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Les Animaux du TAPC Que sont les animaux du TAPC ? Les animaux du Take a Pain Check ont été créés pour égayer la vie des jeunes atteints de maladies rhumatismales. Nous avons commencé avec Rheumy, l'ours rhumatologue, qui représentait toutes sortes de maladies rhumatismales. Après avoir reçu un tel accueil de la part de notre communauté lors de la présentation de Rheumy en novembre 2023, nous avons décidé d'ajouter d'autres animaux à la famille TAPC. Le deuxième animal que nous avons présenté était Lupie, le lama lupique, présenté en avant-première lors de la conférence de l'American College of Rheumatology en novembre 2024. Ensuite, nous avons présenté Dermie, le canard dermatomyacite en mai 2025, lors du tout premier événement Take a Pain Check en présentiel. Rheumy l'ours Rhumatologue Hi! My name is Rheumy... And I'm your new Roomie! I'm your personal pain bear , because the pain associated with chronic illnesses can be hard for a person to bear . But whether you have a chronic condition or you're just looking to support TAPC, I hope I can be a support for you when you're feeling under the weather . Lupie le Lama Lupus Hi! My name is Lupie... And I'm your new Lively Llama Friend! I'll be your personal pain llama , here to help carry the load because living with Lupus can be tough. When you need some support I'll be here for you , it's no prob-llama! Whether you're battling with flares or looking for some support , I hope I can "Lup-lift" you when you're feeling drained or wooly-headed . Dermie le Canard de Dermatomyosite Hi! My name is Dermie... And I'm your new Dependable Duck! I understand that living with Dermatomyositis can feel like swimming against the current. Whether your muscles feel weak or your skin's acting up, I'll be floating right by your side . So when your feathers get ruffled , I'll be your soft, determined friend to lean on. Let's ride out the waves together, one waddle at a time! Lupie le Lama Lupus Hi! My name is Dermie... And I'm your new Dependable Duck! I understand that living with Dermatomyositis can feel like swimming against the current. Whether your muscles feel weak or your skin's acting up, I'll be floating right by your side . So when your feathers get ruffled , I'll be your soft, determined friend to lean on. Let's ride out the waves together, one waddle at a time! Comment obtenir un animal TAPC ? Nos animaux ne sont actuellement pas à vendre. Cependant, nous les offrons lors de concours sur les réseaux sociaux, de tombolas lors de conférences, etc. Consultez régulièrement nos réseaux sociaux pour savoir où et quand vous pouvez obtenir votre propre animal TAPC. Intéressé par nos autres programmes ? Consultez nos autres programmes ici

Programme d’ambassadeurs des professionnels de la santé (HCPA) Postulez maintenant Le programme d’ambassadeurs professionnels de la santé de Take a Pain Check (TAPC) est composé de médecins de diverses spécialités (résidents, boursiers et médecins traitants) et de professionnels de la santé alliés. Avantages Ambassadeur Gagnez en visibilité sur le site Web Take a Pain Check et sur les plateformes de médias sociaux, en touchant un large public Développez votre réseau professionnel à l'échelle internationale, en vous connectant avec des professionnels de la santé, des chercheurs et des défenseurs des droits de la personne dans le monde entier Contribuer à l'autonomisation mondiale des jeunes atteints de maladies rhumatismales, en ayant un impact positif à l'échelle mondiale Bénéficiez d'une reconnaissance lors de conférences grâce à des diaporamas et à une inclusion dans les documents d'intégration, mettant en valeur votre implication Rejoignez un réseau d'individus partageant les mêmes idées, y compris d'autres ambassadeurs et membres de l'équipe, favorisant les connexions et les opportunités de collaboration Obtenez des informations précieuses du point de vue direct des patients, en écoutant des personnes ayant des expériences vécues diverses Partagez vos recherches personnelles via des plateformes de publication de blog et des épisodes de podcast, amplifiant ainsi votre travail auprès d'un public mondial. Faites la promotion de vos recherches et recrutez des participants grâce à la newsletter et aux plateformes de Take a Pain Check, élargissant ainsi votre portée Recevez une lettre de soutien pour des projets de recherche, des subventions ou des opportunités de formation par Take a Pain Check Recevez une invitation pour rejoindre la page LinkedIn Business de Take a Pain Check, élargissant ainsi votre réseau professionnel Sensibiliser aux maladies rhumatismales dans le monde entier, contribuant ainsi à réduire la stigmatisation et à améliorer la compréhension Partagez votre expertise et vos connaissances avec un public mondial, en éduquant les autres et en promouvant des pratiques fondées sur des données probantes Vivez l'épanouissement personnel et ayez un impact significatif sur la vie des patients du monde entier Responsabilités Impliquez-vous dans la communauté des maladies rhumatismales et engagez-vous dans des sujets du point de vue du patient Créez au moins 1 article de blog par an sur vos recherches ou sur les maladies rhumatismales Mentionnez les opportunités potentielles de parrainage, de conférences et d'autres opportunités de présenter le TAPC, y compris les subventions pour le service communautaire par les hôpitaux et les organisations Travaillez en collaboration avec le coordonnateur de l'HCPA pour postuler aux opportunités de subvention offertes par votre clinique ou hôpital, ou d'autres que vous pourriez rencontrer Promouvez des groupes de soutien mensuels dans votre hôpital et votre clinique, et recommandez aux patients d'y participer, en leur offrant un espace sûr et communautaire. Participez aux rassemblements virtuels et physiques organisés par Take a Pain Check lorsque cela est possible et faites activement la promotion de la sensibilisation pour encourager une plus grande présence et participation Réfléchissez et exécutez des plans qui contribuent à la croissance de Take a Pain Check ainsi qu'à ce programme Établir une présence du TAPC au sein de votre communauté Mentionnez TAPC aux patients, parents et alliés Promouvoir le TAPC auprès d'autres rhumatologues et personnes intéressées Fournir au TAPC des connexions qui peuvent être utilisées pour le financement, telles que des sociétés pharmaceutiques, des subventions hospitalières, ainsi que pour accroître le réseau et la communauté du TAPC Suivez et faites la promotion des plateformes de médias sociaux de Take a Pain Check en : Aimer et commenter notre contenu sur les réseaux sociaux Suivez nos plateformes de médias sociaux Republier nos supports marketing sur vos comptes personnels de réseaux sociaux Affichez des affiches et des dépliants sur vos lieux de travail ou recevez des fiches de ressources de notre équipe à fournir aux patients (y compris en soins de santé bucco-dentaire et en rhumatologie) Participer aux médias sociaux (facultatif) Ex. Une journée dans la vie, Autres vidéos (Instagram Reels, Tiktok, Youtube) L'engagement de temps estimé pour ce rôle est jusqu'à 2 heures par mois Réunions et communication Participer à la réunion d'intégration Assister aux réunions trimestrielles avec les autres ambassadeurs du HCPA et le coordinateur du HCPA Communiquez dans le chat HCPA tout en restant au courant des annonces Communiquez avec d'autres professionnels de la santé à l'intérieur et à l'extérieur de votre communauté pour promouvoir Take a Pain Check Vérifiez le dossier partagé HCPA Google Drive chaque semaine et effectuez toutes les tâches assignées Consultez Slack quotidiennement pour les mises à jour Quelques-uns de nos ambassadeurs de la santé nous rencontrent à l'ACR 2024 Ambassadeurs des Professionnels de la Santé Dr. Melissa Mannion Pediatric Rheumatologist Alabama, USA Dr. Nadia Luca Pediatric Rheumatologist Canada Dr. Natalia Trehan Oral Medicine Chief Resident Pennsylvania, USA Dr. Elaine Soucy Rheumatologist Ontario, Canada Dr. Anna Costello Pediatric Rheumatology Fellow Pennsylvania, USA Dr. Lakshmi Moorthy Pediatric Rheumatologist New Jersey, USA Pamela Jarvis Social Service Worker Ontario, Canada Dr. Daniel Horton Pediatric Rheumatologist New Jersey, USA Dr. Tala El Tal Pediatric Rheumatologist Ontario, Canada Kelly Nguyen PhD Student Ontario, Canada Dr. Michelle Batthish Pediatric Rheumatologist Ontario, Canada Sydney Liles Physical Therapist Delaware, USA

Take a Pain Check Young Scholars Program Programme de jeunes savants Take a Pain Check Closed for 2025/26 About the Scholarship The Young Scholars Program by Take a Pain Check Foundation is an annual scholarship program that aims to relieve financial hardship and other academic barriers faced by students living with rheumatic diseases through financial assistance. The 2025-2026 scholarship program consists of 2 scholarship pathways: The "Learn without Limits" scholarship for one student pursuing higher education in any field, and the "STEM Without Limits" scholarship for one student studying science, technology, engineering, or mathematics. The 2 scholarships, totaling $5,000 CAD, will recognize outstanding academic achievement and a strong dedication to community involvement. Eligibility for Scholarships: Legal and permanent resident of Canada Currently enrolled as a part-time or full-time student in a Canadian post-secondary institution (undergraduate/diploma) STEM Without Limits: Any STEM program (Science, Technology, Engineering, Math). Learn Without Limits: A program in any discipline excluding STEM. Officially diagnosed with a rheumatic disease by a certified healthcare professional Display Academic Excellence Making a Difference in the Community Willing and able to comply with conditions outlined under Applicant Consent To align with our organization's mission, applicants must be 16-29 (Exceptions may apply on a case by case basis. If you have any questions or concerns, please email us) Applicants have not been a volunteer/podcast guest/blog writer with TAPC in the past 12 months Learn Without Limits The Learn Without Limits Take a Pain Check Scholarship, valued at $2,500 CAD, is open to students currently pursuing higher education in any non-STEM program. This scholarship aims to promote equity and improve access to opportunities by easing financial burdens for students living with rheumatic diseases. We believe it will foster inclusive environments, empowering individuals to overcome the unique challenges they face. One recipient will be selected based on demonstrated academic excellence and community involvement. STEM Without Limits The STEM Without Limits Take a Pain Check Scholarship, valued at $2,500 CAD, is open to students living with a rheumatic condition who are currently pursuing higher education in any science, technology, mathematics, or engineering related field. This scholarship seeks to provide equal access to opportunities for individuals with rheumatic diseases, empowering them to advance rheumatology through research, innovation, and advocacy. We believe in a future where individuals in STEM with rheumatic conditions are recognized for their hard work and contributions. This scholarship is open to one STEM student and selection will be based on academic excellence and community involvement. Apply now À propos de la bourse Le programme de Jeunes Savants est un programme de bourses annuel qui vise à soulager les difficultés financières et autres obstacles académiques rencontrés par les étudiants vivant avec des maladies rhumatismales grâce à une aide financière. Le programme de bourses 2025-2026 comprend 2 parcours de bourses : la bourse "Apprendre Sans Limites" pour les étudiants poursuivant des études supérieures dans n'importe quel domaine, et la bourse “STIM Sans Limites” pour les étudiants en sciences, technologies, ingénierie ou mathématiques. Les 2 bourses, totalisant $5,000 CA, reconnaîtront des réalisations académiques exceptionnelles et un fort dévouement à l'implication communautaire. Admissibilité aux bourses: Résident légal et permanent du Canada Actuellement inscrit comme étudiant à temps partiel ou à temps plein dans un établissement post-secondaire canadien STIM Sans Limites: Tout programme STIM (Sciences, technologie, ingénierie et mathématiques) Apprendre Sans Limites: Tout programme hors STIM Diagnostiquer officiellement d'une maladie rhumatismale par un professionnel de la santé agréé Faire preuve d'excellence académique Agir pour la communauté Être capable et prêt à se conformer aux conditions décrites dans la section Consentement du Appliquant Si l'étudiant a moins de seize ans, un parent/tuteur devra approuver les conditions de bourse. Pour correspondre à la mission de notre organisation, les candidats doivent être âgés de 16 à 29 ans (Des exceptions peuvent s'appliquer au cas par cas. Si vous avez des questions ou des préoccupations, veuillez nous envoyer un e-mail). Les candidats n'ont pas été bénévoles, invités de podcasts ou auteurs de blogs avec TAPC au cours des 12 derniers mois. Apprendre Sans Limites La bourse Apprendre Sans Limites Take a Pain Check, d'une valeur de 2 500 dollars canadiens, est ouverte aux étudiants qui poursuivent actuellement des études supérieures dans n'importe quel programme de premier cycle excluant les programmes STIM. Cette bourse vise à promouvoir l'équité et à améliorer l'accès aux opportunités en allégeant le fardeau financier des étudiants vivant avec des maladies rhumatismales. Nous pensons qu'elle favorisera des environnements inclusifs, permettant aux individus de surmonter les défis uniques auxquels ils sont confrontés. Un lauréat sera sélectionné sur la base de son excellence académique et de son implication dans la communauté. STIM Sans Limites La bourse STIM Sans Limites Take a Pain Check, d'une valeur de 2 500 dollars canadiens, est ouverte aux étudiants atteints d'une maladie rhumatismale qui poursuivent actuellement des études supérieures dans un domaine lié aux sciences, à la technologie, aux mathématiques ou à l'ingénierie. Cette bourse vise à offrir un accès égal aux opportunités pour les personnes atteintes de maladies rhumatismales, en leur donnant les moyens de faire progresser la rhumatologie par la recherche, l'innovation et la défense des droits. Nous croyons en un avenir où les personnes atteintes de maladies rhumatismales et travaillant dans les STIM seront reconnues pour leur travail acharné et leurs contributions. Cette bourse est ouverte à un étudiant de premier cycle en STIM et la sélection se fera sur la base de l'excellence académique et de l'engagement communautaire. Postulez maintenant Want to Help Spread the Word? We would greatly appreciate any support from our community in sharing our scholarship to reach more students! Click the button below to find a variety of posters and social media posts that can be used to share with your network. Vous souhaitez contribuer à faire passer le message ? Nous apprécierions grandement tout soutien de notre communauté pour partager notre bourse et toucher davantage d'étudiants ! Cliquez sur le bouton ci-dessous pour découvrir une variété d'affiches et de publications sur les réseaux sociaux à partager avec votre réseau. Start now/Commencez Maintenant Vous cherchez un modèle ? Nous avons créé des modèles pratiques pour vos certificats médicaux et lettres de recommandation. Cliquez ci-dessous pour trouver le modèle à remplir par votre médecin/référent! We have created some convenient templates that can be used for your physician certification and reference letters. Click below to find the template for your doctor/referee to fill out! Click here/Cliquez ici Questions fréquemment posées What is the Take a Pain Check Foundation? // Qu'est-ce que la fondation Take a Pain Check? Take a Pain Check Foundation (TAPC) is on a mission to empower youth and young adults with rheumatic disease. Originally started as a podcast, the TAPC Foundation has grown into a strong global community of volunteers and ambassadors who lead programming and mission related initiatives.// La Fondation Take a Pain Check (TAPC) a pour mission de donner aux jeunes et aux jeunes adultes atteints de maladies rhumatismales les moyens d'agir. Créée à l'origine sous la forme d'un podcast, la fondation TAPC s'est développée pour devenir une solide communauté de bénévoles et d'ambassadeurs. Qu’est-ce qui est considéré comme une maladie rhumatismale ? // Qu'est-ce qui est considéré comme une maladie rhumatismale ? A rheumatic disease includes but is not limited to the following: ankylosing spondylitis psoriatic arthritis, rheumatoid arthritis, scleroderma, gout, juvenile idiopathic arthritis, myositis, Sjogren's syndrome, and systemic lupus erythematosus. If you are unsure of the classification of your diagnosis, please refer to a medical professional or email us// Les maladies rhumatismales sont les suivantes : spondylarthrite ankylosante, arthrite, goutte, rhumatisme psoriasique, polyarthrite rhumatoïde, sclérodermie, goutte, arthrite juvénile idiopathique, syndrome de Sjögren, lupus érythémateux disséminé et arthrose. Si vous n'êtes pas sûr de la classification de votre diagnostic, veuillez consulter un professionnel de la santé. Et si mes notes ne sont pas les meilleures ? // Et si mes notes ne sont pas très bonnes ? We understand some of the challenges that students with rheumatic disease have to endure. All applications will be viewed holistically to avoid discrepancies in only one category.// Nous comprenons certaines des difficultés auxquelles sont confrontés les étudiants atteints de maladies rhumatismales. Toutes les candidatures seront examinées de manière globale afin d'éviter les écarts dans une seule catégorie. Comment puis-je être informé des futures bourses ? // Comment puis-je rester informé des futures bourses d'études? Make sure to follow us on our social media pages and subscribe to our newsletter for the latest information! Take a Pain Check hopes to offer more scholarships every year to empower young adults with rheumatic diseases in all areas.// N'oubliez pas de suivre nos pages de médias sociaux et de vous abonner à notre bulletin d'information pour obtenir les dernières informations ! Take a Pain Check espère offrir davantage de bourses chaque année pour aider les jeunes adultes atteints de maladies rhumatismales dans tous les domaines. Puis-je gagner plus d'une fois ? // Puis-je gagner plus d'une fois ? Unfortunately, you cannot win more than once. If you do not win this year, we encourage you to try again and apply next year!// Malheureusement, vous ne pouvez pas gagner plus d'une fois. Si vous ne gagnez pas cette année, nous vous encourageons à réessayer et à poser votre candidature l'année prochaine ! Dois-je être Canadien? // Dois-je être Canadien ? At this time, you must be a Canadian citizen or a permanent resident of Canada to be eligible for any of the scholarships.// À l'heure actuelle, vous devez être citoyen canadien ou résident permanent du Canada pour être éligible à l'une des bourses. Qu'est-ce qu'un programme STEM ? // Qu'est-ce qu'un programme STIM ? A STEM program encompasses science, technology, engineering or mathematics. If you are unsure if your program fits within this, you can email us or apply to the Learn Without Limits Scholarship.// Un programme STIM englobe les sciences, la technologie, l'ingénierie et les mathématiques. Que faire si je ne parviens pas à obtenir un certificat médical ? // Que faire si je ne peux pas obtenir de certificat médical ? If you cannot get a doctor's note, you can send in referral notes, medical reports, doctor notes that state the diagnosis and physician name, etc. If you are unsure of whether your paperwork is eligible, feel free to email us at scholarships@takeapaincheck.com// Si vous ne pouvez pas obtenir de certificat médical, vous pouvez envoyer des notes de référence, des rapports médicaux, des notes de médecin indiquant le diagnostic et le nom du médecin, etc. Si vous n'êtes pas sûr que votre dossier soit éligible, n'hésitez pas à nous envoyer un e-mail à l'adresse suivante : bourses@takeapaincheck.com Si je suis étudiant à temps partiel en raison de mon handicap, puis-je quand même postuler ? // Si je suis étudiant à temps partiel en raison de mon handicap, puis-je encore postuler ? Yes, you can still apply! Take the time to explain how your disability affected your ability to be a full-time student.// Oui, vous pouvez toujours postuler ! Prenez le temps d'expliquer comment votre handicap a affecté votre capacité à être un étudiant à temps plein. Quels programmes sont éligibles à la bourse Apprendre sans limites ? // Quels sont les programmes admissibles à la bourse Apprendre sans limites ? This will include any area that is not STEM, including Arts and Humanities, Finance, Marketing, Politics, and Social sciences.// Il s'agit de tout domaine autre que les STIM, y compris les arts et les lettres, la finance, le marketing, la politique et les sciences sociales. Qu’est-ce qui est défini comme jeunesse dans notre organisation ? // Qu’est-ce qui est défini comme jeunesse dans notre organisation ? At Take a Pain Check, we define youth as individuals aged 16-29. Student applicants to the Young Scholars Program must be within this age range. (Exceptions may be made on a case-by-case basis. If you are concerned about this requirement, feel free to email us).//À la Take a Pain Check, nous définissons les jeunes comme des individus âgés de 16 à 29 ans. Les étudiants candidats au Programme de Jeunes Savants doivent appartenir à cette tranche d'âge. (Des exceptions peuvent être faites au cas par cas. Si cette exigence vous préoccupe, n'hésitez pas à nous envoyer un e-mail). View past recipients here Voir les anciens récipiendaires ici Click here // Allez ici Vous souhaitez nous soutenir? Contactez-nous : info@takeapaincheck.com Avez-vous des questions? Contactez-nous : scholarships@takeapaincheck.com Soyez informé de nos prochaines opportunités de bourses d'études! Suivez-nous sur Instagram, TikTok, X et Facebook ! Nos prochaines bourses seront annoncées en novembre 2025.

Soutenez-nous Vous souhaitez contribuer au TAPC ? Faites un don à notre gofundme Patreon du TAPC Devenez membre Patreon ! Parrainage Pour vous renseigner sur les différents niveaux de parrainage et recevoir un paquet de parrainage, contactez-nous à partnerships@takeapaincheck.com ! Soutenez notre travail Votre générosité est le moteur de notre mission. En faisant un don à notre campagne GoFundMe, vous soutenez directement les personnes atteintes de maladies rhumatismales et nous aidez à développer des programmes essentiels comme le Joint Chat Rheum. Chaque contribution, quel que soit son montant, contribue à bâtir une communauté plus forte et mieux connectée. Faites un don Contactez-nous info@takeapaincheck.com

CLAUSE DE NON-RESPONSABILITÉ Les points de vue et opinions exprimés par les invités sur ce podcast ne représentent ni ne reflètent la politique ou la position officielle de la Take a Pain Check Foundation et du podcast. Toutes les informations partagées sont issues d'expériences personnelles et ne constituent pas un avis médical. Nous n'assumons aucune responsabilité pour les déclarations exprimées pendant le podcast. Take a Pain Check ne cautionne aucun produit ou service. Les produits ou services mentionnés dans ce podcast peuvent ne pas convenir à vous ou à votre état. Veuillez consulter votre médecin si vous avez des questions médicales concernant votre état. Juvenile Idiopathic Arthritis Lire la vidéo Lire la vidéo 41:13 Why Young Adults with Arthritis Are Pushing Back | Ep.121 Growing up with juvenile idiopathic arthritis isn’t just about managing pain but it’s about navigating identity, independence, relationships, and major life transitions while your body feels unpredictable. In this episode of Take a Pain Check, Natasha sits down with Ela Chintagunta who is an advocate, biology and chemistry graduate, CARRA volunteer, Arthritis Foundation award recipient, and council mentor for YP AREA. We talk about: • Being diagnosed as a teenage with Juvenile Idiopathic Arthritis • Attempting to stop medications in college • Living through prolonged flares during graduation • What shared decision making actually looks like in real life • Why young people belong in research and healthcare conversations • How to start advocating even in small ways Ela shares honestly about the tension between wanting independence and needing treatment, and how advocacy became a tool for reclaiming control. Shared decision making isn’t just a concept. It’s about trust, communication, and recognizing that patients are experts in their own lived experience. YP Area: https://youngpatientsarea.org/ Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #research #youth #arthritis #shareddecisionmaking #autoimmunedisease Lire la vidéo Lire la vidéo 32:50 Everything JIA Took, Mya Took Back | Ep. 112 In this powerful episode of Take a Pain Check, we sit down with Mya Barnett, a driven and inspiring young woman living with Juvenile Idiopathic Arthritis (JIA). Diagnosed at just 11 years old, Mya shares the reality of growing up with a chronic illness, how it shaped her confidence, impacted her daily life, and led to major decisions like undergoing jaw surgery. From navigating school accommodations and finding community at IWK summer camp, to becoming a camp counsellor and launching a homemade soap line for psoriasis. She also opens up about her experience travelling to Europe with Global Brigades Canada and managing her condition on the go. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #psoriasis #rheumaticdisease #chronicdisease #chronicillness #prelaw Lire la vidéo Lire la vidéo 49:50 The System Isn't Ready For Us | Ep. 109 In this episode of Take a Pain Check, we are joined by the Jenna Kedy, a passionate advocate living with Juvenile Arthritis and Fibromyalgia. We dive deep into Jenna’s diagnosis journey, navigating school and childhood with a chronic illness, and the challenges of finding proper pediatric care. Jenna opens up about learning to advocate for herself, balancing a busy life of advocacy, volunteering, and pageantry, and the realities of managing pain and flare-ups. We also explore the differences in healthcare systems across Canada, her work with IMPaCT Trials mentoring researchers, and her inspiring role as a Youth Board Member and Youth Ambassador at Take a Pain Check. Register for our in person event here by April 27th: https://forms.gle/tWdabTbta8ZYeieb8 Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Jenna's socials: Instagram: _missjennak_ LinkedIn: Jenna Kedy Our socials: ⁠https://www.takeapaincheck.com https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #JuvenileArthritis #FibromyalgiaAwareness #DisabilityAdvocacy #InclusiveEducation #TakeAPainCheck Lire la vidéo Lire la vidéo 39:09 Finding Confidence Through Chronic Illness | Ep. 108 In this episode of Take a Pain Check, Aubrey Mills opens up about her journey with Polyarticular Juvenile Idiopathic Arthritis. From her early diagnosis at age 8 to becoming a JA camp counsellor and launching Aubrey’s Animals through the Arthritis Foundation, Aubrey shares powerful insights on advocacy, mindset, and finding community. We talk about the realities of growing up with arthritis, the importance of support systems, and how she's turning her experiences into impact. Don't miss this inspiring conversation! Register for our in person event here by April 27th: https://forms.gle/tWdabTbta8ZYeieb8 Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Aubrey's socials: Instagram: @aubreymills__ @team_aubreys_animals Arthritis Foundation: https://www.arthritis.org/ Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ #arthritis #chronicillness #rheumaticdisease #autoimmunedisease #arthritispain Lire la vidéo Lire la vidéo 50:56 Reshaping My Life After Diagnosis | Ep. 105 In this episode of Take a Pain Check, Natasha sits down with Brandon Volesky to explore his journey with Juvenile Idiopathic Arthritis (JIA)—from being diagnosed at just two years old to navigating the challenges of childhood, overcoming stigma, and adapting his mindset to thrive as a husband, father, and professional. Brandon shares how his fear of medication affected his condition, how he ultimately embraced treatment, and how he transitioned from aspiring chef to becoming a Software and Data Engineer at H&R Block’s Machine Learning Lab. We dive into his work in AI and healthcare, his involvement with CARRA, and his passion for improving childhood rheumatology research. Through his lived experience, Brandon is leveraging machine learning and data science to transform healthcare and support better treatment options for future generations. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincheck Apply to our scholarship today: https://www.takeapaincheck.com/schola... Apply for our NEW paid youth and young adult support program: https://forms.gle/W3ciBhG89eAH8QvS8 Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Brandon's socials: www.linkedin.com/in/bvolesky CARRA: https://carragroup.org/ Growing Pains, Copyright, 2018, Alessia Cara #arthritis #chef #ai #research #dataanalytics Lire la vidéo Lire la vidéo 36:22 Trading Sneakers for Heels: Stella’s Journey | Ep. 104 In this episode of Take a Pain Check, host Natasha welcomes Stella Miller to share her journey with Juvenile Arthritis. Stella opens up about her early symptoms, the challenges of receiving a diagnosis, and the impact of medications like methotrexate and Orencia. She reflects on navigating friendships, advocating for her needs, and the support system that has helped her along the way. Stella also discusses the emotional toll of stepping away from basketball, a sport she loved, and how she found new purpose beyond the court. From her advocacy work with MUSC to modeling with a chronic illness, she shares how she’s reshaped her identity and continues to inspire others. Apply to our scholarship today: https://www.takeapaincheck.com/scholarship Apply for our NEW paid youth and young adult support program: https://forms.gle/W3ciBhG89eAH8QvS8 Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Stella's socials: Instagram & TikTok @Stellamiller71 Growing Pains, Copyright, 2018, Alessia Cara #model #basketball #arthritis #southcarolina #onlineschool Lire la vidéo Lire la vidéo 01:02:11 Episode 98: Feeling like one of the fastest kids on crutches In this episode of Take a Pain Check, Natasha sits down with Kent Messner, who shares his inspiring journey of living with rheumatoid arthritis (RA) from childhood to adulthood. Kent discusses his early diagnosis, the challenges he faced using crutches during middle and high school, and the impact of bullying on his self-esteem. He reflects on his time in a rehabilitation center, his pursuit of education, including an undergraduate degree and an MBA, and how his experiences shaped his career at Penn Medicine. Kent also shares practical tools and strategies he uses to manage his condition daily, from surgeries to physical therapy and chiropractic care. Throughout the conversation, Kent emphasizes the importance of advocacy and support, offering valuable advice to young people with disabilities. His story is a powerful reminder of the strength found in embracing differences and the importance of community in navigating life with a chronic illness. Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Kent's socials: Facebook: facebook.com/kent.messner Growing Pains, Copyright, 2018, Alessia Cara #lupus #physicianassistant #arthritis #scleroderma Lire la vidéo Lire la vidéo 58:50 Episode 96 - Joel Vs Arthritis Joel Nelson, a passionate advocate in the rheumatic disease community, shares his journey with Juvenile Idiopathic Arthritis (JIA) on the podcast. He discusses the challenges of obtaining a diagnosis and the importance of self-advocacy, especially from a young age. He reflects on the emotional rollercoaster of medication trials and their effects on mental health, emphasizing the stigma surrounding both physical and mental aspects of chronic illness for men. Joel also explores the impact of COVID-19 on healthcare access and his personal life, including parenting with arthritis. He discusses having no transition, experiences in the clinic which impacted his mental health, and the change in health care system over time in the UK. His initiatives, like the Joel Nelson Podcast and the Pain Company, show his commitment to patient-centered care and community support, making him an inspiring voice in chronic illness advocacy. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck?mx=2 Likedin: https://www.linkedin.com/company/take-a-pain-check Joel's socials: Facebook/IG/Twitter/YouTube/Twitch: @JoelvsArthritis Growing Pains, Copyright, 2018, Alessia Cara #chronicpain #chronicillness #arthritis #minecraft #mentalhealth #advocacy Rheumatoid Arthritis Lire la vidéo Lire la vidéo 43:35 Living Around Lupus Changed Me Forever | Ep.123 What happens when chronic illness impacts not just one person, but an entire family? In this episode of Take a Pain Check, Estela Mata shares her journey living with chronic pain since her teens, being diagnosed with rheumatoid arthritis, and supporting her sisters living with lupus while navigating her own health challenges. As President of Looms for Lupus, Estela has transformed lived experience into advocacy, community, and support for others navigating autoimmune disease and chronic illness. Together, we discuss the emotional reality of invisible illness, caregiving, grief, advocacy, mental health, and what it means to rebuild trust with your body after years of pain and uncertainty. This conversation is honest and deeply validating for anyone living with chronic illness, autoimmune disease, or chronic pain and for the people who love and support them. If you’ve ever felt dismissed, overwhelmed, isolated, or unseen in your health journey, this episode is for you. https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Estela's social's Twitter: https://twitter.com/Looms4Lupus YouTube Link: https://youtube.com/@looms4lupus136 Facebook link: https://www.facebook.com/Looms4Lupus Instagram link: www.instagram.com/looms4lupus Newsletter Link: Resources (looms4lupus.org) Website: Looms For Lupus - www.looms4lupus.org LinkedIn: https://www.linkedin.com/in/estela-mata-carcamo-00898230/ Facebook: facebook.com/estela.mata.18 Instagram: www.Instagram.com/estela_mata Twitter: https://twitter.com/estelamata Tik tok: www.tiktok.com/@estela.mata Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... #lupus #chronicillness #family #chronicdiseaseprevention Lire la vidéo Lire la vidéo 39:03 I Was the Doctor… Then I Became the Patient | Ep.122 She spent years treating rheumatoid arthritis. Then she became the patient. What happens when the person who’s supposed to have the answers suddenly doesn’t? In this episode of Take a Pain Check, Natasha sits down with Dr. Saimun Singla who is a triple board-certified pediatric rheumatologist whose life changed after being diagnosed with rheumatoid arthritis after becoming an attending physician. Dr. Singla opens up about what it’s really like to navigate the healthcare system from both sides and how her diagnosis forced her to rethink everything she believed about medicine, patient care, and healing. We get into: - What doctors don’t fully understand until they become patients - The gaps in care that patients feel every day - Integrative vs functional medicine - How gut health, hormones, and environment may be impacting autoimmune disease - Physician burnout and what it actually looks like - What the future of medicine needs to become This isn’t just a conversation about rheumatoid arthritis. It is about what happens when medicine becomes personal and why the system needs to change. Dr. Singla's Socials: https://www.instagram.com/rheum.to.grow.tx/ Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapaincheck #rheumatologist #doctor #patient #patienteducation #rheumatology Lire la vidéo Lire la vidéo 49:47 When the World Stopped, My Diagnosis Started | Ep. 106 In this episode of Take a Pain Check, Natasha is joined by the inspiring Sahara as she shares her journey of being diagnosed with rheumatoid arthritis (RA) during the COVID-19 pandemic. They dive into the challenges of getting a diagnosis amid uncertainty, navigating university while managing a chronic illness, and finding the right resources for understanding RA. Sahara opens up about how her south Asian background influenced her family’s understanding of her condition and how she worked to create a supportive space for herself and others who are immunocompromised. She also talk about the importance of setting boundaries, adapting to unexpected challenges while traveling, and lifestyle changes that help her manage flares. Beyond her health journey, Sahara shares her passion for writing and gives us insight into her two books—Love Letters to Myself, a heartfelt collection of poetry on love, heartbreak, and self-discovery, and Reflections, which explores themes of heritage, culture, and love. She leaves us with valuable advice for students managing a rheumatic disease and reflects on what she would tell her younger self when she was first diagnosed. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠www.takeapaincheck.com Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Sahara’s socials: Instagram: https://www.instagram.com/missbrainyblog?igsh=MXJsb3g5ZTV6ZTdkMA== Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #lawschool #poetry #writer #journalism Lire la vidéo Lire la vidéo 37:46 Episode 93 - One Size Does Not Fit All This week’s podcast episode features Carissa Peck, who discusses her journey with mixed connective tissue disorder, encompassing lupus and rheumatoid arthritis (RA). The conversation begins with Carissa’s introduction and background, followed by her diagnosis story, including initial symptoms and their progression. Carissa shares her experiences with various treatments, from medications to other treatments. She describes managing flare-ups and the impact of her condition on relationships, emphasizing communication and support. The discussion also touches on the challenges posed by the US healthcare system, particularly financial burdens and insurance issues. Carissa highlights lifestyle changes, such as diet and exercise, that have improved her well-being. Finally, she talks about her advocacy work on TikTok, sharing her condition with a broader community and offering advice to young people with similar experiences. Want to meet others with arthritis? Sign up for this month's call here: https://us02web.zoom.us/meeting/register/tZIofuihqTsiH9A_2WDfwZEu6BRh_CSJgMx9#/registration Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.linkedin.com/company/take-a-pain-check/ X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Carissa's socials Instagram: @_cawitha TikTok: @cawithaaa Growing Pains, Copyright, 2018, Alessia Cara #contentcreator #jointpain #spoonie #rheumatoidarthritis #chronicillness Lire la vidéo Lire la vidéo 48:50 Episode 75 - Rx for Success: Why Patient Partners Matter Join us on this week's episode on Take a Pain Check as Dawn Richards, diagnosed with rheumatoid arthritis, shares her incredible journey from diagnosis to clinical remission. She opens up about changing rheumatologists, managing methotrexate side effects, and the transformative impact of exercise. She discusses her life both as a researcher and being patient partner in research. Finally, she discusses her involvement with the Canadian Arthritis Network, CIHR IMHA and the Canadian Arthritis Patient Alliance. Be sure to like, subscribe and share this episode! https://arthritispatient.ca/tips-and-tricks-when-taking-methotrexate/ https://cihr-irsc.gc.ca/e/27297.html Dawn's socials: Twitter - @TO_dpr Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #patientcare #chronicpain #healthjourney #research Lire la vidéo Lire la vidéo 40:33 Episode 69 - The Good Days and the Bad Days On this week's episode of Take a Pain Check with your host Natasha, we delve into the world of Nikki Bhatti. Nikki bravely shares her personal journey living with rheumatoid arthritis - from the first instances of joint pain in her fingers and toes, to the evolution of her medication journey with her current medication called Actemra. Listen in as she discusses the social implications of managing arthritis, and dives deep into what it is like being a South Asian woman managing cultural expectations while grappling with her own health. Natasha and Nikki dive into the discussion on lifestyle changes. Nikki discusses her experience with gym visits and swimming, along with the adaptations she's had to make to her work schedule due to morning stiffness and flare-ups. Hear about her experiences with arthritic nodule surgery and how she navigates disability within the workplace. Lastly, Nikki highlights her significant contributions to arthritis research as a part of the APAB board at Arthritis Research Canada, including the creation of an educational video. Natasha and Nikki end off the episode by discussing how they met each other! Resources mentioned in the episode: https://youtu.be/ll0avFOq210 Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Nikki's socials: Instagram: strengthwithra Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #chronicillness #workout #southasian #vancouver Lire la vidéo Lire la vidéo 39:17 Episode 67 - The RA-lity of Lupus In honour of Canadian Mental Health Week and Lupus Awareness Month, tune in to this week’s episode as Krissy Stephenson, a successful business owner and chronic illness warrior, shares her journey of living with Rheumatoid Arthritis (RA) and Lupus. Krissy discusses the challenges of finding a good rheumatologist who understands the complexities of her conditions, her medication journey, and her experience with pregnancy and RA. Krissy also introduces us to the Spoon Theory, a powerful metaphor used by those with chronic illness to explain their limited energy each day. She talks about how she allocates responsibilities as a mother and entrepreneur and discusses her mental health journey with a therapist who also has Lupus. Join us as we explore Krissy’s inspiring story of perseverance, hope, and resilience, including her experience as a kindergarten teacher and her successful Direct Superior Hip Replacement surgery that changed her life. Don’t miss this week’s episode of Take a Pain Check. Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Krissy's socials: Instagram: @chronicallyillkrissy Growing Pains, Copyright, 2018, Alessia Cara #lupus #RA #chronicillness #EDS #therapy #spoontheory Lire la vidéo Lire la vidéo 37:53 Episode 56 - If You Don’t Use It, You’ll Lose It On this week’s episode, Christina Hepner talks about her symptoms that started when she was 19 in her sophomore year. Christina relates that she tried to hide her pain in university just to live a normal college life and used humour to cope with it for 1 whole year. However, after she returned from her summer break, she no longer could hide her disease from her friends who spoke about how much fun they had in the summer. Christina started bawling her eyes out and told her friends that she spent her time in so much pain and disclosed her arthritis diagnosis. She was lucky to have a great support system which helped her mental health. Christina discusses how her arthritis made her feel like she wasn’t herself most of the time. She gained weight, had knee surgery and dealt with depression. She mentions how she worked through those hurdles with physiotherapy, changing her mindset and implementing lifestyle changes such as weightlifting and eliminating certain inflammatory foods that she researched. Finally, the episode ends with Christina talking about her job in a non-profit organization for the visually impaired as a digital marketer and her current disease status being in remission. Check out Christina's socials: https://www.facebook.com/ChristinaHepnerMedia https://www.instagram.com/christina_hepner/ https://twitter.com/ChristinaHepner Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #rheumatoidarthritis #advocate #nonprofit #marketing #weightlifting Lupus Lire la vidéo Lire la vidéo 43:35 Living Around Lupus Changed Me Forever | Ep.123 What happens when chronic illness impacts not just one person, but an entire family? In this episode of Take a Pain Check, Estela Mata shares her journey living with chronic pain since her teens, being diagnosed with rheumatoid arthritis, and supporting her sisters living with lupus while navigating her own health challenges. As President of Looms for Lupus, Estela has transformed lived experience into advocacy, community, and support for others navigating autoimmune disease and chronic illness. Together, we discuss the emotional reality of invisible illness, caregiving, grief, advocacy, mental health, and what it means to rebuild trust with your body after years of pain and uncertainty. This conversation is honest and deeply validating for anyone living with chronic illness, autoimmune disease, or chronic pain and for the people who love and support them. If you’ve ever felt dismissed, overwhelmed, isolated, or unseen in your health journey, this episode is for you. https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Estela's social's Twitter: https://twitter.com/Looms4Lupus YouTube Link: https://youtube.com/@looms4lupus136 Facebook link: https://www.facebook.com/Looms4Lupus Instagram link: www.instagram.com/looms4lupus Newsletter Link: Resources (looms4lupus.org) Website: Looms For Lupus - www.looms4lupus.org LinkedIn: https://www.linkedin.com/in/estela-mata-carcamo-00898230/ Facebook: facebook.com/estela.mata.18 Instagram: www.Instagram.com/estela_mata Twitter: https://twitter.com/estelamata Tik tok: www.tiktok.com/@estela.mata Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... #lupus #chronicillness #family #chronicdiseaseprevention Lire la vidéo Lire la vidéo 44:47 Facing The Storm | Ep. 111 What happens when you’re diagnosed with the same illness you once watched a friend silently suffer through? In this powerful episode of the Take a Pain Check Podcast, Natasha sits down with Macenzie Rebelo, who shares how Lupus reshaped her life, relationships, and sense of self. From juggling university and dating to confronting stigma and learning to speak up, Macenzie reveals the unfiltered truth behind living with a chronic illness and how writing became her rebellion. Don’t miss this raw, honest, and unexpectedly empowering conversation. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapainc Don't forget to like, comment, and subscribe for more episodes. Our socials: ⁠https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #lupus #writerscommunity #Rheumaticdisease #Advocacy #Chronicillness Lire la vidéo Lire la vidéo 44:38 Episode 97 - Golfcarting to school In this episode of Take a Pain Check; Sharan Singh shares her journey of living with multiple chronic illnesses, including Lupus, Rheumatoid Arthritis, Scleroderma, and others. Sharan delves into her diagnosis story, detailing the symptoms that led her to seek help, her experiences with Western and regenerative medicine, and the impact these treatments have had on her quality of life. She also opens up about the challenges of maintaining relationships, navigating academics, and undergoing a hip replacement, while emphasizing the importance of mental health and lifestyle changes in managing chronic illness. Additionally, Sharan discusses her path to becoming a physician assistant and her advocacy work on TikTok, where she shares her story to educate and support others in the chronic illness community. Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: / takeapaincheck_ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck?mx=2 Likedin: / take-a-pain-check Sharan's socials: Tik Tok - @sharan.s, Instagram - @ssharann_ Growing Pains, Copyright, 2018, Alessia Cara #lupus #physicianassistant #arthritis #scleroderma Lire la vidéo Lire la vidéo 37:46 Episode 93 - One Size Does Not Fit All This week’s podcast episode features Carissa Peck, who discusses her journey with mixed connective tissue disorder, encompassing lupus and rheumatoid arthritis (RA). The conversation begins with Carissa’s introduction and background, followed by her diagnosis story, including initial symptoms and their progression. Carissa shares her experiences with various treatments, from medications to other treatments. She describes managing flare-ups and the impact of her condition on relationships, emphasizing communication and support. The discussion also touches on the challenges posed by the US healthcare system, particularly financial burdens and insurance issues. Carissa highlights lifestyle changes, such as diet and exercise, that have improved her well-being. Finally, she talks about her advocacy work on TikTok, sharing her condition with a broader community and offering advice to young people with similar experiences. Want to meet others with arthritis? Sign up for this month's call here: https://us02web.zoom.us/meeting/register/tZIofuihqTsiH9A_2WDfwZEu6BRh_CSJgMx9#/registration Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.linkedin.com/company/take-a-pain-check/ X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Carissa's socials Instagram: @_cawitha TikTok: @cawithaaa Growing Pains, Copyright, 2018, Alessia Cara #contentcreator #jointpain #spoonie #rheumatoidarthritis #chronicillness Lire la vidéo Lire la vidéo 47:53 Episode 92 - Why me? In this episode of Take a Pain Check, Amanda Chay discusses her journey with lupus and Sjogren's, sharing the challenges of getting diagnosed, advocating for herself, and the emotional impact of learning about and accepting her chronic illnesses. She highlights the importance of a strong support system, effective doctor-patient relationships, and the role of medications. Amanda also talks about maintaining an active lifestyle, the significant impact of diet on her symptoms, and managing her mental health. She reflects on the unique experience of being both a lupus patient and a mother to a daughter with lupus, offering advice to others in similar situations. Additionally, she discusses her book, "The Girlfriend’s Guide to Lupus," and offers advice to those newly diagnosed with a chronic condition and to parents who, like her, have a child with the same illness. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check Amanda's socials Instagram: @amandaechay Growing Pains, Copyright, 2018, Alessia Cara #parent #jointpain #genetics #lupus #lupusawarenessmonth #lupuswarrior Lire la vidéo Lire la vidéo 44:22 Episode 91 - Riding the Chronic Illness Rollercoaster in the Dark In this episode of Take a Pain Check, host Natasha introduces Emily Wahl, who bravely shares her journey living with Juvenile Rheumatoid Arthritis (JRA), Sjogren’s syndrome, Lupus, Pulmonary Arterial Hypertension, and FSGS. Emily candidly discusses her diagnosis story, recounting childhood experiences with arthritis and the challenges of managing various medications. She reflects on how her health conditions influenced her career choices and relationships, especially during pregnancy. Emily advocates for patients like herself, emphasizing the importance of a supportive care team and sharing coping strategies for the emotional weight of new diagnoses. Additionally, she offers insights into navigating pregnancy with chronic illnesses and provides valuable advice for managing multiple conditions effectively. Join our peer support group here for this month's session in May: https://us02web.zoom.us/meeting/register/tZ0tdemsrj8oHtwosUn8w7ZcwHxdGYZPDEDv#/registration Emily's socials: @healmewholeheartedly www.healmewholeheartedly.com Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: ⁠https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check/?originalSubdomain=ca Growing Pains, Copyright, 2018, Alessia Cara #lupus #sjogrenssyndrome #chronicillness #chronicpain #arthritis Lire la vidéo Lire la vidéo 45:25 Episode 88 - The Story of Us (Lupus’ Version): How Taylor Swift Paid my Tuition In this week's episode of Take a Pain Check, we welcome Ayesha as our special guest, sharing her incredible journey of diagnosis, advocacy, and touching moments of kindness. Ayesha recounts her initial symptoms that led her to seek medical help, navigating a complex medication regimen, and the ups and downs of her health journey. She reflects on her determination during her undergraduate years, the challenges of planning a wedding while managing her health, and a difficult experience in the emergency room. Ayesha also shares her memorable experience attending Taylor Swift's Eras tour, even in a wheelchair. During the episode, Ayesha updates us on her current health status, medication routine, and mental well-being, offering hope and valuable insights to listeners. She shares Taylor Swift's response to her Tumblr post, and how she met her in person. The conversation shifts to Ayesha's TikTok journey, where she discusses how she creates 'Get Ready with Me' videos, and she discusses her experience living with lupus, highlighting moments of inspiration and the positive impact on her community. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠https://www.instagram.com/takeapaincheck_/ X: ⁠ https://twitter.com/takeapaincheck Tiktok: ⁠https://www.tiktok.com/@takeapainchec...⁠ Ayesha's socials: Tiktok: @ayeshaakhurram Instagram: @ayeshakhurram Growing Pains, Copyright, 2018, Alessia Cara #taylorswift #makeup #lupus #southasianwedding #getreadywithme Lire la vidéo Lire la vidéo 46:01 Episode 82 - Putting the Pain Puzzle Together to Find my Diagnosis In this episode of Take a Pain Check, Isabel Dukes opens up about her personal journey dealing with JIA, Lupus, Antiphospholipid Antibody Syndrome, ADHD, and Dyslexia. She shares candid reflections on navigating the challenges of high school, dating in university, and the significant transition to adult life, including moving in with her partner. The episode delves into her medication journey and the evolving accommodations she has navigated since her youth. Isabel discusses the critical role of her support system during high school and the unique hurdles encountered in transitioning from pediatric to adult care. As an industrial designer, she discusses her commitment to accessibility. Not only that, she talks about her experience at arthritis camp, the @ArthritisSociety Walk, volunteering with Take a Pain Check and her active participation in the Make Rheum for Youth project by TAPC and @CAPA-arthritispatient . The episode concludes with practical advice on advocacy, emphasizing the importance of self-advocacy and community engagement for those navigating health challenges. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Isabel's socials: Instagram: @isabel_dukes Linkedin: https://www.linkedin.com/in/isabel-dukes-bb5609200/ Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #lupus #arthritis #chronicillness #designer #relationship Sjogrens Lire la vidéo Lire la vidéo 47:53 Episode 92 - Why me? In this episode of Take a Pain Check, Amanda Chay discusses her journey with lupus and Sjogren's, sharing the challenges of getting diagnosed, advocating for herself, and the emotional impact of learning about and accepting her chronic illnesses. She highlights the importance of a strong support system, effective doctor-patient relationships, and the role of medications. Amanda also talks about maintaining an active lifestyle, the significant impact of diet on her symptoms, and managing her mental health. She reflects on the unique experience of being both a lupus patient and a mother to a daughter with lupus, offering advice to others in similar situations. Additionally, she discusses her book, "The Girlfriend’s Guide to Lupus," and offers advice to those newly diagnosed with a chronic condition and to parents who, like her, have a child with the same illness. Don't forget to like, comment, and subscribe for more insightful episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check Amanda's socials Instagram: @amandaechay Growing Pains, Copyright, 2018, Alessia Cara #parent #jointpain #genetics #lupus #lupusawarenessmonth #lupuswarrior Lire la vidéo Lire la vidéo 44:22 Episode 91 - Riding the Chronic Illness Rollercoaster in the Dark In this episode of Take a Pain Check, host Natasha introduces Emily Wahl, who bravely shares her journey living with Juvenile Rheumatoid Arthritis (JRA), Sjogren’s syndrome, Lupus, Pulmonary Arterial Hypertension, and FSGS. Emily candidly discusses her diagnosis story, recounting childhood experiences with arthritis and the challenges of managing various medications. She reflects on how her health conditions influenced her career choices and relationships, especially during pregnancy. Emily advocates for patients like herself, emphasizing the importance of a supportive care team and sharing coping strategies for the emotional weight of new diagnoses. Additionally, she offers insights into navigating pregnancy with chronic illnesses and provides valuable advice for managing multiple conditions effectively. Join our peer support group here for this month's session in May: https://us02web.zoom.us/meeting/register/tZ0tdemsrj8oHtwosUn8w7ZcwHxdGYZPDEDv#/registration Emily's socials: @healmewholeheartedly www.healmewholeheartedly.com Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: ⁠ https://www.instagram.com/takeapaincheck_/ Tiktok: ⁠https://www.tiktok.com/@takeapaincheck?lang=en Facebook: https://www.facebook.com/TakeaPainCheck/ LinkedIn: https://www.linkedin.com/company/take-a-pain-check/?originalSubdomain=ca Growing Pains, Copyright, 2018, Alessia Cara #lupus #sjogrenssyndrome #chronicillness #chronicpain #arthritis Lire la vidéo Lire la vidéo 41:37 Episode 66 - Resilience Strikes a Chord: A 13 Year Old’s Story Join host Natasha on this week's heartwarming episode of Take a Pain Check, as she sits down with Isabella, a remarkable 13-year-old girl who shares her inspiring journey with Lupus, Juvenile Idiopathic Arthritis, and Sjogren’s. Isabella's story began during the pandemic, when she experienced excruciating pain in her elbows at the tender age of 9. Initially hesitant to see a doctor, she attributed the pain to her extracurricular activities. However, after her hands turned purple due to Raynaud's, she finally sought medical help. In this episode, Natasha and Isabella discuss the challenges faced by vulnerable patients and their families during the diagnosis process. Isabella shares how she was dismissed in the clinical setting, but her resilience and determination led her to make the necessary lifestyle changes. She talks about how she embarked on a medication journey which had its ups and down. She also discusses her journey with using mobility aids from a young age. Despite the obstacles, Isabella's unwavering spirit shines through, as she adapted to homeschooling with her sister and found support from her family and close friends. Isabella also shares how she used music and humor to cope with her pain, despite the challenges with her hands when she played piano. Her advocacy journey and involvement with the Arthritis Society, including attending their yearly camp and kids' programs, are also discussed. Isabella's story of hope and perseverance will inspire you to live life to the fullest, even in the face of adversity. So, don't miss this episode of Take a Pain Check, and join Isabella on her journey towards living her best life! Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #lupus #sjogrens #kidsgetarthritis #homeschooling #piano #surgery Lire la vidéo Lire la vidéo 41:05 Episode 19 - Chronic Genie We got the pleasure to interview Ingrid He this week on Take a Pain Check. We cover an abundance of interesting topics such as the struggle to obtain a diagnosis of Sjogren's Syndrome and this rheumatic disease once thought as a mental illness from several doctors. Throughout this episode, we learn about advocacy. Join us as we learn about the app Ingrid created to help herself and others suffering from Sjogren’s and other chronic illnesses! Check out Ingrid's Social Media: Instagram: https://www.instagram.com/sjogrenstracker/ Facebook: https://www.facebook.com/SjogrensTracker Website: https://www.takeapaincheck.ca/ Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck... Tiktok: https://www.tiktok.com/@takeapainchec... Growing Pains, Copyright, 2018, Alessia Cara #apps #technology #health #sjogren's #disease Lire la vidéo Lire la vidéo 36:02 Episode 32 - The Apple That Couldn’t Have Fallen Closer To The Tree Kristen joins Take a Pain Check this week for a conversation about the impact of therapy and behaviour. Kristen was lucky with her diagnosis, Rheumatoid Arthritis and Sjogren's, surprising right? The discussion leads into the topic of friends and family support and jumps right into answering the big question of "how do we as a patient make the right decision for our medications?". Well you might be able to figure that out, if you stay tuned until the end of the episode! Check out Kristen's social media channels: @WarriorsMoveMountains & @ConnectBehavioralCoaching Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psychology #behaviour #sjogrens #rheumatoidarthritis #awareness #support #coaching #therapy Ankylosing Spondylitis Lire la vidéo Lire la vidéo 51:57 Let's Get Loud for AS | Ep. 115 At 28, Michael Santillo was diagnosed with Ankylosing Spondylitis after years of unexplained pain that made even simple tasks like putting on socks or driving which became nearly impossible. Instead of letting it define him, he turned his journey into an inspiring mission: founding the annual “Let’s Get Loud for AS” gala. In this episode of Take a Pain Check, we talk about: - His road to diagnosis and the symptoms he faced - The mental and physical health challenges that followed - How AS impacted his relationships and love life - The creation and growth of “Let’s Get Loud for AS” Whether you’re living with AS, supporting someone who is, or just looking for inspiration, Michael’s story is a reminder that even in life’s toughest moments, there’s room to create change. Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Guest socials: Instagram: mmichael.ss and letsgetloudforas #podcast #ankylosingspondylitis #interview #autoimmunediseases #chronicillness Lire la vidéo Lire la vidéo 40:51 Too Real: Reacting To Fibro and the New Me | Ep. 113 In this episode of Take a Pain Check, Maggie Douglas opens up about her complex journey living with Juvenile Idiopathic Arthritis, Ankylosing Spondylitis, Fibromyalgia, and PCOS. She walks us through the physical and emotional challenges of early symptoms, delayed diagnosis, and navigating the transition from pediatric to adult rheumatology care. This week also features something a little different: a conversation about the short film Fibro and the New Me. Maggie shares her reactions to the portrayal of fibromyalgia on screen, reflects on the importance of accurate representation, and unpacks how media can both validate and educate. From support systems to self-discovery, this episode is a candid exploration of resilience, identity, and what it really means to find yourself in the midst of chronic illness. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. Maggie's socials: IG - mdouglas0423, FB/Linkedin - Maggie Douglas Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #ankylosingspondylitis #Fibromyalgia #Fibromyalgiaawareness #Rheumaticdisease #Rheumaticdiseaseawareness #Advocacy #Chronicillness #Chronicillnessawareness #healthpodcast Lire la vidéo Lire la vidéo 45:00 Episode 87 - Empowering Every Body: Accessible Fitness with Alex Levine Fitness LLC In this episode of Take a Pain Check podcast, we delve into the life of Alexander Levine, unpacking his journey with Ankylosing Spondylitis (AS) from diagnosis to shoulder surgery and beyond. Alex shares the story of his diagnosis, detailing life before AS and the challenges he faced in his career, particularly in the health and fitness industry. We explore the knowledge gap between fitness and AS, how his perspective on fitness shifted post-diagnosis, and the impact of physical therapy on his symptoms. Alex also opens up about his shoulder surgery, discussing the pain and recovery process. He sheds light on how friendships and relationships evolved, the support he received from loved ones, and the pivotal role of the chronic illness community. He also talks about managing a family and newborn with a diagnosis. As a fitness enthusiast and owner of a virtual personal training business, Alex shares insights into his unique training style tailored for those with AS, addressing the mental blocks and challenges that come with chronic illness. The episode wraps up with valuable advice from Alex on getting started in the fitness industry with a chronic condition and changing mindsets for youth already interested in fitness. Sign up for our first joint chat rheum session to meet others with rheumatic diseases this month:https://us02web.zoom.us/meeting/register/tZMrduGuqj0uHdDgcBicDuG0TBjtvcnGwGkI#/registration Join our campaign at a landmark near you for World Young Rheumatic Disease Day: https://www.takeapaincheck.com/light-it-blue Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapaincheck_/ X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en Alex's socials: Youtube: @AlexLevineFitness Instagram: @alexlevinefitness Tiktok: @alexlevinefitness Growing Pains, Copyright, 2018, Alessia Cara #ankylosingspondylitis #fitness #personaltrainer #health Lire la vidéo Lire la vidéo 57:32 Episode 71 - Sculpting a New Path from the Youth System: Rural Roots to Artistic Discovery In this week's episode of Take a Pain Check, prepare to be inspired as host Natasha welcomes the Sharona Franklin, an artist from Rural British Columbia. Sharona's story, despite grappling with multiple diagnoses, such as SJIA, AS, IBD, Pericarditis, and Vasculitis, transforms into a remarkable journey of unwavering resilience and strength. Natasha and Sharona dive deep into the profound impact of childhood struggles, the intricate complexities of the youth care system, the unique experiences of rural living, the challenges of dropping out of school, mental health battles, and navigating a unique family dynamic as one of eight siblings. Sharona fearlessly shares her early years, marked by the agonizing pain of being unable to eat. The conversation takes an intimate turn as Sharona vulnerably unveils the challenges she faced growing up within the youth care system, grappling with the involvement of social workers and lawyers in her life, and the far-reaching impact on both herself and her siblings. Despite these obstacles, Sharona discovered a wellspring of solace and empowerment through her passion for art. Natasha and Sharona embark on an exploration of the power of artistic expression, as Sharona recounts her early forays into creativity as a means to escape the confines of her circumstances. They delve into the judgments she faced due to perceptions surrounding having an assistant when doing art, and how she harnessed her lived experiences to create art that illuminates the unseen challenges of living with chronic illness. Lastly, Sharona ends off the episode raising awareness and fostering understanding, breaking down barriers and championing the voices of those facing similar struggles. Sharona's socials: Instagram: @hot.crip, @disabled_personals, @paid.technologies Articles to learn more about Sharona's journey: https://www.artbasel.com/stories/sharona-franklin-bioethics-disability-activism-statements-art-basel-2023?lang=en https://luttecollective.com/featured-artists/sharona-franklin Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ruralhealthcare #ankylosingspondylitis #arthritis #disabled #artistic #rheumatology Lire la vidéo Lire la vidéo 34:52 Episode 62: Journaling Through Ankylosing Spondylitis On this week’s episode, Chris Pudlak talks about his journey with Ankylosing Spondylitis. Diagnosed at age 36, Chris struggled to lift up his kids or even play with them because of his arthritis pain. Since day one, he started journaling in which he intertwined his engineering skills to track his symptoms. He discusses lifestyle changes he implemented and how he tracked his symptoms. Not only that, Natasha and Chris discuss workplace accommodations such as a height adjusting desks and a different type of handshake. Chris also gives tips on how to cycle and run with ergonomic equipment. He talks about the impact of physiotherapy on his arthritis. Lastly, Chris talks abut his book ” Achieving Wellness Through Arthritis” and his involvement in Arthritis Research Canada. Check our Chris' Socials: Twitter and Facebook: @ChrisPudlak Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ankylosingspondylitis #rheumaticdisease #advocate ##rheumatology #workout Lire la vidéo Lire la vidéo 48:05 Episode 50 - Embracing My Disability “Don’t say you're disabled” they said. These were comments Anna Samson received when they were using mobility aids to help them get through their daily tasks while living with a chronic illness. This week on Take a Pain Check, Anna Samson comes on the podcast to to talk about their life with Ankylosing Spondylitis and Fibromyalgia as a 23 year old. They start off the conversation by talking about their initial symptoms and explaining the 4 year wait to get a diagnosis. After receiving a diagnosis, Anna talks about their experience finding resources to help them understand their own conditions. Moreover, Natasha and Anna discuss the benefits of physiotherapy. The conversation progresses to talking about disability in different settings, specifically the blue and red seats on the TTC subway. Throughout Anna’s journey, they learned how to advocate for themselves in a health care setting and how they become more confident. Not only did they have to talk about their symptoms, but they had to “get better at talking to people.” Finally, Anna explains their involvement in Take a Pain Check as an ambassador, as well as their work in Health Union. Next Joint Chat Rheum Session on Tuesday, August 16th at 7pm EDT: https://us02web.zoom.us/meeting/register/tZUsc-CvqDMtEtdQYezlNi8gJhkW5roy5_TK Self-Advocacy Live: https://www.instagram.com/tv/Cb5sHwVIC8P/ Makeup Live: https://www.instagram.com/tv/CaQI5eBKKTG/ Health Union: https://www.instagram.com/healthunion/ Check out Anna's socials: Instagram @chronicallyillxo TikTok @chronicallyillxo Twitter: @chronicallyillx Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #mobility #disability #ankylosingspondylitis #fibromyalgia #rheumatology #chronicillness #advocate #physiotherapy Lire la vidéo Lire la vidéo 34:16 Episode 22 - Skateboarding into a Diagnosis Today, we have Spencer Hamilton talk about his story of being diagnosed in years, being a pro skateboarder and changing his lifestyle to one that suits his needs. Spencer talks about how he managed to remain a pro skateboarder even though his ankylosing spondylitis diagnosis took quite a while to diagnose. Check out his social media: @spencerhamilton Check out our website! Website: https://www.takeapaincheck.ca/ Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #skateboarding #diagnosis #journey #spencerhamilton Lire la vidéo Lire la vidéo 41:00 Episode 8 - Twin Telepathy Have you ever met twins with the same chronic disease? This week we have Makayla and Carly Fox come on our podcast to talk about Ankylosing spondylitis, Make a Wish Foundation, moving out and living their lives with JIA. Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Makayla and Carly! Carly's Tiktok: https://vm.tiktok.com/ZMe9mpueD/ Makayla's Instagram: https://www.instagram.com/makaylakfox/ Carly's Instagram: https://www.instagram.com/itscarlyfox/ Carly's LinkedIn: https://www.linkedin.com/in/carlysteelefox You can also stream us on Spotify, Apple and Google Podcasts: https://anchor.fm/takeapaincheck Make a Wish: https://makeawish.ca/ Life spin: https://www.lifespin.org/ Carly on Make a Wish the article: https://lfpress.com/news/local-news/lifespin-blown-away-by-generosity-of-young-woman-who-forsakes-make-a-wish-cruise-to-give-to-poor Download the iCanCope app: https://apps.apple.com/us/app/icancope-with-pain/id1345697088?app=itunes&ign-mpt=uo%3D4 Read about how the app impacted Natasha here: https://arthritis.ca/about-us/what-we-do/research/research-impact-snapshots-en/can-an-app-help-teens-manage-arthritis-pain Growing Pains, Copyright, 2018, Alessia Cara Scleroderma Lire la vidéo Lire la vidéo 34:28 Episode 36 - Feeling Numb In The Freezer Section On this week’s episode, Natasha and Katie converse about what it’s like to live with Scleroderma and Raynaud's. Her diagnosis story went from rheumatologists thinking she was making up her symptoms, to Katie now being under remission. Katie is also a registered nurse who is passionate women’s health. She believes that her story has helped her become a more understanding nurse to her patients. Additionally, the conversation covers Katie’s life as a high school student on a dance team, the psychological aspect of giving yourself a needle and discusses grip strength tips. Stay tuned for our exciting podcast game on our Instagram this week! Katie's socials: Instagram: @kspilkz Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #arthritis #nurse #Cleveland #sclerodermaawareness #scleroderma Psoriatic Arthritis Lire la vidéo Lire la vidéo 56:11 Living This Diagnosis Together | Ep.118 What happens when both a mother and daughter are diagnosed with psoriatic arthritis? In today’s episode, we sit down with USPORTS basketball athlete, advocate, and STEM Without Limits scholar, McKinley Penninga, and her mom Lisa Penninga, to talk about navigating life as a family living with the same chronic illness. Diagnosed years apart, McKinley and Lisa share: - how psoriatic arthritis shaped their mother-daughter bond - the early signs Lisa saw in McKinley based on her own lived experience - what it was like recognizing symptoms she personally knew all too well - how both supported each other through flare days, school challenges, and identity changes McKinley opens up about staying in basketball, balancing varsity-level training with chronic pain, and proving that invisible illness doesn’t define your athletic ability. Lisa shares the parent perspective while managing her own health needs — something rarely talked about in chronic illness stories. Together, they discuss advocacy, youth voice in healthcare, the STEM Without Limits Scholarship, and how their shared experiences are shaping the healthcare provider McKinley hopes to become. Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. #athlete #psoriaticarthritis #rheumaticdiseases #health #family Lire la vidéo Lire la vidéo 43:21 Episode 83 - Finding Purpose Beyond the Pain On this week’s episode on Take a Pain Check, Kyle Brooks talks about his diagnosis journey and about navigating the challenges of JIA and psoriasis. From physio to a two-year wait for answers, Kyle shares his daily battles with symptoms and medications. We delve into the social aspect, addressing bullying, handling negative comments, and finding resilience. Kyle opens up about school life, securing accommodations, and fostering a positive relationship with his general practitioner. Not only that, this episode talks about contrasts in healthcare systems between England and Canada. Finally, we discuss Kyle’s involvement in awareness initiatives, from live streams to TikTok, and his passion for the arts which adds a unique perspective. Like and subscribe! Apply for our scholarship here: https://www.takeapaincheck.com/schola... Kyle's socials: Instagram: @kyle_b.idk TikTok: @teen.with.arthritis Youtube: @ChefJisoo Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psoriasis #arthritis #chronicillness #chronicpain #england Lire la vidéo Lire la vidéo 41:27 Episode 80 - More Than DNA: Psoriatic Arthritis Changed the Dynamic Between My Siblings and Me Join us on this week’s episode of Take a Pain Check as Brookie Zarb shares her journey with Psoriatic Arthritis (PsA). From the initial symptoms to facing healthcare practitioners, Brookie discusses her diagnosis, medication experiences, and their impact on her life. She explores how PsA influenced her high school years, friendships, and extracurricular activities. She dives into the dynamics of her family, navigating the emotional rollercoaster of sibling diagnoses. Brookie discusses the Australian healthcare system, her creative coping mechanisms during flares, and her role as a Take a Pain Check ambassador. Hear her valuable advice for those dealing with rheumatic diseases in high school and those hesitant about getting involved with organizations. Like and subscribe! Resources: https://msk.org.au/ Brookie's socials: Instagram: @brookie.zarbarooni Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... X: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psoriaticarthritis #chronicillness #juvenilearthritis #australia #arthritis #rheumatology Lire la vidéo Lire la vidéo 37:20 Episode 61 - Alli The Arthritis Advocate Alli Buchanan joins host, Natasha, on this week’s episode on Take a Pain Check to discuss her diagnosis with Psoriatic Arthritis (PsA). Alli’s starts by talking about her diagnosis journey and how it took her 10 years to get diagnosed. Physicians were aware of Alli’s family history with PsA but did not take that into account when her symptoms progressed. Because of Alli’s mom’s experience with PsA, Alli discusses how her mom was her biggest advocate as she spent a lot of time reliving her own journey. The conversation dives into the importance of talking about arthritis and its lack of representation in the science curriculum. Not only that, Alli talks about the medications she went on and how this led her to develop Toxic Shock Syndrome. She discusses that a medication that may work today, but it may not work tomorrow. She talks about her accommodations ,such as having transportation and picking her university courses before other people. Additionally, Alli mentions how she balances her social life, academics and arthritis while going to college and how her friends have been able to support her. Finally, they end off the episode by talking about Alli’s arthritis Instagram page and a recent quiz she made to see how much her friends knew about her arthritis. Quiz on Alli's friends: https://www.instagram.com/reel/CljWiTljOeV/?igshid=YmMyMTA2M2Y= Check our Alli's Socials: Instagram: @alli.arthritis Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #psoriaticarthritis #psoriasis #advocate #newyork #rheumatology Systemic Juvenile Idiopathic Arthritis Lire la vidéo Lire la vidéo 50:54 From Hospital Bed to Barbell | Ep. 117 He could barely move at 15 and now he’s redefining strength. When doctors told Zac Spinosa he might never train again, he refused to accept it. Diagnosed with Systemic Juvenile Idiopathic Arthritis and Macrophage Activation Syndrome, he refused to let that be the end of his story. Instead, he built Forge Fitness, a community where disability doesn’t mean limitation and pain becomes power. In this episode of Take a Pain Check, Zac opens up about hitting rock bottom and choosing to fight back, building a gym that truly includes people with chronic illness, the mindset shift that changed everything, and what strength really means when your body is working against you. If you’ve ever been told you can’t, this episode will make you believe you can. Watch now, get inspired, and rethink what strength looks like. Donate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapainc... Don't forget to like, comment, and subscribe for more episodes. Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck Zac's socials: @ZacTheArthritisCoach #fitness #gymmotivation #chronicillness #fitnessgoals #arthritis Lire la vidéo Lire la vidéo 57:32 Episode 71 - Sculpting a New Path from the Youth System: Rural Roots to Artistic Discovery In this week's episode of Take a Pain Check, prepare to be inspired as host Natasha welcomes the Sharona Franklin, an artist from Rural British Columbia. Sharona's story, despite grappling with multiple diagnoses, such as SJIA, AS, IBD, Pericarditis, and Vasculitis, transforms into a remarkable journey of unwavering resilience and strength. Natasha and Sharona dive deep into the profound impact of childhood struggles, the intricate complexities of the youth care system, the unique experiences of rural living, the challenges of dropping out of school, mental health battles, and navigating a unique family dynamic as one of eight siblings. Sharona fearlessly shares her early years, marked by the agonizing pain of being unable to eat. The conversation takes an intimate turn as Sharona vulnerably unveils the challenges she faced growing up within the youth care system, grappling with the involvement of social workers and lawyers in her life, and the far-reaching impact on both herself and her siblings. Despite these obstacles, Sharona discovered a wellspring of solace and empowerment through her passion for art. Natasha and Sharona embark on an exploration of the power of artistic expression, as Sharona recounts her early forays into creativity as a means to escape the confines of her circumstances. They delve into the judgments she faced due to perceptions surrounding having an assistant when doing art, and how she harnessed her lived experiences to create art that illuminates the unseen challenges of living with chronic illness. Lastly, Sharona ends off the episode raising awareness and fostering understanding, breaking down barriers and championing the voices of those facing similar struggles. Sharona's socials: Instagram: @hot.crip, @disabled_personals, @paid.technologies Articles to learn more about Sharona's journey: https://www.artbasel.com/stories/sharona-franklin-bioethics-disability-activism-statements-art-basel-2023?lang=en https://luttecollective.com/featured-artists/sharona-franklin Our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ruralhealthcare #ankylosingspondylitis #arthritis #disabled #artistic #rheumatology Ehlers-Danlos Syndrome Lire la vidéo Lire la vidéo 46:57 2024 STEM Without Limits Scholar | Ep. 101 In this week’s episode of Take a Pain Check, Kate Bourne shares her powerful journey with Ehlers-Danlos Syndrome (EDS), discussing the 12-year delay in her diagnosis and the profound impact it had on her confidence, mobility, and academic life. Kate reflects on the emotional toll of not having answers for so long, navigating school and daily life with unexplained symptoms. She also highlights her passion for research, focusing on anesthetic resistance in EDS patients and the relationship between EDS and POTS, with the goal of improving healthcare practices for those affected by these conditions. As a 2024 recipient of the STEM Without Limits scholarship, Kate shares how she plans to use the funds to further her academic and research endeavors, offering advice to young adults about finding their career paths. Apply to our scholarship today: https://www.takeapaincheck.com/scholarship Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://www.instagram.com/takeapaincheck_/ Likedin: https://www.linkedin.com/company/take-a-pain-check/ Kate's socials: Instagram and X: @katebournebsc Growing Pains, Copyright, 2018, Alessia Cara #pots #arthritis #md #medicine #researcher Lire la vidéo Lire la vidéo 46:43 Episode 63 - Dateability On this week’s episode on Take a Pain Check, Jacqueline and Alexa Child come on the podcast to talk about their own personal experience of living with a chronic illness and being a sister of someone who has a chronic illness, respectively. Jacqueline starts off by discussing her diagnosis journey with Ehlers-Danlos Syndrome and other chronic illnesses. She talks about bad joint and muscle pain, having a butterfly rash, experiencing sensitivity to the sun, and dealing with GI symptoms that led her to seek help from a medical professional. On the other hand, Alexa discusses how she was 3000 miles away for law school, and she started off not really understanding what Jacqueline was dealing with. But once she truly learned more about it, it changed her as a person and gave her a unique perspective. Growing up in Telluride, a ski resort, there were no hospitals nearby and no specialist nearby so Jacqueline discusses her access to care barriers. Alexa and Jacqueline discuss their lives’ living together and how they became more mature than others around them as they had different lived experiences. Jacqueline talks about the difficulties being honest with Alexa about her symptoms as it’s hard a challenge to ask for help. Moreover, Jacqueline talks about her heart surgery after being born with a congenital heart defect at age 25. They end off the episode by talking about Dateability, a dating app for the chronically ill and disabled. Dateability was made based on the lived experiences of Jacqueline’s dating life and constant rejections. They talk about how the app works, their future goals for the app and how they hope to connect this ever growing community. Dateability: https://info.dateabilityapp.com/ Jacqueline and Alexa's socials: @dateabilityapp @jacquelineechild @alexabchild Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ehlersdanlos #rheumatology #dating #datingapps #relationship #siblings Fibromyalgia Lire la vidéo Lire la vidéo 40:51 Too Real: Reacting To Fibro and the New Me | Ep. 113 In this episode of Take a Pain Check, Maggie Douglas opens up about her complex journey living with Juvenile Idiopathic Arthritis, Ankylosing Spondylitis, Fibromyalgia, and PCOS. She walks us through the physical and emotional challenges of early symptoms, delayed diagnosis, and navigating the transition from pediatric to adult rheumatology care. This week also features something a little different: a conversation about the short film Fibro and the New Me. Maggie shares her reactions to the portrayal of fibromyalgia on screen, reflects on the importance of accurate representation, and unpacks how media can both validate and educate. From support systems to self-discovery, this episode is a candid exploration of resilience, identity, and what it really means to find yourself in the midst of chronic illness. Donate to Take a Pain Check Today: https://www.gofundme.com/f/takeapaincheck Don't forget to like, comment, and subscribe for more episodes. Maggie's socials: IG - mdouglas0423, FB/Linkedin - Maggie Douglas Our socials: https://www.takeapaincheck.com/ https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheck https://ca.linkedin.com/company/take-a-pain-check https://www.youtube.com/@takeapaincheck https://www.facebook.com/TakeaPainCheck https://www.x.com/takeapaincheck #ankylosingspondylitis #Fibromyalgia #Fibromyalgiaawareness #Rheumaticdisease #Rheumaticdiseaseawareness #Advocacy #Chronicillness #Chronicillnessawareness #healthpodcast Lire la vidéo Lire la vidéo 46:28 Episode 65 - Beyond the White Coat: Empowerment in Patient Partnerships In this week's episode of Take a Pain Check, Natasha welcomes Cassidy Bradley, a medical student at Dalhousie University, who bravely shares her journey with Fibromyalgia and POTS. Cassidy's story starts with her symptoms emerging during her time as a national-level speed skater, eventually leading to hip surgery. She discusses her mental health struggles and the benefits of therapy in coping with chronic illness, as well as accepting her disability and navigating accommodations in medical school. Cassidy opens up about the challenges she has faced with hip surgery, physiotherapy, and managing fibromyalgia and POTS, including temperature sensitivity and allodynia. She shares the adjustments she has made, such as using a heated blanket and wearing braces. Additionally, she highlights her advocacy work as a patient partner in research, advocating for the patient voice and aligning research with patient needs and values, along with Natasha who shares her own patient partner experience. Cassidy also shares her positive experiences at Brigadoon Village, a camp for children with chronic illnesses, where she found support from counselors and fellow campers. Don't miss this insightful episode as Cassidy Bradley shares her inspiring journey on Take a Pain Check! Cassidy's socials: Twitter and Instagram: @Cassidybradley_ Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #fibromyalgia #medicalstudent #dalhousie #speedskater #rheumatology #pots Myositis Lire la vidéo Lire la vidéo 45:51 Episode 99 - Redefining Strength with Polymyositis In this episode of Take a Pain Check, we sit down with Shanesha Scott, who shares her inspiring journey with polymyositis. Shanesha opens up about her diagnosis, treatment challenges, and how she navigates the emotional and physical changes brought on by her condition. We discuss her work as an industrial and organizational psychologist and the impact of workplace dynamics on employee morale and success. Shanesha also talks about her two books, When I Got Sick – A Story of Tragedy & Triumph and Birthing the Leader Within You, offering advice on balancing health, career, and personal growth. Don’t miss this empowering conversation! Join our joint chat rheum: https://us02web.zoom.us/meeting/register/tZMof-mrqjkqEt22sWtGUDMIjLuRKXAjFWjY Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapainchec... X: https://x.com/takeapaincheck Likedin: https://www.linkedin.com/company/take-a-pain-check/ Shanesha's socials: Instagram: Shanesha__ TikTok: Beauty4RMAshes Facebook: Shanesha & Beauty 4RM Ashes Growing Pains, Copyright, 2018, Alessia Cara #autoimmuneawareness #Polymyositis #chronicillness #workplacewellness #leadership

Light it Blue 2025 Qu'est-ce que Light it Blue et la Journée WORD? Chaque année, à l'occasion de la Journée mondiale des maladies rhumatismales chez les jeunes (WORD Day), la Fondation Take a Pain Check illumine des monuments du monde entier en bleu pendant le mois de mars pour sensibiliser et démontrer sa solidarité envers les jeunes touchés par les maladies rhumatismales. Merci à tous ceux qui ont participé pour faire de Light it Blue 2025 un succès ! Nous vous encourageons à : Postez vos photos sur les réseaux sociaux, identifiez-nous et utilisez l'un des hashtags : #LightingitBlueforWorldYoungRheumaticDiseaseDay #lightitblue #takeapaincheck #tapclightitblue #lightitblue4wordday. N'hésitez pas à nous envoyer également une copie de votre photo par e-mail ! info@takeapaincheck.com Où étaient les monuments? Plus de 50 monuments se sont illuminés cette année. Trouvez le vôtre ci-dessous ! Pour la première fois, cette année a inclus une option virtuelle! Il y avait une diffusion en directe pour que tout le monde pourrait voir les Chutes Niagara en blue. Le vendredi 14 mars Pont commémoratif MLK Fort Wayne, IN, É.-U. Musée national des beaux-arts Manila, Philippines Le samedi 15 mars - Canada Tour CN Toronto, Ontario Hôtel de Ville Vaughn, Ontario Tour d'Horloge Mississauga, Ontario Market Square Guelph, Ontario Hôtel de Ville Peterborough, Ontario Hôtel de Ville Kingston, Ontario Springer Market Square Kingston, Ontario Centre Shaw Ottawa, Ontario Parlement de la C.-B. Victoria, C.-B. BC Place Vancouver, C.-B. Rue Downing Moncton, N.-B. Downtown Place Moncton, N.-B. Hôtel de Ville Moncton, N.-B. Tour de Calgary Calgary, Alberta Hôtel de Ville Lethbridge, Alberta Hôtel de Ville Saskatoon, Saskatchewan Le samedi 15 mars - États-Unis et Mondial Bank of America Plaza Dallas, TX, É.-U. Dômes du parc Mitchell Milwaukee, WI, É.-U. Bâtiment Union Plaza Little Rock, AR, É.-U. Conservatoire Tropical Crystal Bridge Oklahoma City, OK, É.-U. Aquarium et Centre des Sciences de la Mer de la Virginie Virginia Beach, VA, É.-U. Bureau du Conseil Perth, Australie Clocher Perth, Australie Sky Ribbon Perth, Australie Pont Trafalgar East Perth, Australie Pont Matagarup East Perth, Australie Pont de la rue Mounts West Perth, Australie Pont de Joondalup Drive Joondalup, Australie Tunnel de Northbridge Northbridge, Australie SkyWheel Helsinki Helsinki, Finlande Musée Perlan Reykjavík, Islande Bureau du Conseil Omagh, Royaume-Uni Camera Obscura and World of Illusions Edinburgh, Royaume-Uni Château de Cardiff Cardiff, Pays de Galles Théâtre de Smock Alley Dublin, Irlande Musée Napier Thiruvananthapuram, Inde Musée national des beaux-arts Reykjavík, Islande Le dimanche 16 mars - Canada Signe Hamilton Hamilton, Ontario Pont High Level Edmonton, Alberta CentreShaw Ottawa, Ontario Pont de Reconciliation Calgary, Alberta La Tour de Montréal Montréal, Québec Hôtel de Ville Saskatoon, Saskatchewan Science World Vancouver, C.-B. Le dimanche 16 mars - États-Unis et Mondial Planétarium James S. McDonnell St. Louis, MO, É.-U. Musée Perlan Reykjavík, Islande Clocher Perth, Australie Musée Napier Thiruvananthapuram, Inde SkyWheel Helsinki Helsinki, Finlande Musée national des beaux-arts Manila, Philippines Le lundi 17 mars Hôtel de Ville Melbourne, Australie Le mardi 18 mars Pont de la Paix Buffalo, NY, É.-U. One Liberty Place Philadelphia, PA, É.-U. Subaru of America Camden, NJ, É.-U. FirstService Residential Philadelphia, PA, É.-U. Children's of Alabama Birmingham, AL, É.-U. Le samedi 22 mars Parlement d'Australie-Occidentale West Perth, Australie Le mardi 25 mars Bâtiment 195 Dufferin London, ON, Canada RBC Place London, Ontario, Canada Hôtel de Ville London, ON, Canada Chutes du Niagara Niagara, ON, Canada London Life London, ON, Canada Aidez-nous à faire passer le message ! L’un des principaux objectifs de la Fondation Take a Pain Check est de mettre en relation les personnes atteintes de maladies rhumatismales avec des ressources et des réseaux de soutien. L’utilisation d’affiches promotionnelles sur votre lieu de travail, dans votre communauté ou la publication sur vos réseaux sociaux peut aider à orienter les jeunes atteints de maladies rhumatismales vers notre communauté. Nous demandons à ceux qui peuvent faire passer le message et sensibiliser le public de partager notre initiative Light it Blue en accédant à notre lien Canva ci-dessous. Vous pouvez télécharger le fichier dans le coin supérieur droit. Nous espérons pouvoir compter sur votre soutien ! Voir le paquet de monuments ici Aidez-nous à célébrer la Journée WORD chaque année ! Light it Blue 2024 Light it Blue 2023

CLAUSE DE NON-RESPONSABILITÉ Les points de vue et opinions exprimés par les invités sur ce podcast ne représentent ni ne reflètent la politique ou la position officielle de la Take a Pain Check Foundation et du podcast. Toutes les informations partagées sont issues d'expériences personnelles et ne constituent pas un avis médical. Nous n'assumons aucune responsabilité pour les déclarations exprimées pendant le podcast. Take a Pain Check ne cautionne aucun produit ou service. Les produits ou services mentionnés dans ce podcast peuvent ne pas convenir à vous ou à votre état. Veuillez consulter votre médecin si vous avez des questions médicales concernant votre état. Family & Friends Lire la vidéo Lire la vidéo 49:27 Episode 100 - Stronger Together: My JIA Journey ft. My Siblings In this milestone 100th episode, Natasha sits down with her siblings, Natalia and Nikhil, to reveal the raw, real, and unfiltered moments behind living with Juvenile Idiopathic Arthritis. From the first signs of JIA to the highs and lows of family life, this episode unveils how her siblings stood by her side, the unexpected challenges they faced together, and how JIA transformed each of their lives. Discover the secrets to strong family bonds, the power of sibling support, and life lessons you won’t hear anywhere else! Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://x.com/takeapaincheck Linkedin: https://www.linkedin.com/company/take-a-pain-check/ Growing Pains, Copyright, 2018, Alessia Cara #arthritis #familysupport #chronicillnessawareness #PodcastMilestone #100episodes #invisibleillness #siblings #support #TakeAPainCheck #strongertogether Lire la vidéo Lire la vidéo 46:43 Episode 63 - Dateability On this week’s episode on Take a Pain Check, Jacqueline and Alexa Child come on the podcast to talk about their own personal experience of living with a chronic illness and being a sister of someone who has a chronic illness, respectively. Jacqueline starts off by discussing her diagnosis journey with Ehlers-Danlos Syndrome and other chronic illnesses. She talks about bad joint and muscle pain, having a butterfly rash, experiencing sensitivity to the sun, and dealing with GI symptoms that led her to seek help from a medical professional. On the other hand, Alexa discusses how she was 3000 miles away for law school, and she started off not really understanding what Jacqueline was dealing with. But once she truly learned more about it, it changed her as a person and gave her a unique perspective. Growing up in Telluride, a ski resort, there were no hospitals nearby and no specialist nearby so Jacqueline discusses her access to care barriers. Alexa and Jacqueline discuss their lives’ living together and how they became more mature than others around them as they had different lived experiences. Jacqueline talks about the difficulties being honest with Alexa about her symptoms as it’s hard a challenge to ask for help. Moreover, Jacqueline talks about her heart surgery after being born with a congenital heart defect at age 25. They end off the episode by talking about Dateability, a dating app for the chronically ill and disabled. Dateability was made based on the lived experiences of Jacqueline’s dating life and constant rejections. They talk about how the app works, their future goals for the app and how they hope to connect this ever growing community. Dateability: https://info.dateabilityapp.com/ Jacqueline and Alexa's socials: @dateabilityapp @jacquelineechild @alexabchild Check out our socials: Website: https://www.takeapaincheck.com/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #ehlersdanlos #rheumatology #dating #datingapps #relationship #siblings Lire la vidéo Lire la vidéo 46:50 Episode 30 - A Mom's Guide On Sick Kid Parenting This week on Take a Pain Check, the host interviews Marissa Sangers. She is a parent to an 8 year old girl, Charlotte, who lives with Juvenile Arthritis. We discuss the interesting visit to a plastic surgeon, the parent perspective, and the adjustment of parenting skills. Not only that, we talk about going down the rabbit hole in internet searching. American College of Rheumatology Conference Registration: https://www.rheumatology.org/Annual-Meeting/Registration UPLiFT Conference Registration: https://conference.gappapain.org/ Acute Musculoskeletal Pain Management Webinar: https://www.eventscribe.net/2021/AMPM2021/ Instagram @rissasangers & @charlottes.superstars Facebook JM Sangers Twitter @rissasangers TikTok @rissasangers Check out our socials: Website: https://www.takeapaincheck.ca/ Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck #mom #parenting #juvenile #arthritis #support #accommodations Growing Pains, Copyright, 2018, Alessia Cara Lire la vidéo Lire la vidéo 43:28 Episode 17: Part 2 - From Strangers to Friends Rahul Vivekanandan, a close friend of Natasha, comes on our weekly podcast Take a Pain Check. We talk about how their friendship started, the accommodations made in the friendship whether it’d be at hanging out at a friend’s house or at school, and finally how they both support each other regardless of the situation. We end off with a game and some valuable advice to takeaway! Be sure to watch part 1 of friendship edition week to hear about a different perspective of friendship. Check out Rahul's social media: Instagram: https://www.instagram.com/rahul_vivek/ LinkedIn: https://www.linkedin.com/in/rahul-vivekanandan-1a821518a/ CHECK OUT OUR NEW WEBSITE: https://www.takeapaincheck.ca/ Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck... Tiktok: https://www.tiktok.com/@takeapainchec... Growing Pains, Copyright, 2018, Alessia Cara #school #advocacy #support #podcast #friendship #health Lire la vidéo Lire la vidéo 35:22 Episode 17: Part 1 - Becoming Besties Take a Pain Check hosts part 1 of friendship edition week! Today, we have a fun and serious conversation with Brianne Chou about friendships and arthritis. We explore school, accommodating friends with a disease and learning about what they go through on a daily basis. Brianne's Socials: Instagram: https://www.instagram.com/brianne.chou/?hl=en FaceBook: https://www.facebook.com/brianne.chou LinkedIn: https://www.linkedin.com/in/brianne-chou-255b9a1bb/ CHECK OUT OUR NEW WEBSITE: https://www.takeapaincheck.ca/ Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck... Tiktok: https://www.tiktok.com/@takeapainchec... Growing Pains, Copyright, 2018, Alessia Cara #school #advocacy #support #podcast #friendship #health Lire la vidéo Lire la vidéo 44:44 Episode 3 - The Story Behind Cassie and Friends David Porte, the Chair of Cassie and Friends, comes on our weekly podcast to give us the parent perspective, the behind the scenes of his charity organization and information about support out there. Check out our social media accounts! Instagram: https://www.instagram.com/takeapaincheck_/ Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en You can also stream us on Spotify, Apple and Google Podcasts: https://anchor.fm/takeapaincheck Check out Cassie and Friends! Instagram: https://www.instagram.com/cafsociety/ Website: https://cassieandfriends.ca/ Growing Pains, Copyright, 2018, Alessia Cara #support #podcast #interview #parents #health #charity Lire la vidéo Lire la vidéo 44:12 Episode 7 - Rheulationship Jordan Colangelo comes on our weekly podcast to talk about what it is like to be in a relationship with someone that has a rheumatic disease. His JIA knowledge is also tested and he might actually be more knowledgeable than we thought! Check out our social media accounts! Instagram: https://www.instagram.com/takeapainch... Twitter: https://twitter.com/takeapaincheck Tiktok: https://www.tiktok.com/@takeapaincheck Check out Jordan! https://www.instagram.com/jordan.colangelo/ You can also stream us on Spotify, Apple and Google Podcasts: https://anchor.fm/takeapaincheck Growing Pains, Copyright, 2018, Alessia Cara #juvenilearthritis #podcast #interview #relationship #support

Événements Passés du Joint Chat Rheum Nous avons organisé de nombreux événements Joint Chat Rheum depuis la création de notre organisation. Nous organisons désormais ces sessions tous les mois, avec un groupe de jeunes qui participent à chaque réunion, mois après mois. Ce programme exige désormais que les participants s'inscrivent chaque été, car il commence chaque automne. Voici quelques-uns des sujets qui ont été abordés lors des sessions Joint Chat Rheum des années précédentes. Pour en savoir plus, cliquez ici.

Programme d'ambassadeurs pour adultes (25-60 ans) Postulez maintenant Avantages Rejoignez une communauté où vous vous sentez soutenu et où vous pouvez rencontrer des personnes de votre âge passionnées par la sensibilisation aux maladies chroniques et aux maladies rhumatismales Travaillez avec et rencontrez des personnes dévouées et désireuses d'aider les autres ; développez des amitiés, des mentorats et des relations encourageantes et motivantes Obtenir un certificat TAPC reconnaissant la participation des ambassadeurs Rejoignez la page d'entreprise LinkedIn Accédez au discord Obtenez l’accès à un réseau de personnes partageant les mêmes idées (par exemple, d’autres ambassadeurs, les membres de l’équipe, etc.) Bénéficier de l'opportunité de renforcer vos compétences en marketing, en réseautage, en leadership et en communication Responsabilités Apprenez-en plus sur le TAPC et sur les maladies rhumatismales Créer 1 article de blog par an Recruter pour la liste de diffusion Réfléchissez et exécutez des plans qui contribuent à la croissance de Take a Pain Check Aidez aux activités de collecte de fonds et apportez des idées sur la manière de collecter des fonds Établir une présence du TAPC au sein de la communauté Écrivez et partagez une ou plusieurs nouvelles fictives mais basées sur des faits réels. Il peut s'agir d'histoires sur ce que c'était que de grandir avec une AJI, une maladie chronique, etc. Ces histoires seront publiées sur notre Patreon. Suivez et faites la promotion des plateformes de médias sociaux de Take a Pain Check en : Aimer et commenter notre contenu sur les réseaux sociaux. Republication de nos supports marketing sur les comptes de réseaux sociaux personnels. Utiliser le matériel promotionnel publié dans le dossier partagé Ambassador Google Drive (par exemple, distribuer des dépliants, des publications, etc.) Les interactions interpersonnelles peuvent être utilisées pour promouvoir et développer les fondations. Organisation d'un événement Joint Chat Rheum Créer des vidéos amusantes pour le vendredi (facultatif) Réunions et communication Assister à des réunions occasionnelles Communiquez dans les discussions du groupe Ambassadeur tout en restant informé des annonces. Le mode de communication sera déterminé en fonction de la plateforme la plus utilisée par les membres du programme. Contactez d'autres clubs ou organisations à l'intérieur ou à l'extérieur de votre communauté pour promouvoir Take a Pain Check Vérifiez le dossier partagé Ambassador Google Drive chaque semaine et effectuez toutes les tâches assignées

Impliquez-vous Voir nos événements, ateliers, ressources et plus. Notre impact Avoir été témoin de la manière dont TAPC unifie les individus dans des situations autrement isolantes a été incroyablement inspirant et m’a permis de me sentir plus confiant dans ma défense des droits concernant ma maladie. Plus d'infos Rejoignez notre Discord Partagez votre histoire à travers n'importe quelle forme de média (écriture, musique, photographie, etc.) Plus d'infos Rejoindre notre équipe Devenez membre d’une communauté qui sensibilise par le soutien, la connexion et la création de contenu. Événements Programme de bourses d'études Take a Pain Check Disponible pour les étudiants canadiens atteints de maladies rhumatismales qui souhaitent poursuivre leurs études. Parallèlement aux bourses, nous annoncerons bientôt des possibilités d'ateliers pour les étudiants. En savoir plus Light it Blue Un événement mondial annuel au cours duquel nous éclairons des monuments importants en bleu en soutien à la Journée Mondiale des Maladies Rhumatismales Juvéniles. Un événement annuel qui a lieu en mars. Y comprend des monuments à Toronto, en Australie, à Philadelphie et bien d'autres. En savoir plus Unity Through Rheumatic Disease In Person Event A one-day in person event held in Toronto for youth and young people with rheumatic conditions to connect and learn. Read More Joint Chat Rheum A monthly online supportive discussion for youth and young people with rheumatic conditions. Run by one of our youth ambassadors, the next cohort begins in May 2026. Read More Programmes Comité consultatif sur l'expérience vécue par les jeunes Ce conseil met l’accent sur la stratégie, le leadership, la collaboration et le plaidoyer, les participants dirigeant un projet majeur sur plusieurs mois. En savoir plus Programme d'ambassadeurs pour les jeunes et les jeunes adultes Ce programme est axé sur la création de contenu, les médias sociaux, la sensibilisation communautaire et la sensibilisation. Il convient parfaitement aux passionnés de marketing et de plaidoyer. En savoir plus Programme d'ambassadeurs des professionnels de la santé Développez de nouvelles compétences, partagez nos ressources avec les patients, partagez des opportunités de recherche, partagez votre expertise et apprenez avec nous. Nous proposons également des lettres de soutien. En savoir plus Programme de sac à dos Nous avons collaboré avec la Société de l'arthrite du Canada pour créer notre sac à dos pour adolescents. Avec l'aide de Matt et Nat, nous avons conçu tous les éléments de ce sac pour répondre aux besoins des adolescents atteints d'arthrite. Lire la suite ici Ressources Nous avons des ressources sur l'adaptation, la santé dentaire, des trucs et astuces pour le lycée et bien plus encore. Toutes nos ressources sont développées par ou avec des jeunes atteints de maladies rhumatismales. Cliquez ici pour consulter toutes nos ressources disponibles et originales ! Accédez à nos ressources ici Conférences Take a Pain Check participe activement à des conférences, partageant ses connaissances et défendant les intérêts des jeunes atteints d'arthrite. Par des présentations, des discussions et d'autres activités, notre équipe collabore avec des professionnels de santé, des chercheurs et des défenseurs des droits pour sensibiliser, inspirer le soutien et influencer le changement au sein de la communauté arthritique. Voyez où nous sommes allés Reportage Take a Pain Check a collaboré avec d’autres organisations, a fait l’objet d’articles de presse, a fait l’objet d’un documentaire de la CBC sur nos débuts et a partagé notre mission de sensibilisation à l’arthrite chez les jeunes. Notre présence dans les médias met en lumière des histoires inspirantes, des points de vue d’experts et des efforts de sensibilisation continus, amplifiant notre impact et nous connectant à une communauté mondiale. Jetez un œil à notre reportage ici Inscrivez-vous à notre newsletter pour recevoir les dernières mises à jour sur les événements et plus

Comité consultatif sur l'expérience vécue des jeunes (YLEAB) 🚀 À propos du programme Le YLEAB vous offre l'opportunité d'assumer un rôle de leadership et de contribuer à façonner l'avenir du TAPC. Cette toute nouvelle initiative vise à amplifier la voix des jeunes ayant une expérience vécue. Nous sommes convaincus que ceux qui vivent avec une maladie rhumatismale au quotidien devraient être ceux qui guident les programmes, les décisions et les stratégies qui impactent leur communauté. Si vous êtes prêt à collaborer, à vous exprimer, et à créer du changement, vous êtes au bon endroit. 💥 Date limite de candidature: 15 septembre 2025 📅 Les entretiens auront lieu en septembre 🧡 Ce poste est bénévole. Le Projet YLEAB 2024 Dear Friend! Un livre de Take a Pain Check et du Youth Lived Experience Advisory Board (YLEAB) (Comité consultatif sur l'expérience vécue des jeunes) Créé par l'équipe YLEAB 2024, ce livre rassemble les témoignages de quatre jeunes ayant vécu des maladies rhumatismales. Explorant différentes expériences et prodiguant des conseils judicieux, ils partagent leur vécu de grandir tout en gérant une maladie chronique. Le livre est divisé en quatre tranches d'âge clés : 0-12 ans, 12-17 ans, 17-25 ans et 25 ans et plus. Chacune explore les défis et les transitions spécifiques liés à la vie avec une maladie rhumatismale à ces étapes de la vie. De l'enfance à l'âge adulte, ces jeunes offrent éclairage, soutien et autonomie à d'autres personnes traversant des parcours similaires. Menée par Kriston Steward, l'équipe 2024 bénéficie des contributions sincères d'Anna Samson, Isabella Boles, Klaudia Ivancic et Mackenzie Wilke. Ce livre est actuellement disponible uniquement en anglais. Nous vous prions de nous excuser pour la gêne occasionnée. Obtenez le PDF imprimable ici Voir plus de ressources TAPC ici Anna Samson Membre YLEAB 2024 Isabella Boles Membre YLEAB 2024 Klaudia Ivancic Membre YLEAB 2024 Mackenzie Wilke Membre YLEAB 2024 Voir les membres 2025 ici Postulez maintenant 👥 Qui peut nous rejoindre ? Nous recherchons des jeunes de 14 à 29 ans, du monde entier, atteints d'une maladie rhumatismale. Aucune expérience en plaidoyer ? Pas de problème ! Il vous suffit d'apporter votre expérience vécue, votre passion et votre volonté de faire partie d'une équipe. 👉 Si vous avez moins de 18 ans, nous demanderons à un parent ou à un tuteur de signer un formulaire de consentement avant votre intégration officielle. 🎯 Vos missions En tant que membre de l'YLEAB, vous jouerez un rôle clé dans : 💡 Façonner la Mission du TAPC Partagez vos idées, vos réflexions et votre histoire pour contribuer à définir les actions futures du TAPC. Votre voix compte ici. 🧠 Planification Stratégique Donnez votre avis sur les nouveaux programmes, suggérez des améliorations et aidez-nous à créer des ressources qui reflètent vraiment les besoins des jeunes atteints de maladies rhumatismales. 🌍 Sensibilisation Participez à des événements de sensibilisation, créez du contenu et participez à des campagnes éducatives et inspirantes. 🧭 Diriger des Projets Vous travaillerez avec d'autres membres du conseil d'administration sur un projet de groupe chaque année. Vous aurez l'occasion de diriger, de collaborer et de créer ensemble quelque chose d'extraordinaire. 📣 Partager votre Expérience Que ce soit via notre blog, une campagne ou des discussions lors de réunions, votre expérience vécue guidera notre travail et permettra aux autres de se sentir entendus et reconnus. 🗣️ Plaidoyer Faites entendre votre voix pour lutter contre la stigmatisation, sensibiliser et promouvoir des politiques qui soutiennent notre communauté. Vous nous aiderez à bâtir un monde qui comprend véritablement ce que signifie vivre avec une maladie rhumatismale. 🛠️ Création de Ressources Contribuez à la conception d'outils (guides, boîtes à outils et vidéos) pour accompagner d'autres personnes dans leur parcours de santé. 📈 Développement Personnel et Professionnel Nous vous accompagnerons dans votre développement en vous donnant accès à des formations, des ateliers et des opportunités de leadership pour développer votre confiance et vos compétences. 📅 Réunions et engagement Réunions virtuelles mensuelles (au moins une fois par mois) Participation active aux communications, aux discussions de groupe et à la planification Engagement d'un an minimum (renouvelable) Participation à un projet de groupe au cours de l'année Remarque: Un manque d'engagement peut entraîner l'exclusion du comité, car nous souhaitons nous assurer que chaque membre de l'équipe est présent, respectueux et engagé. 🧩 Structure du Comité Consultatif Vous collaborerez avec les autres membres du comité et les membres de l'équipe TAPC. De petits groupes de travail pourront être formés en fonction de projets ou d'intérêts spécifiques. Des invités externes pourront occasionnellement se joindre aux réunions pour la planification stratégique. 🙌 Attentes + Code de conduite Notre objectif est de créer un espace sûr, respectueux et inspirant. Voici ce que nous demandons aux membres de notre conseil d'administration: Confidentialité : Respectez la vie privée de chacun et les informations sensibles partagées. Communication respectueuse : Écoutez avec empathie. Partagez vos idées avec bienveillance. Participation constructive : Contribuez activement et positivement. Conformité : Suivez les politiques du TAPC et contribuez à maintenir une culture solidaire et inclusive. Transparence : Signalez-nous tout conflit d’intérêts potentiel susceptible d’affecter votre participation. ✏️ Note finale Rejoindre le YLEAB, c'est l'occasion de vous faire entendre, d'avoir un impact et de façonner l'avenir de la défense des droits des jeunes en rhumatologie. Que vous souhaitiez créer quelque chose de nouveau, mener une campagne ou simplement rencontrer d'autres personnes qui comprennent ce que vous vivez, il existe un placement pour vous ici. Ensemble, nous pouvons lutter contre la stigmatisation, trouver des solutions et bâtir une communauté qui soutient, encourage et inspire. Postulez maintenant et laissez votre expérience vécue vous guider.

Ressources TAPC Carte d'information médicale Cartes de poche pour les patients Dans le cadre de leur projet d'apprentissage par le service communautaire (CSL), des étudiants en médecine de l'Université de Toronto se sont associés à nous pour développer des cartes d'identité médicales personnalisées pour les patients atteints de maladies rhumatismales. Ces cartes pratiques et faciles à transporter sont conçues pour aider les patients à communiquer rapidement et précisément des informations médicales importantes lors de consultations médicales ou d'urgences. Nous sommes reconnaissants envers les étudiants pour leur dévouement et pour cette contribution significative à l'amélioration de la sécurité et de l'autonomie des patients dans la communauté rhumatologique. Consultez et téléchargez les fichiers PDF ici Livre du Comité Consultatif sur l'Expérience Vécue par les Jeunes (YLEAB) Créé par l'équipe YLEAB 2024, ce livre rassemble les témoignages de quatre jeunes ayant vécu des maladies rhumatismales. Explorant différentes expériences et prodiguant des conseils avisés, ils partagent leur vécu de grandir tout en gérant une maladie chronique. Le livre est divisé en quatre tranches d'âge clés : 0-12 ans, 12-17 ans, 17-25 ans et 25 ans et plus. Chacune explore les défis et les transitions spécifiques liés à la vie avec une maladie rhumatismale à ces étapes de la vie. De l'enfance à l'âge adulte, ces jeunes offrent éclairage, soutien et autonomie à ceux qui traversent un parcours similaire. Dirigée par Kriston Steward, l'équipe 2024 bénéficie des contributions sincères d'Anna Samson, Isabella Boles, Klaudia Ivancic et Mackenzie Wilke. Consultez et téléchargez le PDF imprimable ici En savoir plus sur le programme ici Le Projet de YLEAB 2024 Discussion sur l'hébergement pour la rentrée scolaire Avec des modèles d'e-mails et une liste de contrôle pour l'hébergement Que vous soyez étudiant, parent, éducateur ou professionnel de la santé, ces ressources peuvent vous aider à assurer une transition plus douce vers la classe. Ce projet a été réalisé en partenariat avec Lupus Canada. Visitez leur site Web pour en savoir plus sur ce projet et pour voir toutes les autres choses incroyables qu'ils font. Voir le PDF en plein écran et télécharger ici Visitez le site Web de Lupus Canada ici Ateliers Rheum for Your Mind Ensemble de ressources Rheum for Your Mind était un événement de 2 jours qui s'est tenu en octobre 2023, en collaboration avec l'Alliance Canadienne des Arthritiques (ACA). Il a abordé divers sujets liés à la santé mentale, pour les jeunes et les jeunes adultes vivant avec des maladies rhumatismales. Un ensemble de ressources a été créée pour les participants, et nous sommes heureux de la partager ici avec vous ! Pour en savoir plus sur l'ACA, visitez le site https://arthritispatient.ca/ Voir l'ensemble PDF ici ! Fiches de ressources infographiques créées par le Comité de la Jeunesse En janvier 2024, Take a Pain Check (TAPC) et l'Alliance Canadienne des Arthritiques (ACA) se sont associées pour créer un Comité de la Jeunesse composé de jeunes et de jeunes adultes ayant des expériences vécues. L'objectif du comité était de partager leurs connaissances et leur expérience afin de créer des informations par les patients, pour les patients, abordant différents domaines de besoins. Le comité et l'initiative ont été inspirés par la recherche réalisée par le TAPC et l'ACA au cours de l'été 2023, connue sous le nom de projet Make Rheum for Youth. Pour en savoir plus sur l'étude d'enquête, consultez les ressources ci-dessous. Voir l'infographie en PDF et télécharger ici Voir les membres du Comité de la Jeunesse ici La vérite sur les soins de santé bucco-dentaire et les maladies rhumatismales Fiche de ressources Ce document vise à fournir des ressources et des recommandations aux patients atteints de maladies rhumatismales. En novembre 2023, la fiche de conseils a été présentée lors de la conférence du Collège Américain de Rheumatologie. La première page décrit l'importance de la médecine bucco-dentaire, la façon dont les maladies rhumatismales peuvent affecter la santé bucco-dentaire et contient des liens vers d'autres sites Web. La deuxième page contient des recommandations à domicile pour les patients, notamment des conseils dentaires généraux, la gestion des ulcères, des conseils sur les troubles de l'articulation temporale (conseils liés à votre mâchoire) et des conseils sur la bouche sèche. Ce projet est une initiative collaborative de l'École de médecine dentaire de l'Université de Pennsylvanie et de la Fondation Take a Pain Check. Voir le PDF en plein écran et télécharger ici Make Rheum for Youth - Infographie L'initiative Make Rheum for Youth a été lancée pour mieux comprendre les besoins des jeunes et des jeunes adultes atteints de maladies rhumatismales afin d'identifier des stratégies pour soutenir la santé mentale et le bien-être psychosocial, entre autres facteurs. Les maladies rhumatismales ne présentent pas seulement des défis physiques : elles ont également des répercussions importantes sur divers aspects psychologiques et sociaux de la vie d'une personne, perturbant souvent les progrès scolaires, mettant à rude épreuve les amitiés et favorisant un sentiment d'isolement social chez les jeunes et les jeunes adultes. L'objectif de cet effort était d'acquérir une compréhension globale des besoins des jeunes et des jeunes adultes atteints de maladies rhumatismales afin d'identifier des stratégies pour soutenir la santé mentale et le bien-être psychosocial.