic pain. We break down how the brain can learn pain, why fear keeps symptoms stuck, and how safety, language, and emotional trust can unlock real recovery. If you’ve been told your pain is permanent, this conversation may completely change how you see your body. Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapaincheck Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. #takeapaincheck #podcast #therapy #chronicpain #chronicillness Lire la vidéo Lire la vidéo 52:25 Take a Pain Check Truth About Chronic Pain | Ep. 110 In this episode of Take a Pain Check, we’re joined by @DrAndreaFurlan, a physician, researcher, educator, and YouTube star who is transforming the way we understand and approach chronic pain. From her early days studying medicine in Brazil to becoming one of Canada’s foremost pain experts, Dr. Furlan shares her personal journey with chronic pain, explains the differences between nociceptive, neuropathic, and nociplastic pain, and uncovers why so many patients are misdiagnosed and what we can do about it. We also explore the inspiration behind her latest book, the impact of her viral YouTube content, and how she makes cutting-edge science accessible and empowering for patients worldwide. Register for our in person event here by May 18: https://forms.gle/tWdabTbta8ZYeieb8 Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Dr. Furlan's socials: https://www.youtube.com/@DrAndreaFurlan instagram.com/dr.andrea.furlan twitter.com/adfurlan facebook.com/dr.andrea.furlan Our socials: ⁠https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #chronicpain #chronicpaindoc #doctor #education #pain #opioids Lire la vidéo Lire la vidéo 50:33 Take a Pain Check From Pediatric to Adult Care: What’s Next? | Ep 107 In this episode of Take a Pain Check, our host Natasha introduces our guest Dr Erica Lawson. Dr. Erica Lawson is a pediatric rheumatologist and Program Director for the UCSF Pediatric Rheumatology Fellowship. We dive into her journey in medicine, passion for pediatric rheumatology, and the challenges young patients face—from diagnosis to transitioning to adult care. Dr. Lawson shares insights on parental involvement, health disparities, and the importance of collaboration in healthcare. She also discusses balancing family life with a demanding career. Don’t forget to like, comment, and subscribe for more insightful episodes. Register for our in person event here: https://forms.gle/tWdabTbta8ZYeieb8 Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ #arthritis #rheumatologist #youth #youngpeople Lire la vidéo Lire la vidéo 35:10 Take a Pain Check Cracking the Code: Disability Tax Credit | Ep. 102 In this episode of Take a Pain Check, Natasha chats with Carroll Meilleur, an advocate for the Disability Tax Credit (DTC) and senior member of True North Disability Services. Carroll shares her journey from dentistry to advocacy, discussing DTC eligibility, benefits, misconceptions, application tips, and support for individuals with rheumatic diseases. She highlights the importance of advocacy, shares success stories, and offers practical advice for navigating the DTC process. Tune in to learn how Carroll is making a difference in accessibility and support for those in need. Apply to our scholarship today: https://www.takeapaincheck.com/schola... Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check Carrol's socials: Website: www.tnds.ca Instagram: https://www.instagram.com/truenorthdisabilityservices/ Facebook: https://www.facebook.com/tnds.ca/ Growing Pains, Copyright, 2018, Alessia Cara #disabilitybenefits #disabilitytaxcredit #chronicillness #pain #rheumatologist Lire la vidéo Lire la vidéo 46:59 Take a Pain Check Episode 89 - Strength in Struggle: Coping with Chronic Pain Welcome back to this week's episode of Take a Pain Check! Today, I'm thrilled to have Delane Linkiewich with us, sharing her journey with chronic pain and the incredible insights she's gained along the way. Delane opens up about her experiences, from the car accident that started it all to the psycho-social impacts she's navigated. We delve into the various physical therapies she's tried, her medication regimen, and how she managed treatment during the challenging times of the pandemic. Growing up with chronic pain wasn't easy, and Delane shares how she had to step back from activities at times. She also sheds light on misconceptions about chronic pain and her time in the clinic until she transitioned to adult care. As a passionate advocate, Delane discusses her involvement in research, including her master's work on peer support in pediatric chronic pain. Learn about her initiatives with the Chronic Pain Network, her role in the 'Putting the Pieces Together Conference,' and valuable tips she offers for those living with chronic pain. Don't forget to like, comment, and subscribe for more insightful episodes. Join our peer support group here for this month's session in April: https://us02web.zoom.us/meeting/register/tZUlf-itrzwpHdHeWxl0qYTy7NYOptjjt8Qh#/registration Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ X: ⁠ https://twitter.com/takeapaincheck Tiktok: ⁠ https://twitter.com/takeapaincheck Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check Delane's socials: Email: dlinkiew@uoguelph.ca X: https://twitter.com/delanelinkie Growing Pains, Copyright, 2018, Alessia Cara #chronicpain #peersupport #caraccident #pain #invisibledisability #phd Lire la vidéo Lire la vidéo 44:13 Take a Pain Check Episode 81 - Keeping the Adventure Alive In this episode of Take a Pain Check, @arthritisadventure discusses her journey in osteoarthritis care. She discusses the knowledge gap in patient communication, the importance of a holistic approach, and practical advice on exercise for managing symptoms. Additionally, Alyssa also shares insights into physiotherapist appointments and highlights her initiative, “Keep the Adventure Alive,” aimed at helping those with osteoarthritis lead fulfilling lives. The episode explores the significance of exercise in managing symptoms and provides practical advice on safe muscle strengthening and relieving knee pain. Alyssa also shares insights into what patients can expect during physiotherapist appointments, the duration of sessions, and the personalized approach to care. The episode concludes by emphasizing the significance of Alyssa’s YouTube channel in spreading awareness and building a supportive community. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/scholarship @arthritisadventure's socials: Website: keeptheadventurealive.com Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #osteoarthritis #chronicillness #arthritis #physiotherapy Lire la vidéo Lire la vidéo 45:03 Take a Pain Check Episode 76 - Vancouver's Collaborative Transition Hereos In this episode, we have the privilege of chatting with Dr. Lori Tucker and Dr. Angela How. We explore their journeys in rheumatology, their roles in the Young Adult Rheumatic Disease (YARD) program they assist in running in Vancouver, BC and their commitment to diversity and inclusion in healthcare. We begin by getting to know them by delving into their educational backgrounds, careers, passions, and future plans. Their unique friendship story, blossoming beyond the workplace, sets the stage for an inspiring conversation. As we transition into their professional paths, we discover what led them to specialize in rheumatology and their shared passion for transition care. They shed light on the unique transition program from pediatric to adult care in Vancouver, the challenges patients face, and evolving perspectives on transitions in healthcare. We also explore their daily routines and their collaborative decision-making process in this specific health care setting. Additionally, they discuss their involvement in outreach clinics in Northern BC and share resources for those newly diagnosed. Don't forget to subscribe to Take a Pain Check for updates! Dr. Tucker's socials: https://twitter.com/LoriBTucker1 Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #juvenilearthritis #chronicillness #transition #research #indigenous #vancouver #pediatrics #adultcare Lire la vidéo Lire la vidéo 43:38 Take a Pain Check Episode 74 - Running Through Life with Osteoarthritis In this episode, Natasha talks to Kohle Merry about his journey with osteoarthritis. From undergoing joint injections to a hip replacement at just 29, Kohle's resilience is evident. As an engineering grad with aspirations for physiotherapy school, his surgical timeline redirected him to a PhD candidate in rehab science. He discusses the hurdles younger adults encounter in a rehab as it is setup predominantly for seniors and delves into the emotional struggles of persistent pain. Drawing from his experiences as a patient, tech enthusiast, and researcher, Kohle talks about his drive and how he wants to be part of the intersection between healthcare, patient partner lens and technology. A marathoner at heart, Kohle shares how he modified his active regimen so that he could keep running. Dive into this story of perseverance, from marathons to medical battles, and learn about how to implement self-advocacy in health. Be sure to like, subscribe and share this episode! Kohle's socials: https://ca.linkedin.com/in/kohle-merry-01018b120 Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #rehabilitation #engineering #osteoarthritis #arthritis #phd #hipreplacementsurgery En voir plus

Programme de sacs à dos pour adolescents Qu'est-ce que le programme de sacs à dos ? Nous avons collaboré avec la Société d'arthrite du Canada pour créer notre sac à dos pour adolescents à partir de zéro. La conception de ce sac à dos a fait l'objet de beaucoup de soins et d'attention. Matt & Nat, l'entreprise canadienne à l'origine du sac à dos, a créé plusieurs prototypes avant d'en arriver à la conception finale, qui comporte de larges bretelles, un rembourrage dorsal, un soutien à la taille et une sangle thoracique amovible afin de réduire au minimum la tension exercée sur les articulations, tout en adoptant une conception esthétique et élégante. Les sacs à dos sont végétaliens, sans cruauté et respectueux de l'environnement, entièrement fabriqués à partir de matériaux recyclés. Le contenu des sacs à dos a été sélectionné sur la base des recommandations de rhumatologues, d'adolescents, de physiothérapeutes et d'ergothérapeutes ayant reçu une formation avancée en matière de traitement de l'arthrite. Éligibilité Vous devez répondre aux critères suivants pour pouvoir bénéficier d'un sac à dos, la priorité étant donnée aux personnes nouvellement diagnostiquées. Veuillez noter qu'il est possible que nous fassions un suivi avec le rhumatologue référent pour confirmer le diagnostic. Le bénéficiaire est âgé de 13 à 17 ans et réside au Canada. Le bénéficiaire a reçu un diagnostic d'arthrite ou d'une autre maladie rhumatismale Le bénéficiaire est suivi par un rhumatologue Le bénéficiaire n'a jamais reçu de sac à dos dans le cadre du programme Chaque sac à dos comprend : Une liste de ressources pour vous aider à trouver des programmes, des ressources et des recherches Une poche de chaud/froid recouverte d'une peluche contient un gel qui retient la chaleur ou le froid. Vous pouvez le réchauffer au micro-ondes ou le refroidir au congélateur en fonction de vos besoins spécifiques Une pince à bocal en silicone, qui offre une prise supplémentaire pour aider à ouvrir les bocaux ou les récipients Une brosse à dents électrique pour réduire l'effort et la tension nécessaires pour se brosser les dents efficacement Une pince à crayon pour rendre les différents outils d'écriture plus confortables à utiliser Des tirettes de fermeture à glissière qui peuvent être ajoutées aux fermetures à glissière pour les rendre plus faciles à ouvrir et à fermer Un pilulier pour vous aider à organiser et à ranger vos médicaments en toute sécurité L'ours Rheumy pour vous réconforter et vous soigner Formulaire de commande Veuillez remplir le formulaire de demande d'expédition pour demander votre sac à dos. Il faut compter entre 4 et 6 semaines pour que les familles reçoivent leur sac à dos après avoir envoyé le formulaire de demande. Si vous avez des questions sur le programme, veuillez envoyer un courriel à info@takeapaincheck.com .

Conférences La Fondation Take a Pain Check a participé et contribué à de nombreuses conférences et événements. Nous mettons ici en lumière certaines de nos réalisations et celles de nos communautés. Unité à travers les maladies rhumatismales Take a Pain Check 2025 Nous avons été ravis d'organiser notre tout premier événement en personne! Avec des tables rondes et des ateliers, les participants ont eu l'occasion d'apprendre et de tisser des liens. Consultez la page de notre événement en personne pour en savoir plus sur cette expérience communautaire incroyable et enrichissante ! En savoir plus sur l'événement ici Convergence ACR Collège américain de rhumatologie 2023-2024 Take a Pain Check a eu l'honneur de participer à la conférence annuelle de l'ACR ces deux dernières années, et nous avons hâte d'y être à nouveau en 2025! Cliquez sur le bouton ci-dessous pour en savoir plus sur nos recherches et nos présentations de 2023 et 2024. En savoir plus ici! ARThrite: Café Scientifique Le Centre ARThrite lance une nouvelle initiative, le Café Scientifique! Le Café Scientifique est un espace de dialogue entre les patients atteints de maladies rhumatismales auto-immunes et la communauté scientifique. Il s'agit d'une session bilingue qui se déroule à l'Université Laval. Maggie et Yaneisy, de TAPC, ont eu l'occasion de participer et de faire une présentation lors de la toute première session, qui a eu lieu le 26 septembre 2025. Congrès européen de rhumatologie EULAR 2025 Nous avons été très reconnaissants d'avoir l'opportunité d'assister à l'EULAR 2025. Cet événement, organisé par l'Alliance européenne des associations de rhumatologie , a été pour nous une expérience incroyable. Congrès sur le lupus 2025 Groupe Kenes Nous avons eu l’honneur d’assister au 16e Congrès international sur le lupus érythémateux disséminé , où nous avons pu favoriser de nouvelles collaborations et découvrir les dernières recherches sur le lupus et les maladies apparentées. Réunion scientifique annuelle de la SCR et de l'APSA Société canadienne de rhumatologie et Association des professionnels de la santé pour l'arthrite Take a Pain Check a participé à la réunion scientifique annuelle de la SCR et de l'APSA en 2023, 2024, et 2025. Pour lire plus à propos des réunions et de nos présentations, cliquez sur le bouton ci-dessous. En savoir plus ici! Conférence sur Soins de santé Canada Soins de santé pour enfants Canada 2023 Natasha a participé à une table ronde sur la transition vers les soins de santé pour adultes, organisée dans le cadre d'une activité éphémère pré-conférence de la Conférence annuelle de Soins de santé Canada. Pour en savoir plus sur cet événement et sur les événements précédents, cliquez ici. Réunion scientifique annuelle de la SCP Société canadienne de la douleur 2024 En collaboration avec l'Alliance Canadienne des Arthritiques (ACA) et les chercheurs de l'Université d'Ottawa, nous avons présenté « Où allons-nous d'ici ? Exploration de la douleur et de la santé mentale chez les jeunes atteints de maladies rhumatismales". Au cours de notre séance, nous avons discuté de sujets importants autour de la santé mentale et des maladies rhumatismales, le livre de résumés du SCD développe notre présentation. Livre des résumés du SPD Conférence sur l'arthrite infantile et au-delà Ucan Cure et Cassie & Friends 2024 Bénéficiaires de bourses communautaires L'Université McMaster 2023-2024 Cette bourse nous a permis de poursuivre le projet Make Rheum for Youth. Grâce à cette bourse, nous avons créé un comité jeunesse qui a créé des infographies pour diffuser des informations, des conseils et des astuces, et pour apporter un soutien aux jeunes atteints de maladies rhumatismales. Jetez un oeil à ce qu'ils ont fait ici

Programme de bourses d'études « Prenez un contrôle de la douleur » Programme de bourses d'études Take a Pain Check Vous cherchez un modèle ? Nos anciens boursiers Thank you to everyone interested in our scholarship program. This page is dedicated to the past recipients who we are honoured to support throughout their academic journeys. To view information on upcoming scholarship opportunities, visit our scholarship page using the button below. Merci à tous ceux qui s'intéressent à notre programme de bourses. Cette page est dédiée aux anciens lauréats que nous avons l'honneur de soutenir tout au long de leur parcours universitaire. Pour consulter les informations sur les prochaines bourses, consultez notre page Bourses en cliquant sur le bouton ci-dessous. View Scholarship information here // Consultez les informations sur les bourses ici Lauréats 2025 Félicitations à nos lauréates, McKinley et Mya ! Nous sommes impatients de voir où votre parcours éducatif vous mènera. Félicitations à nos récipiendaires, McKinley et Mya! Nous sommes impatients de voir où votre parcours scolaire vous mènera. 2025 STEM Without Limits Recipient Lauréat du STEM Sans Limites 2025 2025 Learn Without Limits Recipient Lauréat du Apprendre Sans Limites 2025 Baccalauréat en kinésiologie L'Université de l'Alberta Arthrite Psoriasique, Syndrome d'Activation Mastocytaire (MCAS), et Dysautonomie McKinley Penninga « Être bénéficiaire de la bourse Take a Pain Check me permet d'avoir une base financière plus solide et de la possibilité de terminer avec succès mon diplôme en kinésiologie. Cette bourse me permet également de mieux alimenter mon corps, de manger de manière optimale pour mes performances et de rester en aussi bonne santé que possible tout en me concentrant sur la réalisation de mon potentiel scolaire. Je souffre de nombreuses allergies et intolérances alimentaires et je dois donc suivre un régime strictement sans gluten et sans produits laitiers, ce qui entraîne des dépenses alimentaires plus élevées. »* *Traduit par l'équipe TAPC Baccalauréat d'Arts en Psychologie et Développement International, avec une Mineure en Commerce L'Université Dalhousie Arthrite Juvénile Idiopathique (JIA) Mya Barnett « À Dalhousie, je suis co-présidente du campus pour les NGO Global Brigades, et je suis présidente et fondatrice de la section Dalhousie de la Global Brigades Legal Empowerment Brigade. Il s'agit d'un groupe d'étudiants partageant les mêmes idées qui voyagent chaque année comme brigade pour servir des communautés à l'étranger par le biais de l'éducation juridique, de l'aide juridique et de l'autonomisation des communautés. » « Je prévois d'utiliser cette bourse pour payer une partie de mes frais de scolarité pour le semestre à venir. Je prévois également d'utiliser une partie de la bourse pour payer les frais d'inscription à mon prochain test d'admission à la faculté de droit. »* *Traduit par l'équipe TAPC McKinley Penninga Mya Barnett Thank you Organon ! We would like to thank Organon for their support of our 2025 Young Scholars Program. With the help of the Organon team, we will be able to continue this excellent program for future leaders of our community. Merci Organon! Nous tenons à remercier Organon pour son soutien à notre programme de jeunes savants 2025. Avec l'aide de l'équipe Organon, nous pourrons poursuivre cet excellent programme destiné aux futurs leaders de notre communauté. Lauréats 2024 Félicitations à nos lauréates, Kate et Maddi ! Nous sommes impatients de voir où votre parcours éducatif vous mènera. Félicitations à nos récipiendaires, Kate et Maddi! Nous sommes impatients de voir où votre parcours scolaire vous mènera. Combined MD and PhD in Leaders in Medicine University of Calgary Ehlers-Danlos syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS) diagnosis Kate Bourne "Being a recipient of the inaugural STEM Without Limits Scholarship from the Take a Pain Check Foundation is a great honour. This award will provide valuable financial support as I embark on my medical school journey this summer and work towards my career goal of becoming a clinician-scientist." Bachelor of Health Sciences University of Calgary Lupus diagnosis Maddi Tory "For someone with Lupus, the STEM without limits scholarship allows me to focus my energy on my studies, my research and volunteering especially during a flare, when holding an additional part time job would not be realistic. Further this scholarship will allow me to participate in national and international conferences on chronic pain and in the field of neuroscience which would otherwise be in accessible to me." Kate Bourne Maddi Tory 2024 Semi-Finalists Doctor of Medicine University of Alberta IgA Vasculitis diagnosis Jacob Dunn PhD in Clinical Psychology University of Ottawa Rheumatoid Arthritis (RA) diagnosis Dalainey Drakes Merci Pfizer ! Nous tenons à remercier Pfizer d’avoir rendu possible l’attribution des bourses d’études 2023-2024. Grâce à l’aide de l’équipe Pfizer, nous avons pu concrétiser cette opportunité de bourse. Merci Pfizer! Nous tenons à remercier Pfizer d'avoir rendu possible les bourses 2023-2024. Avec l'aide de l'équipe Pfizer, nous avons pu concrétiser cette opportunité de bourse. Intéressé à nous soutenir ? Envoyez-nous un e-mail : info@takeapaincheck.com Vous souhaitez nous soutenir ? Contactez-nous : info@takeapaincheck.com Avez-vous des questions? Envoyez-nous un e-mail : scholarships@takeapaincheck.com Vous avez des questions ? Contactez-nous : bourses@takeapaincheck.com Soyez informés de nos prochaines opportunités de bourses ! Suivez-nous sur Instagram, TikTok, X et Facebook ! Nos prochaines bourses seront annoncées en novembre 2024. Soyez informé de nos prochaines opportunités de bourses d'études! Suivez-nous sur Instagram, TikTok, X et Facebook ! Nos prochaines bourses seront annoncées en novembre 2024. Merci Organon ! Nous tenons à remercier Organon pour son soutien à notre programme Jeunes chercheurs 2025. Avec l’aide de l’équipe d’Organon, nous pourrons poursuivre cet excellent programme pour les futurs dirigeants de notre communauté. Merci Organon! Nous tenons à remercier Organon pour son soutien à notre programme de jeunes savants 2025. Avec l'aide de l'équipe Organon, nous pourrons poursuivre cet excellent programme destiné aux futurs leaders de notre communauté.

Joint Chat Rheum Créer des liens, favoriser la communauté Qu'est-ce que Joint Chat Rheum? Joint Chat Rheum (JCR) est un nouveau programme fièrement lancé par Take a Pain Check pour autonomiser et connecter les jeunes et les jeunes adultes (16-29 ans) atteints de maladies rhumatismales. Conçu pour favoriser un sentiment d'appartenance, JCR rassemble des personnes qui comprennent véritablement les défis de la vie avec une maladie rhumatismale. Menée par des ambassadeurs passionnés et expérimentés, cette initiative offre un espace sûr et solidaire pour des conversations enrichissantes, un soutien mutuel et la création d'amitiés durables. Grâce à JCR, les participants bénéficient d'une communauté dynamique où ils peuvent partager leurs histoires, trouver de la force dans leurs expériences communes et créer des liens qui inspirent résilience et espoir. Découvrez-le ici Structure et avantages du programme Notre programme est un engagement de 6 mois comprenant des séances mensuelles d'une heure via Zoom. Chaque séance est conçue pour être interactive et stimulante, alliant discussions structurées et activités ludiques. Les participants échangent non seulement lors des séances en direct, mais poursuivent également leurs échanges via notre communauté Discord exclusive. Voici les détails clés : Durée : engagement de programme de 6 mois Fréquence des séances: Séances mensuelles d'une heure via Zoom Capacité des participants: Entre 5 et 10 participants par cohorte Conditions de présence: S'engager à assister à toutes les séances d'une heure Honoraires: Les participants qui remplissent les conditions de présence recevront des honoraires à la fin du programme. Format et activités de la séance Chaque séance mensuelle est soigneusement structurée pour favoriser l'interaction et la camaraderie. Les activités comprennent : Exercices interactifs de l'esprit d'équipe Des discussions engageantes de groupe sur des sujets pertinents Opportunités de questions-réponses Soirées de jeux et activités sociales Conversations menées par des pairs ambassadeurs Avantages du programme En rejoignant JCR, vous : Connectez-vous avec des pairs qui comprennent votre parcours Construisez des amitiés durables dans un cadre informel et solidaire Partager des expériences et apprendre des autres Participer à des activités et des discussions engageantes Profitez d'une communauté qui s'étend au-delà des sessions mensuelles Recevez un honoraire d'achèvement de programme Accédez à une communauté Discord exclusive Dates des prochaines sessions – Cohorte de février à juin 2025 Notre calendrier 2025 comprenait 27 février : 19 h à 20 h HNE, animé par Jenna Kedy (atteint de AJI) 27 mars : 18 h à 19 h HNE, animé par Sahara Mehdi (atteint de PR) 24 avril : 18 h à 19 h HNE, animé par Yaneisy-Nynoska Tremblay (atteint de LED) Mai (date à déterminer) : Animé par Anna Samson (atteint de axSpA) 30 juin : 18 h à 19 h HNE, animé par Morgane Hanley (atteint de fibromyalgie et d’AJI) Revenez bientôt pour découvrir les sessions que nous organisons en 2025/2026 ! Admissibilité et processus de candidature Pour participer au programme JCR, vous devez : Être diagnostiqué avec une maladie rhumatismale Être âgé de 16 à 29 ans S'engager à assister à au moins 5 séances sur 6 Être prêt à participer activement aux discussions et aux activités Être prêt à répondre à des sondages avant et après chaque séance Avoir accès à Zoom pour des séances virtuelles Si vous ne correspondez pas à la tranche d’âge mais que vous souhaitez tout de même participer, veuillez nous envoyer un e-mail. Nous examinons les candidatures au cas par cas. Vous souhaitez en savoir plus? N'hésitez pas à nous contacter ! Vous pouvez nous envoyer un e-mail à l'adresse ambassadors@takeapaincheck.com pour obtenir plus d'informations sur ce programme. Découvrez-le ici Aidez-nous à faire passer le message ! L’un des principaux objectifs de la Take a Pain Check Foundation est de mettre en relation les personnes atteintes de maladies rhumatismales avec des ressources et des réseaux de soutien. La présence d’affiches promotionnelles, de dépliants et de cartes de visite dans les établissements de santé peut aider à orienter les jeunes atteints de maladies rhumatismales vers notre communauté. Nous demandons à ceux qui peuvent faire passer le message et faire connaître notre programme JCR de partager nos affiches en accédant à notre Google Drive partagé ou en s’inscrivant à notre initiative de matériel promotionnel hospitalier. Nous espérons pouvoir compter sur votre soutien ! Accédez à nos affiches ici Intéressé par les sujets de nos événements passés ? Découvrez-le ici Précédemment en partenariat avec l'Université de Pennsylvanie

Rejoignez notre équipe TikTok Devenez ambassadeur TikTok ! À la fondation Take a Pain Check, nous nous engageons à partager des informations et à raconter des histoires de manière innovante. Nous voulons que VOUS vous joigniez à nous et que vous vous exprimiez. Nous adorons lorsque notre communauté participe. Que vous souhaitiez que nous publiions votre idée TikTok, que vous deveniez l'un de nos ambassadeurs ou que vous exploriez d'autres collaborations potentielles, nous serions ravis de vous entendre. N'hésitez pas à nous envoyer un e-mail décrivant vos intérêts, et nous travaillerons ensemble pour les concrétiser. info@takeapaincheck.com

Rejoignez notre Discord Rejoindre! Rejoignez le serveur Discord TakeAPainCheck, un espace sûr pour les membres de la communauté des maladies chroniques (et leurs alliés !) pour partager leurs parcours et se faire de nouveaux amis ! Rejoignez-nous maintenant pour participer à des concours, découvrir les opportunités offertes aux patients, jouer à des jeux ou simplement discuter dans un espace sûr. Pour accéder à tout cela, appuyez simplement sur Rejoindre ci-dessus, lisez nos règles trouvées sur le serveur et commencez à discuter !

Take a Pain Check Young Scholars Program Programme de jeunes savants Take a Pain Check Closed for 2025/26 About the Scholarship The Young Scholars Program by Take a Pain Check Foundation is an annual scholarship program that aims to relieve financial hardship and other academic barriers faced by students living with rheumatic diseases through financial assistance. The 2025-2026 scholarship program consists of 2 scholarship pathways: The "Learn without Limits" scholarship for one student pursuing higher education in any field, and the "STEM Without Limits" scholarship for one student studying science, technology, engineering, or mathematics. The 2 scholarships, totaling $5,000 CAD, will recognize outstanding academic achievement and a strong dedication to community involvement. Eligibility for Scholarships: Legal and permanent resident of Canada Currently enrolled as a part-time or full-time student in a Canadian post-secondary institution (undergraduate/diploma) STEM Without Limits: Any STEM program (Science, Technology, Engineering, Math). Learn Without Limits: A program in any discipline excluding STEM. Officially diagnosed with a rheumatic disease by a certified healthcare professional Display Academic Excellence Making a Difference in the Community Willing and able to comply with conditions outlined under Applicant Consent To align with our organization's mission, applicants must be 16-29 (Exceptions may apply on a case by case basis. If you have any questions or concerns, please email us) Applicants have not been a volunteer/podcast guest/blog writer with TAPC in the past 12 months Learn Without Limits The Learn Without Limits Take a Pain Check Scholarship, valued at $2,500 CAD, is open to students currently pursuing higher education in any non-STEM program. This scholarship aims to promote equity and improve access to opportunities by easing financial burdens for students living with rheumatic diseases. We believe it will foster inclusive environments, empowering individuals to overcome the unique challenges they face. One recipient will be selected based on demonstrated academic excellence and community involvement. STEM Without Limits The STEM Without Limits Take a Pain Check Scholarship, valued at $2,500 CAD, is open to students living with a rheumatic condition who are currently pursuing higher education in any science, technology, mathematics, or engineering related field. This scholarship seeks to provide equal access to opportunities for individuals with rheumatic diseases, empowering them to advance rheumatology through research, innovation, and advocacy. We believe in a future where individuals in STEM with rheumatic conditions are recognized for their hard work and contributions. This scholarship is open to one STEM student and selection will be based on academic excellence and community involvement. Apply now À propos de la bourse Le programme de Jeunes Savants est un programme de bourses annuel qui vise à soulager les difficultés financières et autres obstacles académiques rencontrés par les étudiants vivant avec des maladies rhumatismales grâce à une aide financière. Le programme de bourses 2025-2026 comprend 2 parcours de bourses : la bourse "Apprendre Sans Limites" pour les étudiants poursuivant des études supérieures dans n'importe quel domaine, et la bourse “STIM Sans Limites” pour les étudiants en sciences, technologies, ingénierie ou mathématiques. Les 2 bourses, totalisant $5,000 CA, reconnaîtront des réalisations académiques exceptionnelles et un fort dévouement à l'implication communautaire. Admissibilité aux bourses: Résident légal et permanent du Canada Actuellement inscrit comme étudiant à temps partiel ou à temps plein dans un établissement post-secondaire canadien STIM Sans Limites: Tout programme STIM (Sciences, technologie, ingénierie et mathématiques) Apprendre Sans Limites: Tout programme hors STIM Diagnostiquer officiellement d'une maladie rhumatismale par un professionnel de la santé agréé Faire preuve d'excellence académique Agir pour la communauté Être capable et prêt à se conformer aux conditions décrites dans la section Consentement du Appliquant Si l'étudiant a moins de seize ans, un parent/tuteur devra approuver les conditions de bourse. Pour correspondre à la mission de notre organisation, les candidats doivent être âgés de 16 à 29 ans (Des exceptions peuvent s'appliquer au cas par cas. Si vous avez des questions ou des préoccupations, veuillez nous envoyer un e-mail). Les candidats n'ont pas été bénévoles, invités de podcasts ou auteurs de blogs avec TAPC au cours des 12 derniers mois. Apprendre Sans Limites La bourse Apprendre Sans Limites Take a Pain Check, d'une valeur de 2 500 dollars canadiens, est ouverte aux étudiants qui poursuivent actuellement des études supérieures dans n'importe quel programme de premier cycle excluant les programmes STIM. Cette bourse vise à promouvoir l'équité et à améliorer l'accès aux opportunités en allégeant le fardeau financier des étudiants vivant avec des maladies rhumatismales. Nous pensons qu'elle favorisera des environnements inclusifs, permettant aux individus de surmonter les défis uniques auxquels ils sont confrontés. Un lauréat sera sélectionné sur la base de son excellence académique et de son implication dans la communauté. STIM Sans Limites La bourse STIM Sans Limites Take a Pain Check, d'une valeur de 2 500 dollars canadiens, est ouverte aux étudiants atteints d'une maladie rhumatismale qui poursuivent actuellement des études supérieures dans un domaine lié aux sciences, à la technologie, aux mathématiques ou à l'ingénierie. Cette bourse vise à offrir un accès égal aux opportunités pour les personnes atteintes de maladies rhumatismales, en leur donnant les moyens de faire progresser la rhumatologie par la recherche, l'innovation et la défense des droits. Nous croyons en un avenir où les personnes atteintes de maladies rhumatismales et travaillant dans les STIM seront reconnues pour leur travail acharné et leurs contributions. Cette bourse est ouverte à un étudiant de premier cycle en STIM et la sélection se fera sur la base de l'excellence académique et de l'engagement communautaire. Postulez maintenant Want to Help Spread the Word? We would greatly appreciate any support from our community in sharing our scholarship to reach more students! Click the button below to find a variety of posters and social media posts that can be used to share with your network. Vous souhaitez contribuer à faire passer le message ? Nous apprécierions grandement tout soutien de notre communauté pour partager notre bourse et toucher davantage d'étudiants ! Cliquez sur le bouton ci-dessous pour découvrir une variété d'affiches et de publications sur les réseaux sociaux à partager avec votre réseau. Start now/Commencez Maintenant Vous cherchez un modèle ? Nous avons créé des modèles pratiques pour vos certificats médicaux et lettres de recommandation. Cliquez ci-dessous pour trouver le modèle à remplir par votre médecin/référent! We have created some convenient templates that can be used for your physician certification and reference letters. Click below to find the template for your doctor/referee to fill out! Click here/Cliquez ici Questions fréquemment posées What is the Take a Pain Check Foundation? // Qu'est-ce que la fondation Take a Pain Check? Take a Pain Check Foundation (TAPC) is on a mission to empower youth and young adults with rheumatic disease. Originally started as a podcast, the TAPC Foundation has grown into a strong global community of volunteers and ambassadors who lead programming and mission related initiatives.// La Fondation Take a Pain Check (TAPC) a pour mission de donner aux jeunes et aux jeunes adultes atteints de maladies rhumatismales les moyens d'agir. Créée à l'origine sous la forme d'un podcast, la fondation TAPC s'est développée pour devenir une solide communauté de bénévoles et d'ambassadeurs. Qu’est-ce qui est considéré comme une maladie rhumatismale ? // Qu'est-ce qui est considéré comme une maladie rhumatismale ? A rheumatic disease includes but is not limited to the following: ankylosing spondylitis psoriatic arthritis, rheumatoid arthritis, scleroderma, gout, juvenile idiopathic arthritis, myositis, Sjogren's syndrome, and systemic lupus erythematosus. If you are unsure of the classification of your diagnosis, please refer to a medical professional or email us// Les maladies rhumatismales sont les suivantes : spondylarthrite ankylosante, arthrite, goutte, rhumatisme psoriasique, polyarthrite rhumatoïde, sclérodermie, goutte, arthrite juvénile idiopathique, syndrome de Sjögren, lupus érythémateux disséminé et arthrose. Si vous n'êtes pas sûr de la classification de votre diagnostic, veuillez consulter un professionnel de la santé. Et si mes notes ne sont pas les meilleures ? // Et si mes notes ne sont pas très bonnes ? We understand some of the challenges that students with rheumatic disease have to endure. All applications will be viewed holistically to avoid discrepancies in only one category.// Nous comprenons certaines des difficultés auxquelles sont confrontés les étudiants atteints de maladies rhumatismales. Toutes les candidatures seront examinées de manière globale afin d'éviter les écarts dans une seule catégorie. Comment puis-je être informé des futures bourses ? // Comment puis-je rester informé des futures bourses d'études? Make sure to follow us on our social media pages and subscribe to our newsletter for the latest information! Take a Pain Check hopes to offer more scholarships every year to empower young adults with rheumatic diseases in all areas.// N'oubliez pas de suivre nos pages de médias sociaux et de vous abonner à notre bulletin d'information pour obtenir les dernières informations ! Take a Pain Check espère offrir davantage de bourses chaque année pour aider les jeunes adultes atteints de maladies rhumatismales dans tous les domaines. Puis-je gagner plus d'une fois ? // Puis-je gagner plus d'une fois ? Unfortunately, you cannot win more than once. If you do not win this year, we encourage you to try again and apply next year!// Malheureusement, vous ne pouvez pas gagner plus d'une fois. Si vous ne gagnez pas cette année, nous vous encourageons à réessayer et à poser votre candidature l'année prochaine ! Dois-je être Canadien? // Dois-je être Canadien ? At this time, you must be a Canadian citizen or a permanent resident of Canada to be eligible for any of the scholarships.// À l'heure actuelle, vous devez être citoyen canadien ou résident permanent du Canada pour être éligible à l'une des bourses. Qu'est-ce qu'un programme STEM ? // Qu'est-ce qu'un programme STIM ? A STEM program encompasses science, technology, engineering or mathematics. If you are unsure if your program fits within this, you can email us or apply to the Learn Without Limits Scholarship.// Un programme STIM englobe les sciences, la technologie, l'ingénierie et les mathématiques. Que faire si je ne parviens pas à obtenir un certificat médical ? // Que faire si je ne peux pas obtenir de certificat médical ? If you cannot get a doctor's note, you can send in referral notes, medical reports, doctor notes that state the diagnosis and physician name, etc. If you are unsure of whether your paperwork is eligible, feel free to email us at scholarships@takeapaincheck.com// Si vous ne pouvez pas obtenir de certificat médical, vous pouvez envoyer des notes de référence, des rapports médicaux, des notes de médecin indiquant le diagnostic et le nom du médecin, etc. Si vous n'êtes pas sûr que votre dossier soit éligible, n'hésitez pas à nous envoyer un e-mail à l'adresse suivante : bourses@takeapaincheck.com Si je suis étudiant à temps partiel en raison de mon handicap, puis-je quand même postuler ? // Si je suis étudiant à temps partiel en raison de mon handicap, puis-je encore postuler ? Yes, you can still apply! Take the time to explain how your disability affected your ability to be a full-time student.// Oui, vous pouvez toujours postuler ! Prenez le temps d'expliquer comment votre handicap a affecté votre capacité à être un étudiant à temps plein. Quels programmes sont éligibles à la bourse Apprendre sans limites ? // Quels sont les programmes admissibles à la bourse Apprendre sans limites ? This will include any area that is not STEM, including Arts and Humanities, Finance, Marketing, Politics, and Social sciences.// Il s'agit de tout domaine autre que les STIM, y compris les arts et les lettres, la finance, le marketing, la politique et les sciences sociales. Qu’est-ce qui est défini comme jeunesse dans notre organisation ? // Qu’est-ce qui est défini comme jeunesse dans notre organisation ? At Take a Pain Check, we define youth as individuals aged 16-29. Student applicants to the Young Scholars Program must be within this age range. (Exceptions may be made on a case-by-case basis. If you are concerned about this requirement, feel free to email us).//À la Take a Pain Check, nous définissons les jeunes comme des individus âgés de 16 à 29 ans. Les étudiants candidats au Programme de Jeunes Savants doivent appartenir à cette tranche d'âge. (Des exceptions peuvent être faites au cas par cas. Si cette exigence vous préoccupe, n'hésitez pas à nous envoyer un e-mail). View past recipients here Voir les anciens récipiendaires ici Click here // Allez ici Vous souhaitez nous soutenir? Contactez-nous : info@takeapaincheck.com Avez-vous des questions? Contactez-nous : scholarships@takeapaincheck.com Soyez informé de nos prochaines opportunités de bourses d'études! Suivez-nous sur Instagram, TikTok, X et Facebook ! Nos prochaines bourses seront annoncées en novembre 2025.

Soutenez-nous Vous souhaitez contribuer au TAPC ? Faites un don à notre gofundme Patreon du TAPC Devenez membre Patreon ! Parrainage Pour vous renseigner sur les différents niveaux de parrainage et recevoir un paquet de parrainage, contactez-nous à partnerships@takeapaincheck.com ! Soutenez notre travail Votre générosité est le moteur de notre mission. En faisant un don à notre campagne GoFundMe, vous soutenez directement les personnes atteintes de maladies rhumatismales et nous aidez à développer des programmes essentiels comme le Joint Chat Rheum. Chaque contribution, quel que soit son montant, contribue à bâtir une communauté plus forte et mieux connectée. Faites un don Contactez-nous info@takeapaincheck.com

CLAUSE DE NON-RESPONSABILITÉ Les points de vue et opinions exprimés par les invités sur ce podcast ne représentent ni ne reflètent la politique ou la position officielle de la Take a Pain Check Foundation et du podcast. Toutes les informations partagées sont issues d'expériences personnelles et ne constituent pas un avis médical. Nous n'assumons aucune responsabilité pour les déclarations exprimées pendant le podcast. Take a Pain Check ne cautionne aucun produit ou service. Les produits ou services mentionnés dans ce podcast peuvent ne pas convenir à vous ou à votre état. Veuillez consulter votre médecin si vous avez des questions médicales concernant votre état. Juvenile Idiopathic Arthritis Lire la vidéo Lire la vidéo 41:13 Why Young Adults with Arthritis Are Pushing Back | Ep.121 Growing up with juvenile idiopathic arthritis isn’t just about managing pain but it’s about navigating identity, independence, relationships, and major life transitions while your body feels unpredictable. In this episode of Take a Pain Check, Natasha sits down with Ela Chintagunta who is an advocate, biology and chemistry graduate, CARRA volunteer, Arthritis Foundation award recipient, and council mentor for YP AREA. We talk about: • Being diagnosed as a teenage with Juvenile Idiopathic Arthritis • Attempting to stop medications in college • Living through prolonged flares during graduation • What shared decision making actually looks like in real life • Why young people belong in research and healthcare conversations • How to start advocating even in small ways Ela shares honestly about the tension between wanting independence and needing treatment, and how advocacy became a tool for reclaiming control. Shared decision making isn’t just a concept. It’s about trust, communication, and recognizing that patients are experts in their own lived experience. YP Area: https://youngpatientsarea.org/ Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #research #youth #arthritis #shareddecisionmaking #autoimmunedisease Lire la vidéo Lire la vidéo 32:50 Everything JIA Took, Mya Took Back | Ep. 112 In this powerful episode of Take a Pain Check, we sit down with Mya Barnett, a driven and inspiring young woman living with Juvenile Idiopathic Arthritis (JIA). Diagnosed at just 11 years old, Mya shares the reality of growing up with a chronic illness, how it shaped her confidence, impacted her daily life, and led to major decisions like undergoing jaw surgery. From navigating school accommodations and finding community at IWK summer camp, to becoming a camp counsellor and launching a homemade soap line for psoriasis. She also opens up about her experience travelling to Europe with Global Brigades Canada and managing her condition on the go. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #psoriasis #rheumaticdisease #chronicdisease #chronicillness #prelaw Lire la vidéo Lire la vidéo 49:50 The System Isn't Ready For Us | Ep. 109 In this episode of Take a Pain Check, we are joined by the Jenna Kedy, a passionate advocate living with Juvenile Arthritis and Fibromyalgia. We dive deep into Jenna’s diagnosis journey, navigating school and childhood with a chronic illness, and the challenges of finding proper pediatric care. Jenna opens up about learning to advocate for herself, balancing a busy life of advocacy, volunteering, and pageantry, and the realities of managing pain and flare-ups. We also explore the differences in healthcare systems across Canada, her work with IMPaCT Trials mentoring researchers, and her inspiring role as a Youth Board Member and Youth Ambassador at Take a Pain Check. Register for our in person event here by April 27th: https://forms.gle/tWdabTbta8ZYeieb8 Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Jenna's socials: Instagram: _missjennak_ LinkedIn: Jenna Kedy Our socials: ⁠https://www.takeapaincheck.com https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #JuvenileArthritis #FibromyalgiaAwareness #DisabilityAdvocacy #InclusiveEducation #TakeAPainCheck Lire la vidéo Lire la vidéo 39:09 Finding Confidence Through Chronic Illness | Ep. 108 In this episode of Take a Pain Check, Aubrey Mills opens up about her journey with Polyarticular Juvenile Idiopathic Arthritis. From her early diagnosis at age 8 to becoming a JA camp counsellor and launching Aubrey’s Animals through the Arthritis Foundation, Aubrey shares powerful insights on advocacy, mindset, and finding community. We talk about the realities of growing up with arthritis, the importance of support systems, and how she's turning her experiences into impact. Don't miss this inspiring conversation! Register for our in person event here by April 27th: https://forms.gle/tWdabTbta8ZYeieb8 Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Aubrey's socials: Instagram: @aubreymills__ @team_aubreys_animals Arthritis Foundation: https://www.arthritis.org/ Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ #arthritis #chronicillness #rheumaticdisease #autoimmunedisease #arthritispain Lire la vidéo Lire la vidéo 50:56 Reshaping My Life After Diagnosis | Ep. 105 In this episode of Take a Pain Check, Natasha sits down with Brandon Volesky to explore his journey with Juvenile Idiopathic Arthritis (JIA)—from being diagnosed at just two years old to navigating the challenges of childhood, overcoming stigma, and adapting his mindset to thrive as a husband, father, and professional. Brandon shares how his fear of medication affected his condition, how he ultimately embraced treatment, and how he transitioned from aspiring chef to becoming a Software and Data Engineer at H&R Block’s Machine Learning Lab. We dive into his work in AI and healthcare, his involvement with CARRA, and his passion for improving childhood rheumatology research. Through his lived experience, Brandon is leveraging machine learning and data science to transform healthcare and support better treatment options for future generations. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincheck Apply to our scholarship today: https://www.takeapaincheck.com/schola... Apply for our NEW paid youth and young adult support program: https://forms.gle/W3ciBhG89eAH8QvS8 Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Brandon's socials: www.linkedin.com/in/bvolesky CARRA: https://carragroup.org/ Growing Pains, Copyright, 2018, Alessia Cara #arthritis #chef #ai #research #dataanalytics Lire la vidéo Lire la vidéo 36:22 Trading Sneakers for Heels: Stella’s Journey | Ep. 104 In this episode of Take a Pain Check, host Natasha welcomes Stella Miller to share her journey with Juvenile Arthritis. Stella opens up about her early symptoms, the challenges of receiving a diagnosis, and the impact of medications like methotrexate and Orencia. She reflects on navigating friendships, advocating for her needs, and the support system that has helped her along the way. Stella also discusses the emotional toll of stepping away from basketball, a sport she loved, and how she found new purpose beyond the court. From her advocacy work with MUSC to modeling with a chronic illness, she shares how she’s reshaped her identity and continues to inspire others. Apply to our scholarship today: https://www.takeapaincheck.com/scholarship Apply for our NEW paid youth and young adult support program: https://forms.gle/W3ciBhG89eAH8QvS8 Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Stella's socials: Instagram & TikTok @Stellamiller71 Growing Pains, Copyright, 2018, Alessia Cara #model #basketball #arthritis #southcarolina #onlineschool Lire la vidéo Lire la vidéo 01:02:11 Episode 98: Feeling like one of the fastest kids on crutches In this episode of Take a Pain Check, Natasha sits down with Kent Messner, who shares his inspiring journey of living with rheumatoid arthritis (RA) from childhood to adulthood. Kent discusses his early diagnosis, the challenges he faced using crutches during middle and high school, and the impact of bullying on his self-esteem. He reflects on his time in a rehabilitation center, his pursuit of education, including an undergraduate degree and an MBA, and how his experiences shaped his career at Penn Medicine. Kent also shares practical tools and strategies he uses to manage his condition daily, from surgeries to physical therapy and chiropractic care. Throughout the conversation, Kent emphasizes the importance of advocacy and support, offering valuable advice to young people with disabilities. His story is a powerful reminder of the strength found in embracing differences and the importance of community in navigating life with a chronic illness. Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Kent's socials: Facebook: facebook.com/kent.messner Growing Pains, Copyright, 2018, Alessia Cara #lupus #physicianassistant #arthritis #scleroderma Lire la vidéo Lire la vidéo 58:50 Episode 96 - Joel Vs Arthritis Joel Nelson, a passionate advocate in the rheumatic disease community, shares his journey with Juvenile Idiopathic Arthritis (JIA) on the podcast. He discusses the challenges of obtaining a diagnosis and the importance of self-advocacy, especially from a young age. He reflects on the emotional rollercoaster of medication trials and their effects on mental health, emphasizing the stigma surrounding both physical and mental aspects of chronic illness for men. Joel also explores the impact of COVID-19 on healthcare access and his personal life, including parenting with arthritis. He discusses having no transition, experiences in the clinic which impacted his mental health, and the change in health care system over time in the UK. His initiatives, like the Joel Nelson Podcast and the Pain Company, show his commitment to patient-centered care and community support, making him an inspiring voice in chronic illness advocacy. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck?mx=2 Likedin: https://www.linkedin.com/company/take-a-pain-check Joel's socials: Facebook/IG/Twitter/YouTube/Twitch: @JoelvsArthritis Growing Pains, Copyright, 2018, Alessia Cara #chronicpain #chronicillness #arthritis #minecraft #mentalhealth #advocacy Rheumatoid Arthritis Lire la vidéo Lire la vidéo 43:35 Living Around Lupus Changed Me Forever | Ep.123 What happens when chronic illness impacts not just one person, but an entire family? In this episode of Take a Pain Check, Estela Mata shares her journey living with chronic pain since her teens, being diagnosed with rheumatoid arthritis, and supporting her sisters living with lupus while navigating her own health challenges. As President of Looms for Lupus, Estela has transformed lived experience into advocacy, community, and support for others navigating autoimmune disease and chronic illness. Together, we discuss the emotional reality of invisible illness, caregiving, grief, advocacy, mental health, and what it means to rebuild trust with your body after years of pain and uncertainty. This conversation is honest and deeply validating for anyone living with chronic illness, autoimmune disease, or chronic pain and for the people who love and support them. If you’ve ever felt dismissed, overwhelmed, isolated, or unseen in your health journey, this episode is for you. https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Estela's social's Twitter: https://twitter.com/Looms4Lupus YouTube Link: https://youtube.com/@looms4lupus136 Facebook link: https://www.facebook.com/Looms4Lupus Instagram link: www.instagram.com/looms4lupus Newsletter Link: Resources (looms4lupus.org) Website: Looms For Lupus - www.looms4lupus.org LinkedIn: https://www.linkedin.com/in/estela-mata-carcamo-00898230/ Facebook: facebook.com/estela.mata.18 Instagram: www.Instagram.com/estela_mata Twitter: https://twitter.com/estelamata Tik tok: www.tiktok.com/@estela.mata Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... #lupus #chronicillness #family #chronicdiseaseprevention Lire la vidéo Lire la vidéo 39:03 I Was the Doctor… Then I Became the Patient | Ep.122 She spent years treating rheumatoid arthritis. Then she became the patient. What happens when the person who’s supposed to have the answers suddenly doesn’t? In this episode of Take a Pain Check, Natasha sits down with Dr. Saimun Singla who is a triple board-certified pediatric rheumatologist whose life changed after being diagnosed with rheumatoid arthritis after becoming an attending physician. Dr. Singla opens up about what it’s really like to navigate the healthcare system from both sides and how her diagnosis forced her to rethink everything she believed about medicine, patient care, and healing. We get into: - What doctors don’t fully understand until they become patients - The gaps in care that patients feel every day - Integrative vs functional medicine - How gut health, hormones, and environment may be impacting autoimmune disease - Physician burnout and what it actually looks like - What the future of medicine needs to become This isn’t just a conversation about rheumatoid arthritis. It is about what happens when medicine becomes personal and why the system needs to change. Dr. Singla's Socials: https://www.instagram.com/rheum.to.grow.tx/ Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapaincheck #rheumatologist #doctor #patient #patienteducation #rheumatology Lire la vidéo Lire la vidéo 49:47 When the World Stopped, My Diagnosis Started | Ep. 106 In this episode of Take a Pain Check, Natasha is joined by the inspiring Sahara as she shares her journey of being diagnosed with rheumatoid arthritis (RA) during the COVID-19 pandemic. They dive into the challenges of getting a diagnosis amid uncertainty, navigating university while managing a chronic illness, and finding the right resources for understanding RA. Sahara opens up about how her south Asian background influenced her family’s understanding of her condition and how she worked to create a supportive space for herself and others who are immunocompromised. She also talk about the importance of setting boundaries, adapting to unexpected challenges while traveling, and lifestyle changes that help her manage flares. Beyond her health journey, Sahara shares her passion for writing and gives us insight into her two books—Love Letters to Myself, a heartfelt collection of poetry on love, heartbreak, and self-discovery, and Reflections, which explores themes of heritage, culture, and love. She leaves us with valuable advice for students managing a rheumatic disease and reflects on what she would tell her younger self when she was first diagnosed. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Sahara’s socials: Instagram: https://www.instagram.com/missbrainyblog?igsh=MXJsb3g5ZTV6ZTdkMA== Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #lawschool #poetry #writer #journalism Lire la vidéo Lire la vidéo 37:46 Episode 93 - One Size Does Not Fit All This week’s podcast episode features Carissa Peck, who discusses her journey with mixed connective tissue disorder, encompassing lupus and rheumatoid arthritis (RA). The conversation begins with Carissa’s introduction and background, followed by her diagnosis story, including initial symptoms and their progression. Carissa shares her experiences with various treatments, from medications to other treatments. She describes managing flare-ups and the impact of her condition on relationships, emphasizing communication and support. The discussion also touches on the challenges posed by the US healthcare system, particularly financial burdens and insurance issues. Carissa highlights lifestyle changes, such as diet and exercise, that have improved her well-being. Finally, she talks about her advocacy work on TikTok, sharing her condition with a broader community and offering advice to young people with similar experiences. Want to meet others with arthritis? Sign up for this month's call here: https://us02web.zoom.us/meeting/register/tZIofuihqTsiH9A_2WDfwZEu6BRh_CSJgMx9#/registration Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.linkedin.com/company/take-a-pain-check/ X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Carissa's socials Instagram: @_cawitha TikTok: @cawithaaa Growing Pains, Copyright, 2018, Alessia Cara #contentcreator #jointpain #spoonie #rheumatoidarthritis #chronicillness Lire la vidéo Lire la vidéo 48:50 Episode 75 - Rx for Success: Why Patient Partners Matter Join us on this week's episode on Take a Pain Check as Dawn Richards, diagnosed with rheumatoid arthritis, shares her incredible journey from diagnosis to clinical remission. She opens up about changing rheumatologists, managing methotrexate side effects, and the transformative impact of exercise. She discusses her life both as a researcher and being patient partner in research. Finally, she discusses her involvement with the Canadian Arthritis Network, CIHR IMHA and the Canadian Arthritis Patient Alliance. Be sure to like, subscribe and share this episode! https://arthritispatient.ca/tips-and-tricks-when-taking-methotrexate/ https://cihr-irsc.gc.ca/e/27297.html Dawn's socials: Twitter - @TO_dpr Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #patientcare #chronicpain #healthjourney #research Lire la vidéo Lire la vidéo 40:33 Episode 69 - The Good Days and the Bad Days On this week's episode of Take a Pain Check with your host Natasha, we delve into the world of Nikki Bhatti. Nikki bravely shares her personal journey living with rheumatoid arthritis - from the first instances of joint pain in her fingers and toes, to the evolution of her medication journey with her current medication called Actemra. Listen in as she discusses the social implications of managing arthritis, and dives deep into what it is like being a South Asian woman managing cultural expectations while grappling with her own health. Natasha and Nikki dive into the discussion on lifestyle changes. Nikki discusses her experience with gym visits and swimming, along with the adaptations she's had to make to her work schedule due to morning stiffness and flare-ups. Hear about her experiences with arthritic nodule surgery and how she navigates disability within the workplace. Lastly, Nikki highlights her significant contributions to arthritis research as a part of the APAB board at Arthritis Research Canada, including the creation of an educational video. Natasha and Nikki end off the episode by discussing how they met each other! Resources mentioned in the episode: https://youtu.be/ll0avFOq210 Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Nikki's socials: Instagram: strengthwithra Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #chronicillness #workout #southasian #vancouver Lire la vidéo Lire la vidéo 39:17 Episode 67 - The RA-lity of Lupus In honour of Canadian Mental Health Week and Lupus Awareness Month, tune in to this week’s episode as Krissy Stephenson, a successful business owner and chronic illness warrior, shares her journey of living with Rheumatoid Arthritis (RA) and Lupus. Krissy discusses the challenges of finding a good rheumatologist who understands the complexities of her conditions, her medication journey, and her experience with pregnancy and RA. Krissy also introduces us to the Spoon Theory, a powerful metaphor used by those with chronic illness to explain their limited energy each day. She talks about how she allocates responsibilities as a mother and entrepreneur and discusses her mental health journey with a therapist who also has Lupus. Join us as we explore Krissy’s inspiring story of perseverance, hope, and resilience, including her experience as a kindergarten teacher and her successful Direct Superior Hip Replacement surgery that changed her life. Don’t miss this week’s episode of Take a Pain Check. Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Krissy's socials: Instagram: @chronicallyillkrissy Growing Pains, Copyright, 2018, Alessia Cara #lupus #RA #chronicillness #EDS #therapy #spoontheory Lire la vidéo Lire la vidéo 37:53 Episode 56 - If You Don’t Use It, You’ll Lose It On this week’s episode, Christina Hepner talks about her symptoms that started when she was 19 in her sophomore year. Christina relates that she tried to hide her pain in university just to live a normal college life and used humour to cope with it for 1 whole year. However, after she returned from her summer break, she no longer could hide her disease from her friends who spoke about how much fun they had in the summer. Christina started bawling her eyes out and told her friends that she spent her time in so much pain and disclosed her arthritis diagnosis. She was lucky to have a great support system which helped her mental health. Christina discusses how her arthritis made her feel like she wasn’t herself most of the time. She gained weight, had knee surgery and dealt with depression. She mentions how she worked through those hurdles with physiotherapy, changing her mindset and implementing lifestyle changes such as weightlifting and eliminating certain inflammatory foods that she researched. Finally, the episode ends with Christina talking about her job in a non-profit organization for the visually impaired as a digital marketer and her current disease status being in remission. Check out Christina's socials: https://www.facebook.com/ChristinaHepnerMedia https://www.instagram.com/christina_hepner/ https://twitter.com/ChristinaHepner Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #advocate #nonprofit #marketing #weightlifting Lupus Lire la vidéo Lire la vidéo 43:35 Living Around Lupus Changed Me Forever | Ep.123 What happens when chronic illness impacts not just one person, but an entire family? In this episode of Take a Pain Check, Estela Mata shares her journey living with chronic pain since her teens, being diagnosed with rheumatoid arthritis, and supporting her sisters living with lupus while navigating her own health challenges. As President of Looms for Lupus, Estela has transformed lived experience into advocacy, community, and support for others navigating autoimmune disease and chronic illness. Together, we discuss the emotional reality of invisible illness, caregiving, grief, advocacy, mental health, and what it means to rebuild trust with your body after years of pain and uncertainty. This conversation is honest and deeply validating for anyone living with chronic illness, autoimmune disease, or chronic pain and for the people who love and support them. If you’ve ever felt dismissed, overwhelmed, isolated, or unseen in your health journey, this episode is for you. https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Estela's social's Twitter: https://twitter.com/Looms4Lupus YouTube Link: https://youtube.com/@looms4lupus136 Facebook link: https://www.facebook.com/Looms4Lupus Instagram link: www.instagram.com/looms4lupus Newsletter Link: Resources (looms4lupus.org) Website: Looms For Lupus - www.looms4lupus.org LinkedIn: https://www.linkedin.com/in/estela-mata-carcamo-00898230/ Facebook: facebook.com/estela.mata.18 Instagram: www.Instagram.com/estela_mata Twitter: https://twitter.com/estelamata Tik tok: www.tiktok.com/@estela.mata Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... #lupus #chronicillness #family #chronicdiseaseprevention Lire la vidéo Lire la vidéo 44:47 Facing The Storm | Ep. 111 What happens when you’re diagnosed with the same illness you once watched a friend silently suffer through? In this powerful episode of the Take a Pain Check Podcast, Natasha sits down with Macenzie Rebelo, who shares how Lupus reshaped her life, relationships, and sense of self. From juggling university and dating to confronting stigma and learning to speak up, Macenzie reveals the unfiltered truth behind living with a chronic illness and how writing became her rebellion. Don’t miss this raw, honest, and unexpectedly empowering conversation. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Our socials: ⁠https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #lupus #writerscommunity #Rheumaticdisease #Advocacy #Chronicillness Lire la vidéo Lire la vidéo 44:38 Episode 97 - Golfcarting to school In this episode of Take a Pain Check; Sharan Singh shares her journey of living with multiple chronic illnesses, including Lupus, Rheumatoid Arthritis, Scleroderma, and others. Sharan delves into her diagnosis story, detailing the symptoms that led her to seek help, her experiences with Western and regenerative medicine, and the impact these treatments have had on her quality of life. She also opens up about the challenges of maintaining relationships, navigating academics, and undergoing a hip replacement, while emphasizing the importance of mental health and lifestyle changes in managing chronic illness. Additionally, Sharan discusses her path to becoming a physician assistant and her advocacy work on TikTok, where she shares her story to educate and support others in the chronic illness community. Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: / takeapaincheck_ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck?mx=2 Likedin: / take-a-pain-check Sharan's socials: Tik Tok - @sharan.s, Instagram - @ssharann_ Growing Pains, Copyright, 2018, Alessia Cara #lupus #physicianassistant #arthritis #scleroderma Lire la vidéo Lire la vidéo 37:46 Episode 93 - One Size Does Not Fit All This week’s podcast episode features Carissa Peck, who discusses her journey with mixed connective tissue disorder, encompassing lupus and rheumatoid arthritis (RA). The conversation begins with Carissa’s introduction and background, followed by her diagnosis story, including initial symptoms and their progression. Carissa shares her experiences with various treatments, from medications to other treatments. She describes managing flare-ups and the impact of her condition on relationships, emphasizing communication and support. The discussion also touches on the challenges posed by the US healthcare system, particularly financial burdens and insurance issues. Carissa highlights lifestyle changes, such as diet and exercise, that have improved her well-being. Finally, she talks about her advocacy work on TikTok, sharing her condition with a broader community and offering advice to young people with similar experiences. Want to meet others with arthritis? Sign up for this month's call here: https://us02web.zoom.us/meeting/register/tZIofuihqTsiH9A_2WDfwZEu6BRh_CSJgMx9#/registration Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.linkedin.com/company/take-a-pain-check/ X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Carissa's socials Instagram: @_cawitha TikTok: @cawithaaa Growing Pains, Copyright, 2018, Alessia Cara #contentcreator #jointpain #spoonie #rheumatoidarthritis #chronicillness Lire la vidéo Lire la vidéo 47:53 Episode 92 - Why me? In this episode of Take a Pain Check, Amanda Chay discusses her journey with lupus and Sjogren's, sharing the challenges of getting diagnosed, advocating for herself, and the emotional impact of learning about and accepting her chronic illnesses. She highlights the importance of a strong support system, effective doctor-patient relationships, and the role of medications. Amanda also talks about maintaining an active lifestyle, the significant impact of diet on her symptoms, and managing her mental health. She reflects on the unique experience of being both a lupus patient and a mother to a daughter with lupus, offering advice to others in similar situations. Additionally, she discusses her book, "The Girlfriend’s Guide to Lupus," and offers advice to those newly diagnosed with a chronic condition and to parents who, like her, have a child with the same illness. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check Amanda's socials Instagram: @amandaechay Growing Pains, Copyright, 2018, Alessia Cara #parent #jointpain #genetics #lupus #lupusawarenessmonth #lupuswarrior Lire la vidéo Lire la vidéo 44:22 Episode 91 - Riding the Chronic Illness Rollercoaster in the Dark In this episode of Take a Pain Check, host Natasha introduces Emily Wahl, who bravely shares her journey living with Juvenile Rheumatoid Arthritis (JRA), Sjogren’s syndrome, Lupus, Pulmonary Arterial Hypertension, and FSGS. Emily candidly discusses her diagnosis story, recounting childhood experiences with arthritis and the challenges of managing various medications. She reflects on how her health conditions influenced her career choices and relationships, especially during pregnancy. Emily advocates for patients like herself, emphasizing the importance of a supportive care team and sharing coping strategies for the emotional weight of new diagnoses. Additionally, she offers insights into navigating pregnancy with chronic illnesses and provides valuable advice for managing multiple conditions effectively. Join our peer support group here for this month's session in May: https://us02web.zoom.us/meeting/register/tZ0tdemsrj8oHtwosUn8w7ZcwHxdGYZPDEDv#/registration Emily's socials: @healmewholeheartedly www.healmewholeheartedly.com Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: ⁠https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check/?originalSubdomain=ca Growing Pains, Copyright, 2018, Alessia Cara #lupus #sjogrenssyndrome #chronicillness #chronicpain #arthritis Lire la vidéo Lire la vidéo 45:25 Episode 88 - The Story of Us (Lupus’ Version): How Taylor Swift Paid my Tuition In this week's episode of Take a Pain Check, we welcome Ayesha as our special guest, sharing her incredible journey of diagnosis, advocacy, and touching moments of kindness. Ayesha recounts her initial symptoms that led her to seek medical help, navigating a complex medication regimen, and the ups and downs of her health journey. She reflects on her determination during her undergraduate years, the challenges of planning a wedding while managing her health, and a difficult experience in the emergency room. Ayesha also shares her memorable experience attending Taylor Swift's Eras tour, even in a wheelchair. During the episode, Ayesha updates us on her current health status, medication routine, and mental well-being, offering hope and valuable insights to listeners. She shares Taylor Swift's response to her Tumblr post, and how she met her in person. The conversation shifts to Ayesha's TikTok journey, where she discusses how she creates 'Get Ready with Me' videos, and she discusses her experience living with lupus, highlighting moments of inspiration and the positive impact on her community. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠https://www.instagram.com/takeapaincheck_/ X: ⁠ https://twitter.com/takeapaincheck Tiktok: ⁠https://www.tiktok.com/@takeapainchec...⁠ Ayesha's socials: Tiktok: @ayeshaakhurram Instagram: @ayeshakhurram Growing Pains, Copyright, 2018, Alessia Cara #taylorswift #makeup #lupus #southasianwedding #getreadywithme Lire la vidéo Lire la vidéo 46:01 Episode 82 - Putting the Pain Puzzle Together to Find my Diagnosis In this episode of Take a Pain Check, Isabel Dukes opens up about her personal journey dealing with JIA, Lupus, Antiphospholipid Antibody Syndrome, ADHD, and Dyslexia. She shares candid reflections on navigating the challenges of high school, dating in university, and the significant transition to adult life, including moving in with her partner. The episode delves into her medication journey and the evolving accommodations she has navigated since her youth. Isabel discusses the critical role of her support system during high school and the unique hurdles encountered in transitioning from pediatric to adult care. As an industrial designer, she discusses her commitment to accessibility. Not only that, she talks about her experience at arthritis camp, the @ArthritisSociety Walk, volunteering with Take a Pain Check and her active participation in the Make Rheum for Youth project by TAPC and @CAPA-arthritispatient . The episode concludes with practical advice on advocacy, emphasizing the importance of self-advocacy and community engagement for those navigating health challenges. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Isabel's socials: Instagram: @isabel_dukes Linkedin: https://www.linkedin.com/in/isabel-dukes-bb5609200/ Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #lupus #arthritis #chronicillness #designer #relationship Sjogrens Lire la vidéo Lire la vidéo 47:53 Episode 92 - Why me? In this episode of Take a Pain Check, Amanda Chay discusses her journey with lupus and Sjogren's, sharing the challenges of getting diagnosed, advocating for herself, and the emotional impact of learning about and accepting her chronic illnesses. She highlights the importance of a strong support system, effective doctor-patient relationships, and the role of medications. Amanda also talks about maintaining an active lifestyle, the significant impact of diet on her symptoms, and managing her mental health. She reflects on the unique experience of being both a lupus patient and a mother to a daughter with lupus, offering advice to others in similar situations. Additionally, she discusses her book, "The Girlfriend’s Guide to Lupus," and offers advice to those newly diagnosed with a chronic condition and to parents who, like her, have a child with the same illness. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check Amanda's socials Instagram: @amandaechay Growing Pains, Copyright, 2018, Alessia Cara #parent #jointpain #genetics #lupus #lupusawarenessmonth #lupuswarrior Lire la vidéo Lire la vidéo 44:22 Episode 91 - Riding the Chronic Illness Rollercoaster in the Dark In this episode of Take a Pain Check, host Natasha introduces Emily Wahl, who bravely shares her journey living with Juvenile Rheumatoid Arthritis (JRA), Sjogren’s syndrome, Lupus, Pulmonary Arterial Hypertension, and FSGS. Emily candidly discusses her diagnosis story, recounting childhood experiences with arthritis and the challenges of managing various medications. She reflects on how her health conditions influenced her career choices and relationships, especially during pregnancy. Emily advocates for patients like herself, emphasizing the importance of a supportive care team and sharing coping strategies for the emotional weight of new diagnoses. Additionally, she offers insights into navigating pregnancy with chronic illnesses and provides valuable advice for managing multiple conditions effectively. Join our peer support group here for this month's session in May: https://us02web.zoom.us/meeting/register/tZ0tdemsrj8oHtwosUn8w7ZcwHxdGYZPDEDv#/registration Emily's socials: @healmewholeheartedly www.healmewholeheartedly.com Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: ⁠https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check/?originalSubdomain=ca Growing Pains, Copyright, 2018, Alessia Cara #lupus #sjogrenssyndrome #chronicillness #chronicpain #arthritis Lire la vidéo Lire la vidéo 41:37 Episode 66 - Resilience Strikes a Chord: A 13 Year Old’s Story Join host Natasha on this week's heartwarming episode of Take a Pain Check, as she sits down with Isabella, a remarkable 13-year-old girl who shares her inspiring journey with Lupus, Juvenile Idiopathic Arthritis, and Sjogren’s. Isabella's story began during the pandemic, when she experienced excruciating pain in her elbows at the tender age of 9. Initially hesitant to see a doctor, she attributed the pain to her extracurricular activities. However, after her hands turned purple due to Raynaud's, she finally sought medical help. In this episode, Natasha and Isabella discuss the challenges faced by vulnerable patients and their families during the diagnosis process. Isabella shares how she was dismissed in the clinical setting, but her resilience and determination led her to make the necessary lifestyle changes. She talks about how she embarked on a medication journey which had its ups and down. She also discusses her journey with using mobility aids from a young age. Despite the obstacles, Isabella's unwavering spirit shines through, as she adapted to homeschooling with her sister and found support from her family and close friends. Isabella also shares how she used music and humor to cope with her pain, despite the challenges with her hands when she played piano. Her advocacy journey and involvement with the Arthritis Society, including attending their yearly camp and kids' programs, are also discussed. Isabella's story of hope and perseverance will inspire you to live life to the fullest, even in the face of adversity. So, don't miss this episode of Take a Pain Check, and join Isabella on her journey towards living her best life! Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #lupus #sjogrens #kidsgetarthritis #homeschooling #piano #surgery Lire la vidéo Lire la vidéo 41:05 Episode 19 - Chronic Genie We got the pleasure to interview Ingrid He this week on Take a Pain Check. We cover an abundance of interesting topics such as the struggle to obtain a diagnosis of Sjogren's Syndrome and this rheumatic disease once thought as a mental illness from several doctors. Throughout this episode, we learn about advocacy. Join us as we learn about the app Ingrid created to help herself and others suffering from Sjogren’s and other chronic illnesses! Check out Ingrid's Social Media: Instagram: https://www.instagram.com/sjogrenstracker/ Facebook: https://www.facebook.com/SjogrensTracker Website: https://www.takeapaincheck.ca/ Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck... Tiktok: https://www.tiktok.com/@takeapainchec... Growing Pains, Copyright, 2018, Alessia Cara #apps #technology #health #sjogren's #disease Lire la vidéo Lire la vidéo 36:02 Episode 32 - The Apple That Couldn’t Have Fallen Closer To The Tree Kristen joins Take a Pain Check this week for a conversation about the impact of therapy and behaviour. Kristen was lucky with her diagnosis, Rheumatoid Arthritis and Sjogren's, surprising right? The discussion leads into the topic of friends and family support and jumps right into answering the big question of "how do we as a patient make the right decision for our medications?". Well you might be able to figure that out, if you stay tuned until the end of the episode! Check out Kristen's social media channels: @WarriorsMoveMountains & @ConnectBehavioralCoaching Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psychology #behaviour #sjogrens #rheumatoidarthritis #awareness #support #coaching #therapy Ankylosing Spondylitis Lire la vidéo Lire la vidéo 51:57 Let's Get Loud for AS | Ep. 115 At 28, Michael Santillo was diagnosed with Ankylosing Spondylitis after years of unexplained pain that made even simple tasks like putting on socks or driving which became nearly impossible. Instead of letting it define him, he turned his journey into an inspiring mission: founding the annual “Let’s Get Loud for AS” gala. In this episode of Take a Pain Check, we talk about: - His road to diagnosis and the symptoms he faced - The mental and physical health challenges that followed - How AS impacted his relationships and love life - The creation and growth of “Let’s Get Loud for AS” Whether you’re living with AS, supporting someone who is, or just looking for inspiration, Michael’s story is a reminder that even in life’s toughest moments, there’s room to create change. Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Guest socials: Instagram: mmichael.ss and letsgetloudforas #podcast #ankylosingspondylitis #interview #autoimmunediseases #chronicillness Lire la vidéo Lire la vidéo 40:51 Too Real: Reacting To Fibro and the New Me | Ep. 113 In this episode of Take a Pain Check, Maggie Douglas opens up about her complex journey living with Juvenile Idiopathic Arthritis, Ankylosing Spondylitis, Fibromyalgia, and PCOS. She walks us through the physical and emotional challenges of early symptoms, delayed diagnosis, and navigating the transition from pediatric to adult rheumatology care. This week also features something a little different: a conversation about the short film Fibro and the New Me. Maggie shares her reactions to the portrayal of fibromyalgia on screen, reflects on the importance of accurate representation, and unpacks how media can both validate and educate. From support systems to self-discovery, this episode is a candid exploration of resilience, identity, and what it really means to find yourself in the midst of chronic illness. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. Maggie's socials: IG - mdouglas0423, FB/Linkedin - Maggie Douglas Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #ankylosingspondylitis #Fibromyalgia #Fibromyalgiaawareness #Rheumaticdisease #Rheumaticdiseaseawareness #Advocacy #Chronicillness #Chronicillnessawareness #healthpodcast Lire la vidéo Lire la vidéo 45:00 Episode 87 - Empowering Every Body: Accessible Fitness with Alex Levine Fitness LLC In this episode of Take a Pain Check podcast, we delve into the life of Alexander Levine, unpacking his journey with Ankylosing Spondylitis (AS) from diagnosis to shoulder surgery and beyond. Alex shares the story of his diagnosis, detailing life before AS and the challenges he faced in his career, particularly in the health and fitness industry. We explore the knowledge gap between fitness and AS, how his perspective on fitness shifted post-diagnosis, and the impact of physical therapy on his symptoms. Alex also opens up about his shoulder surgery, discussing the pain and recovery process. He sheds light on how friendships and relationships evolved, the support he received from loved ones, and the pivotal role of the chronic illness community. He also talks about managing a family and newborn with a diagnosis. As a fitness enthusiast and owner of a virtual personal training business, Alex shares insights into his unique training style tailored for those with AS, addressing the mental blocks and challenges that come with chronic illness. The episode wraps up with valuable advice from Alex on getting started in the fitness industry with a chronic condition and changing mindsets for youth already interested in fitness. Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month:https://us02web.zoom.us/meeting/register/tZMrduGuqj0uHdDgcBicDuG0TBjtvcnGwGkI#/registration Join our campaign at a landmark near you for World Young Rheumatic Disease Day: https://www.takeapaincheck.com/light-it-blue Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapaincheck_/ X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Alex's socials: Youtube: @AlexLevineFitness Instagram: @alexlevinefitness Tiktok: @alexlevinefitness Growing Pains, Copyright, 2018, Alessia Cara #ankylosingspondylitis #fitness #personaltrainer #health Lire la vidéo Lire la vidéo 57:32 Episode 71 - Sculpting a New Path from the Youth System: Rural Roots to Artistic Discovery In this week's episode of Take a Pain Check, prepare to be inspired as host Natasha welcomes the Sharona Franklin, an artist from Rural British Columbia. Sharona's story, despite grappling with multiple diagnoses, such as SJIA, AS, IBD, Pericarditis, and Vasculitis, transforms into a remarkable journey of unwavering resilience and strength. Natasha and Sharona dive deep into the profound impact of childhood struggles, the intricate complexities of the youth care system, the unique experiences of rural living, the challenges of dropping out of school, mental health battles, and navigating a unique family dynamic as one of eight siblings. Sharona fearlessly shares her early years, marked by the agonizing pain of being unable to eat. The conversation takes an intimate turn as Sharona vulnerably unveils the challenges she faced growing up within the youth care system, grappling with the involvement of social workers and lawyers in her life, and the far-reaching impact on both herself and her siblings. Despite these obstacles, Sharona discovered a wellspring of solace and empowerment through her passion for art. Natasha and Sharona embark on an exploration of the power of artistic expression, as Sharona recounts her early forays into creativity as a means to escape the confines of her circumstances. They delve into the judgments she faced due to perceptions surrounding having an assistant when doing art, and how she harnessed her lived experiences to create art that illuminates the unseen challenges of living with chronic illness. Lastly, Sharona ends off the episode raising awareness and fostering understanding, breaking down barriers and championing the voices of those facing similar struggles. Sharona's socials: Instagram: @hot.crip, @disabled_personals, @paid.technologies Articles to learn more about Sharona's journey: https://www.artbasel.com/stories/sharona-franklin-bioethics-disability-activism-statements-art-basel-2023?lang=en https://luttecollective.com/featured-artists/sharona-franklin Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ruralhealthcare #ankylosingspondylitis #arthritis #disabled #artistic #rheumatology Lire la vidéo Lire la vidéo 34:52 Episode 62: Journaling Through Ankylosing Spondylitis On this week’s episode, Chris Pudlak talks about his journey with Ankylosing Spondylitis. Diagnosed at age 36, Chris struggled to lift up his kids or even play with them because of his arthritis pain. Since day one, he started journaling in which he intertwined his engineering skills to track his symptoms. He discusses lifestyle changes he implemented and how he tracked his symptoms. Not only that, Natasha and Chris discuss workplace accommodations such as a height adjusting desks and a different type of handshake. Chris also gives tips on how to cycle and run with ergonomic equipment. He talks about the impact of physiotherapy on his arthritis. Lastly, Chris talks abut his book ” Achieving Wellness Through Arthritis” and his involvement in Arthritis Research Canada. Check our Chris' Socials: Twitter and Facebook: @ChrisPudlak Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ankylosingspondylitis #rheumaticdisease #advocate ##rheumatology #workout Lire la vidéo Lire la vidéo 48:05 Episode 50 - Embracing My Disability “Don’t say you're disabled” they said. These were comments Anna Samson received when they were using mobility aids to help them get through their daily tasks while living with a chronic illness. This week on Take a Pain Check, Anna Samson comes on the podcast to to talk about their life with Ankylosing Spondylitis and Fibromyalgia as a 23 year old. They start off the conversation by talking about their initial symptoms and explaining the 4 year wait to get a diagnosis. After receiving a diagnosis, Anna talks about their experience finding resources to help them understand their own conditions. Moreover, Natasha and Anna discuss the benefits of physiotherapy. The conversation progresses to talking about disability in different settings, specifically the blue and red seats on the TTC subway. Throughout Anna’s journey, they learned how to advocate for themselves in a health care setting and how they become more confident. Not only did they have to talk about their symptoms, but they had to “get better at talking to people.” Finally, Anna explains their involvement in Take a Pain Check as an ambassador, as well as their work in Health Union. Next Joint Chat Rheum Session on Tuesday, August 16th at 7pm EDT: https://us02web.zoom.us/meeting/register/tZUsc-CvqDMtEtdQYezlNi8gJhkW5roy5_TK Self-Advocacy Live: https://www.instagram.com/tv/Cb5sHwVIC8P/ Makeup Live: https://www.instagram.com/tv/CaQI5eBKKTG/ Health Union: https://www.instagram.com/healthunion/ Check out Anna's socials: Instagram @chronicallyillxo TikTok @chronicallyillxo Twitter: @chronicallyillx Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #mobility #disability #ankylosingspondylitis #fibromyalgia #rheumatology #chronicillness #advocate #physiotherapy Lire la vidéo Lire la vidéo 34:16 Episode 22 - Skateboarding into a Diagnosis Today, we have Spencer Hamilton talk about his story of being diagnosed in years, being a pro skateboarder and changing his lifestyle to one that suits his needs. Spencer talks about how he managed to remain a pro skateboarder even though his ankylosing spondylitis diagnosis took quite a while to diagnose. Check out his social media: @spencerhamilton Check out our website! Website: https://www.takeapaincheck.ca/ Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #skateboarding #diagnosis #journey #spencerhamilton Lire la vidéo Lire la vidéo 41:00 Episode 8 - Twin Telepathy Have you ever met twins with the same chronic disease? This week we have Makayla and Carly Fox come on our podcast to talk about Ankylosing spondylitis, Make a Wish Foundation, moving out and living their lives with JIA. Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Makayla and Carly! Carly's Tiktok: https://vm.tiktok.com/ZMe9mpueD/ Makayla's Instagram: https://www.instagram.com/makaylakfox/ Carly's Instagram: https://www.instagram.com/itscarlyfox/ Carly's LinkedIn: https://www.linkedin.com/in/carlysteelefox You can also stream us on Spotify, Apple and Google Podcasts: https://anchor.fm/takeapaincheck Make a Wish: https://makeawish.ca/ Life spin: https://www.lifespin.org/ Carly on Make a Wish the article: https://lfpress.com/news/local-news/lifespin-blown-away-by-generosity-of-young-woman-who-forsakes-make-a-wish-cruise-to-give-to-poor Download the iCanCope app: https://apps.apple.com/us/app/icancope-with-pain/id1345697088?app=itunes&ign-mpt=uo%3D4 Read about how the app impacted Natasha here: https://arthritis.ca/about-us/what-we-do/research/research-impact-snapshots-en/can-an-app-help-teens-manage-arthritis-pain Growing Pains, Copyright, 2018, Alessia Cara Scleroderma Lire la vidéo Lire la vidéo 34:28 Episode 36 - Feeling Numb In The Freezer Section On this week’s episode, Natasha and Katie converse about what it’s like to live with Scleroderma and Raynaud's. Her diagnosis story went from rheumatologists thinking she was making up her symptoms, to Katie now being under remission. Katie is also a registered nurse who is passionate women’s health. She believes that her story has helped her become a more understanding nurse to her patients. Additionally, the conversation covers Katie’s life as a high school student on a dance team, the psychological aspect of giving yourself a needle and discusses grip strength tips. Stay tuned for our exciting podcast game on our Instagram this week! Katie's socials: Instagram: @kspilkz Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #arthritis #nurse #Cleveland #sclerodermaawareness #scleroderma Psoriatic Arthritis Lire la vidéo Lire la vidéo 56:11 Living This Diagnosis Together | Ep.118 What happens when both a mother and daughter are diagnosed with psoriatic arthritis? In today’s episode, we sit down with USPORTS basketball athlete, advocate, and STEM Without Limits scholar, McKinley Penninga, and her mom Lisa Penninga, to talk about navigating life as a family living with the same chronic illness. Diagnosed years apart, McKinley and Lisa share: - how psoriatic arthritis shaped their mother-daughter bond - the early signs Lisa saw in McKinley based on her own lived experience - what it was like recognizing symptoms she personally knew all too well - how both supported each other through flare days, school challenges, and identity changes McKinley opens up about staying in basketball, balancing varsity-level training with chronic pain, and proving that invisible illness doesn’t define your athletic ability. Lisa shares the parent perspective while managing her own health needs — something rarely talked about in chronic illness stories. Together, they discuss advocacy, youth voice in healthcare, the STEM Without Limits Scholarship, and how their shared experiences are shaping the healthcare provider McKinley hopes to become. Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. #athlete #psoriaticarthritis #rheumaticdiseases #health #family Lire la vidéo Lire la vidéo 43:21 Episode 83 - Finding Purpose Beyond the Pain On this week’s episode on Take a Pain Check, Kyle Brooks talks about his diagnosis journey and about navigating the challenges of JIA and psoriasis. From physio to a two-year wait for answers, Kyle shares his daily battles with symptoms and medications. We delve into the social aspect, addressing bullying, handling negative comments, and finding resilience. Kyle opens up about school life, securing accommodations, and fostering a positive relationship with his general practitioner. Not only that, this episode talks about contrasts in healthcare systems between England and Canada. Finally, we discuss Kyle’s involvement in awareness initiatives, from live streams to TikTok, and his passion for the arts which adds a unique perspective. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Kyle's socials: Instagram: @kyle_b.idk TikTok: @teen.with.arthritis Youtube: @ChefJisoo Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psoriasis #arthritis #chronicillness #chronicpain #england Lire la vidéo Lire la vidéo 41:27 Episode 80 - More Than DNA: Psoriatic Arthritis Changed the Dynamic Between My Siblings and Me Join us on this week’s episode of Take a Pain Check as Brookie Zarb shares her journey with Psoriatic Arthritis (PsA). From the initial symptoms to facing healthcare practitioners, Brookie discusses her diagnosis, medication experiences, and their impact on her life. She explores how PsA influenced her high school years, friendships, and extracurricular activities. She dives into the dynamics of her family, navigating the emotional rollercoaster of sibling diagnoses. Brookie discusses the Australian healthcare system, her creative coping mechanisms during flares, and her role as a Take a Pain Check ambassador. Hear her valuable advice for those dealing with rheumatic diseases in high school and those hesitant about getting involved with organizations. Like and subscribe! Resources: https://msk.org.au/ Brookie's socials: Instagram: @brookie.zarbarooni Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psoriaticarthritis #chronicillness #juvenilearthritis #australia #arthritis #rheumatology Lire la vidéo Lire la vidéo 37:20 Episode 61 - Alli The Arthritis Advocate Alli Buchanan joins host, Natasha, on this week’s episode on Take a Pain Check to discuss her diagnosis with Psoriatic Arthritis (PsA). Alli’s starts by talking about her diagnosis journey and how it took her 10 years to get diagnosed. Physicians were aware of Alli’s family history with PsA but did not take that into account when her symptoms progressed. Because of Alli’s mom’s experience with PsA, Alli discusses how her mom was her biggest advocate as she spent a lot of time reliving her own journey. The conversation dives into the importance of talking about arthritis and its lack of representation in the science curriculum. Not only that, Alli talks about the medications she went on and how this led her to develop Toxic Shock Syndrome. She discusses that a medication that may work today, but it may not work tomorrow. She talks about her accommodations ,such as having transportation and picking her university courses before other people. Additionally, Alli mentions how she balances her social life, academics and arthritis while going to college and how her friends have been able to support her. Finally, they end off the episode by talking about Alli’s arthritis Instagram page and a recent quiz she made to see how much her friends knew about her arthritis. Quiz on Alli's friends: https://www.instagram.com/reel/CljWiTljOeV/?igshid=YmMyMTA2M2Y= Check our Alli's Socials: Instagram: @alli.arthritis Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psoriaticarthritis #psoriasis #advocate #newyork #rheumatology Systemic Juvenile Idiopathic Arthritis Lire la vidéo Lire la vidéo 50:54 From Hospital Bed to Barbell | Ep. 117 He could barely move at 15 and now he’s redefining strength. When doctors told Zac Spinosa he might never train again, he refused to accept it. Diagnosed with Systemic Juvenile Idiopathic Arthritis and Macrophage Activation Syndrome, he refused to let that be the end of his story. Instead, he built Forge Fitness, a community where disability doesn’t mean limitation and pain becomes power. In this episode of Take a Pain Check, Zac opens up about hitting rock bottom and choosing to fight back, building a gym that truly includes people with chronic illness, the mindset shift that changed everything, and what strength really means when your body is working against you. If you’ve ever been told you can’t, this episode will make you believe you can. Watch now, get inspired, and rethink what strength looks like. Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... Don't forget to like, comment, and subscribe for more episodes. Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Zac's socials: @ZacTheArthritisCoach #fitness #gymmotivation #chronicillness #fitnessgoals #arthritis Lire la vidéo Lire la vidéo 57:32 Episode 71 - Sculpting a New Path from the Youth System: Rural Roots to Artistic Discovery In this week's episode of Take a Pain Check, prepare to be inspired as host Natasha welcomes the Sharona Franklin, an artist from Rural British Columbia. Sharona's story, despite grappling with multiple diagnoses, such as SJIA, AS, IBD, Pericarditis, and Vasculitis, transforms into a remarkable journey of unwavering resilience and strength. Natasha and Sharona dive deep into the profound impact of childhood struggles, the intricate complexities of the youth care system, the unique experiences of rural living, the challenges of dropping out of school, mental health battles, and navigating a unique family dynamic as one of eight siblings. Sharona fearlessly shares her early years, marked by the agonizing pain of being unable to eat. The conversation takes an intimate turn as Sharona vulnerably unveils the challenges she faced growing up within the youth care system, grappling with the involvement of social workers and lawyers in her life, and the far-reaching impact on both herself and her siblings. Despite these obstacles, Sharona discovered a wellspring of solace and empowerment through her passion for art. Natasha and Sharona embark on an exploration of the power of artistic expression, as Sharona recounts her early forays into creativity as a means to escape the confines of her circumstances. They delve into the judgments she faced due to perceptions surrounding having an assistant when doing art, and how she harnessed her lived experiences to create art that illuminates the unseen challenges of living with chronic illness. Lastly, Sharona ends off the episode raising awareness and fostering understanding, breaking down barriers and championing the voices of those facing similar struggles. Sharona's socials: Instagram: @hot.crip, @disabled_personals, @paid.technologies Articles to learn more about Sharona's journey: https://www.artbasel.com/stories/sharona-franklin-bioethics-disability-activism-statements-art-basel-2023?lang=en https://luttecollective.com/featured-artists/sharona-franklin Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ruralhealthcare #ankylosingspondylitis #arthritis #disabled #artistic #rheumatology Ehlers-Danlos Syndrome Lire la vidéo Lire la vidéo 46:57 2024 STEM Without Limits Scholar | Ep. 101 In this week’s episode of Take a Pain Check, Kate Bourne shares her powerful journey with Ehlers-Danlos Syndrome (EDS), discussing the 12-year delay in her diagnosis and the profound impact it had on her confidence, mobility, and academic life. Kate reflects on the emotional toll of not having answers for so long, navigating school and daily life with unexplained symptoms. She also highlights her passion for research, focusing on anesthetic resistance in EDS patients and the relationship between EDS and POTS, with the goal of improving healthcare practices for those affected by these conditions. As a 2024 recipient of the STEM Without Limits scholarship, Kate shares how she plans to use the funds to further her academic and research endeavors, offering advice to young adults about finding their career paths. Apply to our scholarship today: https://www.takeapaincheck.com/scholarship Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://www.instagram.com/takeapaincheck_/ Likedin: https://www.linkedin.com/company/take-a-pain-check/ Kate's socials: Instagram and X: @katebournebsc Growing Pains, Copyright, 2018, Alessia Cara #pots #arthritis #md #medicine #researcher Lire la vidéo Lire la vidéo 46:43 Episode 63 - Dateability On this week’s episode on Take a Pain Check, Jacqueline and Alexa Child come on the podcast to talk about their own personal experience of living with a chronic illness and being a sister of someone who has a chronic illness, respectively. Jacqueline starts off by discussing her diagnosis journey with Ehlers-Danlos Syndrome and other chronic illnesses. She talks about bad joint and muscle pain, having a butterfly rash, experiencing sensitivity to the sun, and dealing with GI symptoms that led her to seek help from a medical professional. On the other hand, Alexa discusses how she was 3000 miles away for law school, and she started off not really understanding what Jacqueline was dealing with. But once she truly learned more about it, it changed her as a person and gave her a unique perspective. Growing up in Telluride, a ski resort, there were no hospitals nearby and no specialist nearby so Jacqueline discusses her access to care barriers. Alexa and Jacqueline discuss their lives’ living together and how they became more mature than others around them as they had different lived experiences. Jacqueline talks about the difficulties being honest with Alexa about her symptoms as it’s hard a challenge to ask for help. Moreover, Jacqueline talks about her heart surgery after being born with a congenital heart defect at age 25. They end off the episode by talking about Dateability, a dating app for the chronically ill and disabled. Dateability was made based on the lived experiences of Jacqueline’s dating life and constant rejections. They talk about how the app works, their future goals for the app and how they hope to connect this ever growing community. Dateability: https://info.dateabilityapp.com/ Jacqueline and Alexa's socials: @dateabilityapp @jacquelineechild @alexabchild Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ehlersdanlos #rheumatology #dating #datingapps #relationship #siblings Fibromyalgia Lire la vidéo Lire la vidéo 40:51 Too Real: Reacting To Fibro and the New Me | Ep. 113 In this episode of Take a Pain Check, Maggie Douglas opens up about her complex journey living with Juvenile Idiopathic Arthritis, Ankylosing Spondylitis, Fibromyalgia, and PCOS. She walks us through the physical and emotional challenges of early symptoms, delayed diagnosis, and navigating the transition from pediatric to adult rheumatology care. This week also features something a little different: a conversation about the short film Fibro and the New Me. Maggie shares her reactions to the portrayal of fibromyalgia on screen, reflects on the importance of accurate representation, and unpacks how media can both validate and educate. From support systems to self-discovery, this episode is a candid exploration of resilience, identity, and what it really means to find yourself in the midst of chronic illness. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. Maggie's socials: IG - mdouglas0423, FB/Linkedin - Maggie Douglas Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #ankylosingspondylitis #Fibromyalgia #Fibromyalgiaawareness #Rheumaticdisease #Rheumaticdiseaseawareness #Advocacy #Chronicillness #Chronicillnessawareness #healthpodcast Lire la vidéo Lire la vidéo 46:28 Episode 65 - Beyond the White Coat: Empowerment in Patient Partnerships In this week's episode of Take a Pain Check, Natasha welcomes Cassidy Bradley, a medical student at Dalhousie University, who bravely shares her journey with Fibromyalgia and POTS. Cassidy's story starts with her symptoms emerging during her time as a national-level speed skater, eventually leading to hip surgery. She discusses her mental health struggles and the benefits of therapy in coping with chronic illness, as well as accepting her disability and navigating accommodations in medical school. Cassidy opens up about the challenges she has faced with hip surgery, physiotherapy, and managing fibromyalgia and POTS, including temperature sensitivity and allodynia. She shares the adjustments she has made, such as using a heated blanket and wearing braces. Additionally, she highlights her advocacy work as a patient partner in research, advocating for the patient voice and aligning research with patient needs and values, along with Natasha who shares her own patient partner experience. Cassidy also shares her positive experiences at Brigadoon Village, a camp for children with chronic illnesses, where she found support from counselors and fellow campers. Don't miss this insightful episode as Cassidy Bradley shares her inspiring journey on Take a Pain Check! Cassidy's socials: Twitter and Instagram: @Cassidybradley_ Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #fibromyalgia #medicalstudent #dalhousie #speedskater #rheumatology #pots Myositis Lire la vidéo Lire la vidéo 45:51 Episode 99 - Redefining Strength with Polymyositis In this episode of Take a Pain Check, we sit down with Shanesha Scott, who shares her inspiring journey with polymyositis. Shanesha opens up about her diagnosis, treatment challenges, and how she navigates the emotional and physical changes brought on by her condition. We discuss her work as an industrial and organizational psychologist and the impact of workplace dynamics on employee morale and success. Shanesha also talks about her two books, When I Got Sick – A Story of Tragedy & Triumph and Birthing the Leader Within You, offering advice on balancing health, career, and personal growth. Don’t miss this empowering conversation! Join our joint chat rheum: https://us02web.zoom.us/meeting/register/tZMof-mrqjkqEt22sWtGUDMIjLuRKXAjFWjY Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Shanesha's socials: Instagram: Shanesha__ TikTok: Beauty4RMAshes Facebook: Shanesha & Beauty 4RM Ashes Growing Pains, Copyright, 2018, Alessia Cara #autoimmuneawareness #Polymyositis #chronicillness #workplacewellness #leadership